Carer’s Allowance

Wendy Chamberlain Excerpts

Wednesday 30th March 2022 Westminster Hall

[Wendy Chamberlain (North East Fife) (LD)]

It is a pleasure to serve under your chairmanship, Ms Bardell.

We need our unpaid carers. Carers UK estimates that there were up to 13.6 million unpaid carers during the pandemic, providing care worth £530 million per day. However, carers have been left to fall into poverty by this Government. Carer’s allowance currently equates to £1.93 per hour, assuming a carer only does 35 hours of care, which they need to do in order to receive the allowance. Even with the 3.1% uplift, that figure will increase to only £1.99, which is still less than £2 per hour.

Carers have borne the brunt of the pandemic. In research by Carers UK, 81% of carers said they had to provide more care during the pandemic; 35% were providing more care because services were closed or not available during the pandemic; and 80% of them were caring for someone whose condition worsened during the pandemic.

This Government forgot unpaid carers during the pandemic, which is evidenced by the fact they initially did not include carers in the priority categories for vaccination. I will just point out that, having previously been an unpaid carer himself, my right hon. Friend the Member for Kingston and Surbiton (Ed Davey) did a lot of work to ensure that that was rectified.

Unless someone has cared for somebody else, it is hard to know the day-to-day pressure of performing a caring role. It does not matter how much they love the person they are caring for; caring takes its toll. We know that the pandemic has taken its toll on everyone and we know the impact on mental health of lockdowns, uncertainty and constant worrying. For those in caring positions, it can be a million times worse. Caring can also be a very lonely role. All disabled people and all conditions are different. For some, caring means caring for a loved one who does not have the mental capacity, who cannot communicate and who potentially gets confused.

When preparing for the debate, I spoke to my researcher—I am grateful to her for allowing me to share this—who recalled the experience that she and her mother had when caring for her father, who developed early and severe dementia a decade ago. She told me how his constant confusion and distress at not being able to make sense of his thoughts or communicate them worried the whole family. Much like a toddler, he would lash out, shout words that made no sense, and sometimes cause harm to the people and things around him. She said that they saw themselves as lucky—not only because he passed away quickly and was put out of his distressing circumstances, but because it happened long before the pandemic. She said that the confusion of the new rules would have simply been overwhelming for him, and that the isolation of lockdown without any respite would have left lasting damage to both her and her mother. This will not be the experience for all carers, but it will be the experience for many. They need not only our thanks but our support, and it must be tangible.

Lifting restrictions means that more disabled people are being required to continue shielding, because underlying health conditions have not gone away. It means that some people are simply not leaving their homes. It means they avoid seeing others or going to support services in the community. It means avoiding going into care homes for respite, and it means that people rely more heavily on the friends and family who care for them.

My party opposed the Government’s decision to scrap free lateral flow tests from this Friday, and although the Government have announced that some categories will be able to access testing, they do not include unpaid carers, who have been forgotten again. It is true that carers often share homes with the people for whom they care, so there is a risk of infection even if it is known that the carer has covid, but this is not always the case. Many carers provide full-time unpaid care to those outside their home, as reflected by the fact that people can apply for carer’s allowance even if they provide care to a friend outside their home, so I ask the Government to consider ensuring that unpaid carers have access to lateral flow tests.

I think that Members on the opposition side of the Chamber agree that £69.70 is not enough to live on. It is a real-terms cut to the carer’s allowance, and those on carer’s allowance are already living on a knife edge. In Scotland, the carer’s allowance supplement—£237.90 every six months—provides some additional help, but there ought to be an uplift for all unpaid carers everywhere. As the hon. Member for Kingston upon Hull East (Karl Turner) referred to in his opening remarks, it was disgraceful that when the uplift to universal credit was introduced, it was not extended to those on legacy benefits. The Government should have uplifted the remaining benefits at that time. If £69.70 is not enough for people to live on, one would think that the Government would support people who are trying to earn and do something to increase their incomes, but no. Carers are unable to earn more than £128 per week before having their allowance cut, which means that £197.70 per week is all they can hope to earn.

A constituent of mine wrote to me only yesterday. She talked about how she has had to leave her employment because she cannot get any help to support her disabled adult daughter. She would work full time if she could, and she would choose not to seek anything from the state, but it is just not possible. As it is, what little support she receives is not enough. In her own words:

“I cannot stress enough how life and death the question is. We are stuck and there is nothing we can do to change it.”

Hon. Members have referred to the fact that unpaid carers have increased costs, often because the people for whom they care have higher costs. To make ends meet, this means going without in other ways, which was happening even before we faced the cost of living crisis that we now see.

Carers should be able to transition into work or education if they want, but at the moment there is a ban on carers receiving full-time education. This means that young carers who are learning and caring for their family are being left without financial support. With more flexible learning methods now being commonly used, there is no reason why an older person could not be doing full-time training from home while still providing care. The ban does nothing but stop carers reaching their potential in life, and it keeps them reliant on the small levels of benefits provided by the Government, who say they want to make work pay. Working not only puts vital money in the pockets of carers, but gives a source of identity and support outside that caring role.

In conclusion, being a carer is hard. Accessing the support needed to fulfil that role should not make it even harder. Providing a carer’s allowance that actually cares is essential.