Carers

Tony Baldry Excerpts

Thursday 20th June 2013 Commons Chamber

[Sir Tony Baldry (Banbury) (Con)]

It is good that the House has an opportunity today to debate the needs of carers. As co-chair of the all-party carers group, I welcome this debate. It provides us with an opportunity to be the collective voice for the 6.5 million carers in the UK.

In the run-up to carers week, Carers UK published a report entitled “Prepared to Care?” which had six important recommendations from carers about what they need to help them manage their caring role. They need better public understanding and recognition of carers. Carers should have access to information and the right support from the beginning. It is important to remember that every day 6,000 people take on new caring responsibilities in the UK, and from day one they need access to the right support, advice and information. Every day across the country there are people whose loved ones have a stroke or discover that they have been diagnosed with Parkinson’s or with age-related dementia, and they need support from day one.

Professionals need to understand the role of carers and share information, decision making and planning with them. The hon. Member for Worsley and Eccles South (Barbara Keeley) made the point about the GP who treated a patient for years but never asked about the carer. Carers can no longer be treated as invisible. They need access to high-quality practical and emotional support and information, as well as breaks from caring. The point made by the hon. Member for Birmingham, Selly Oak (Steve McCabe) about respite care is crucial. When Carers Oxfordshire surveyed carers in Oxfordshire last week about the issue that caused them greatest concern, not surprisingly access to respite care came very near the top of the list. Carers need flexible working practices, understanding from employers, financial support, and a fair and easy-to-navigate welfare system.

A growing recognition of the number of carers in the country is evidenced by the fact that each year carers week gathers further and greater momentum. Carers week took place between 10 and 16 June. Alongside Carers UK seven other national charity partners—Age UK, Carers Trust, Independent Age, Macmillan Cancer Support, Marie Curie Cancer Care, the MS Society and Parkinson’s UK—came together to celebrate the contribution that carers make and to signpost them to the advice, information and support that they need.

This year’s carers week was the largest ever, with more than 2,600 groups registering to take part and more than 10,000 events up and down the country—that is a lot of events. Those organising events included carers’ groups, service providers, local authorities, hospitals, domiciliary care services, hospices and GP services. Events in Oxfordshire included Carers Oxfordshire—the umbrella group for carers in the county—running outreach events and advice stalls at local Sainsbury’s, Asda and Waitrose stores. Last Friday, I visited an Oxfordshire branch of Sainsbury’s and lots of people came up and asked questions, which was fantastic, because people do not always recognise that they are carers. Outreach events to identify carers also took place in GP surgeries and town and church halls across the county.

In Parliament, there was a “Question Time” event in Portcullis House with the Minister of State, Department of Health, the hon. Member for North Norfolk (Norman Lamb), who is responsible for care and support. The event brought together the Association of Directors of Adult Social Care, Skills for Care, the Royal College of General Practitioners and Public Health England, alongside the campaign’s charity partners and carers, to debate how the NHS and social care can better support carers. Key issues discussed included the challenge of identifying and supporting carers when many people do not recognise themselves as carers, and how to ensure that carers are represented in the new NHS structures nationally and locally. Like all those taking part in today’s debate, I am sure, I was pleased when more than 100 parliamentary colleagues attended a parliamentary photocall in support of carers week. As the previous speaker mentioned, there was a useful speed networking event that enabled MPs to meet carers and hear their stories directly.

Interestingly and usefully, this year’s carers week saw increased engagement and involvement of employers in the campaign, which is important because, as Carers UK polling earlier this year showed, 2.3 million people have given up work at some point to care for loved ones, and census data published in May show that more than 3 million people are juggling work and care. That is a huge number of people, so getting employers involved in understanding the needs of carers is very important. I am glad to say that Sainsbury’s has continued its sponsorship of the employers for carers campaign, with nearly all its 1,200 stores running events, linking up with local groups and organisations to raise awareness of the support on offer to carers. Crucially, Sainsbury’s delivered information and advice not only to its customers but to staff with caring responsibilities.

I am also glad to say that Government Departments, such as the Foreign and Commonwealth Office and the Department for Environment, Food and Rural Affairs, held carers week sessions for their staff, as did a number of private organisations, as the hon. Member for Stretford and Urmston (Kate Green) mentioned. Those included the Michelin Tyre Company, KPMG, HSBC, British Gas, Northamptonshire police, the UK Border Agency, BT plc, Credit Suisse, Transport for London, the Financial Ombudsman Service and the London fire brigade. There is growing recognition from employers in the private and public sectors that they have a duty of care to those of their employees who are carers. In Oxfordshire, Employers for Carers, in partnership with Oxfordshire county council and Carers UK, launched a new membership hub for local employers large and small, which will give local employers the opportunity to share good practice in supporting carers to juggle work and caring and to raise awareness of the business benefits of keeping carers in the work force.

[Kate Green]

It is encouraging to hear that list of the many employers who want to support the carers in their work force, and I am interested in what the hon. Gentleman says about spreading good practice among employers. Does he agree that the large employers have a particular role to play in working with their supply chains to spread good practice?

