Dementia Care

Victoria Collins Excerpts

Tuesday 3rd June 2025 Commons Chamber

[Victoria Collins (Harpenden and Berkhamsted) (LD)]

I start by thanking my hon. Friend the Member for South Devon (Caroline Voaden) for securing this debate. I also thank the many Members from all parts of the House who have shared passionate stories, either of their own or of constituents. Far too many people across the UK are living with dementia, a cruel and progressive condition that robs them of their memory, speech and independence. For every person with dementia, there is often a family doing everything they can behind closed doors to hold things together. I have heard from so many, and one of them is my constituent, Claire.

Claire describes her mother, Christine, as a vibrant and sociable woman. She was a devoted mother, a church flower arranger and a proud Harpenden resident of nearly 40 years. However, in her early 60s, Christine started showing signs of confusion, withdrawal and mood swings. Her family noticed something was off, but like so many others, they did not assume it was dementia. Even medical professionals overlooked these signs. Christine’s story took a devastating turn in 2018, just four weeks after her daughter Claire had given birth to twins.

At what should have been a joyful and tender time in their family’s life, Christine suffered a cardiac arrest. That moment plunged her into mid-stage vascular dementia, a terminal diagnosis with no treatment or cure. After Christine’s diagnosis, the family was visited by a nurse once and then told they were being discharged. They received no care plan nor long-term guidance. From then on, care fell entirely to the family. Claire’s dad, a retired engineer, became a full-time carer overnight. He learned to administer insulin and to manage medicine, and he joined online courses alongside his daughter.

Support for the family came when Dementia UK got involved in March 2020, and that was great, but unfortunately it was too late to change the trajectory and was tragically interrupted by the pandemic. Admiral nurses, who provide expert guidance for families such as Claire’s, could have made all the difference, but demand continues to outstrip supply.

Through it all, Claire created something positive. She saw at first hand the extraordinary power music had to reach her mum, even in the late stages of her dementia, so she set up Sing from the Heart, a community singalong in care settings and online for people with dementia. It was a real pleasure to visit them in the Willow Court care home and to hear Claire play along and the residents enjoying it. It is now a lasting tribute to her mother, who passed away in April last year, aged 73.

Alongside Sing from the Heart in Harpenden and Berkhamsted, we also have the memory café at Harpenden Trust and Open Door. There are so many volunteers, as mentioned today, working to give that care in the community. Everyone with dementia deserves high-quality care whenever they need it. The Liberal Democrats want everyone to be able to live independently and with dignity, and to receive any care they need in their home whenever possible. That is why we have routinely called on the Government to act now. Their decision to quietly drop cross-party talks on social care and push the delivery of the Casey commission’s recommendations to almost a decade away will leave many with dementia, and their families, paying the price. Do the Government accept that dementia care is in crisis, and will they now commit to better funding, so that families in this country do not go through the same hardships of receiving care as Claire and Christine?

[Madam Deputy Speaker (Judith Cummins)]

I now ask Members to keep their comments to no more than four minutes.