[Sir Tony Baldry]

That is an extremely good point. These things are organic. A few years ago big employers such as Sainsbury’s would not necessarily have been involved in that way. Having been involved in carers policy over the years, what I find encouraging is that each year a further step is achieved.

[Barbara Keeley]

I had not intended to make this point earlier, but I will make it now because so much has been said about employers. The Independent Parliamentary Standards Authority does not allow MPs’ staff to take compassionate leave; it allows MPs to give only sick leave or maternity leave, as I discovered late last year. Given all the good work that has been done with employers, that is an issue the whole House should take forward.

[Sir Tony Baldry]

One of the non-executive members of the IPSA board will shortly be work-shadowing me for a day, so I will certainly raise that valid point with her. I will give her lunch, out of my own taxed income, along with other colleagues who might want to talk with her, and the hon. Lady would be very welcome. I think that the board’s non-executive members have to take some responsibility for the way IPSA functions.

[Norman Lamb]

Does my hon. Friend agree that it is not simply about employers having a duty to look after employees who have caring responsibilities; it is also about enlightened self-interest? It is an enormous own goal when so many employers lose really good and experienced employees, who could otherwise contribute so much to a business, because they have caring responsibilities. It is in their interests to keep those employees.

[Sir Tony Baldry]

I entirely agree and hope that all employers see the enlightened self-interest in looking after carers. I think that there is a general recognition that everyone in the system has to start thinking about carers, particularly those who are caught in the sandwich generation and have to look after children and older relatives.

The two colleagues who have spoken in the debate have already set out the broad context of the research done in carers week: about three quarters of carers felt unprepared for their caring role; four in 10 had reduced their working hours because of caring; nearly a third had missed out on the chance of promotion; almost half had used savings to pay basic bills, such as those for heating and food; and more than a quarter had taken out a loan or fallen into debt as a result of caring.

I am conscious that many colleagues wish to speak. I will use the time remaining to highlight some specific concerns raised by Carers Oxfordshire. In anticipation of today’s debate, I asked Carers Oxfordshire about the concerns of local people. Unsurprisingly, there was a huge response from carers. I think that there is a feeling among many carers that one of the most important things is having their voice heard. The sorts of points raised were as follows:

“Carers would like to hear greater clarification about the implementation of the Care and Support Bill along the following lines: ‘Carers are very pleased to see the rights of all carers to have an assessment so clearly defined in law. The concern is that the regulations are written in the spirit of the legislation i.e. of widening the access to help and support for carers. The national eligibility framework needs to reflect this and ensure that the threshold of eligible needs is not set too high. The risk is that local authorities will use the framework to restrict “eligible needs” on the basis of limited resources, which could mean many carers will not be any better off in terms of the help and support they receive. We must ensure there is not a postcode lottery in the way the framework is operated by local authorities.’”

On respite for carers, respondents commented that it is

“too expensive and too hard to get currently as care homes often don’t ‘allow’ bookings to be made well enough in advance to allow carers to book holidays. There is very little financial help for ‘stay at home’ carers. What about care vouchers similar to child care vouchers being issued, or tax relief on care costs?”

With regard to GPs, the identification of carers is a really important issue. There

“needs to be more emphasis from GPs and a greater recognition of carers’ contribution and value, including their health and wellbeing.”

Another point was this:

“Poor quality of care provided by care agencies is a huge concern. Quality, reliability and accountability are ongoing concerns for carers.”

On carers in employment, concerns were expressed about the financial cost of care and the impact on those who have to give up work or reduce their working hours.

The respondents make an interesting point:

“Military carers and their family can suffer a significant disadvantage, to include homelessness due to ‘entitlement’ issues around properties when they take on caring responsibilities. Lack of recognition from the military.”

They continue:

“Carers want to see social care and nursing care fully combined as one discipline. As far as they are concerned they are one and the same thing. During one carer’s experience in the weeks prior to her mother’s hospital admission she had had three different teams visiting her throughout the day. They spent more time completing forms and leaving files than anything else. It was tiring and draining for her to have so many different people coming and going. Full integration of the two disciplines is key for continuity, to prevent duplication of effort and reduce needless bureaucracy.”

Finally, they state:

“Look at simplification of forms for applying for carers allowance and attendance allowance.”

It is really good news that the Care Bill will consolidate and simplify decades of social care legislation in England. We must not lose sight of the fact that it will include significant and welcome new rights for carers to improve access to carers assessments and new duties on local councils to provide care services. I share the concerns of the hon. Member for Worsley and Eccles South (Barbara Keeley) about young carers, but I am confident that those on the Treasury Bench have taken on those concerns and will table amendments to the Bill in the Lords to cover them.

We are making good progress. The direction of travel is a good one, but we have to recognise that a huge amount of distance still has to be covered if we are to be proper advocates and protectors of the millions of carers in the UK who selflessly give themselves to look after a loved one.