Dementia Care and Services

Debate between Steve Rotheram and Norman Lamb

Tuesday 7th January 2014 Commons Chamber

[Norman Lamb]

I broadly agree with my hon. Friend. The most important thing is that the care and support should always be right for the individual. Whatever they need they should be provided with. I recently visited the most amazing GP surgery in Gnosall, Staffordshire, which has managed—this demonstrates a point that my hon. Friend the Member for Elmet and Rothwell made about the variability of dementia diagnosis rates—to achieve diagnosis rates of close to 100%. That demonstrates what is possible. Most of the diagnosing is done in the community within primary care without referral to a memory clinic. What they have found is that by getting early diagnosis and then having very good community follow-up and support—the general practice is central to that—people are staying in their own homes and maintaining a good life for far longer and admissions to care homes and nursing homes are significantly reduced. That demonstrates what is possible and confirms the point that my hon. Friend the Member for Montgomeryshire (Glyn Davies) made.

[Steve Rotheram]

Will the Minister give way?

[Norman Lamb]

I will. I am still on page one of my speech.

[Steve Rotheram]

I thank the Minister for giving way. He is absolutely right about the individual care package that somebody who, unfortunately, has dementia or Alzheimer’s gets. Thankfully, long gone are the days when somebody was given a couple of tablets in the hope that that might somehow affect their condition. Is he aware of the House of Memories project in Liverpool? Is he also aware that there is an event that I am hosting here on 17 June that Members of this House are welcome to attend?

[Norman Lamb]

I thought for a moment that the hon. Gentleman was not going to mention the House of Memories. He always does. Of course I am aware of it because he keeps talking to me about it and knows what I think. I am incredibly impressed by it and there is a plan for me to visit and see it for myself. He is right constantly to make the case for it and for spreading what has been demonstrated is possible in Liverpool to other parts of the country.

It is less than two months since the last debate on dementia and it is a measure of the importance that Members put on the subject and the extent of the challenge that we face as a nation that, thankfully, the House has recognised the importance of debating it regularly. It is also less than two months since we published our dementia state of the nation report, which sets out the progress that we have made on dementia and the challenges we are facing.

The report is an incredibly important document because it also includes online a set of interactive maps that, for the first time, allows someone to enter their postcode to see how their local dementia services are performing and how that performance compares with the rest of the country. Having this level of transparency, as well as the extent to which people will be able to hold their own local areas to account, will have a big impact on driving up diagnosis rates. I have already made the point that some parts of the country have demonstrated that high diagnosis rates are possible. There is no rocket science here and no reason why other parts of the country cannot follow suit, understand and learn that best practice and, critically, apply it to ensure that people get the support they need.

My hon. Friend the Member for Elmet and Rothwell is absolutely right when he makes the point that unless someone has had that diagnosis, they do not get access to the advice, guidance, support and services that are potentially available in a local area to make the life of that individual better and, critically, to provide more support for the carer as well. The maps highlight the variation in dementia care across the country and allow people, but also commissioners and providers, to use the data to see how they compare against other areas and then work to deliver improvements.

Around the world, someone is diagnosed with dementia every four seconds. Over 35 million people have it and as people live longer than ever before that figure is set to double every 20 years. Among them, 58% live in low to middle income countries and this proportion is projected to rise to 71% by 2050. We cannot ignore the pressure on our health and care systems and dementia costs society as a whole as much as £23 billion in the UK alone. The cost of dementia worldwide has been estimated at about £400 billion, or 1% of the world’s GDP. This is why dementia is a major priority for the UK Government and why the Prime Minister launched a dementia challenge in 2012. But we must fight back on an international scale, breaking down barriers and joining forces to address this issue, which has such an enormous human and economic cost.

Five years ago, the national dementia strategy was developed. It has achieved a lot, laying the foundations for real change. We are currently evaluating progress on dementia and on how we have achieved improvements in dementia care, and we are looking at both the national dementia strategy and the Prime Minister’s challenge. I shall come back later to the point about what comes after, and it seems to me sensible first to understand—

House of Memories Programme

Debate between Steve Rotheram and Norman Lamb

Tuesday 4th June 2013 Westminster Hall

[The Minister of State, Department of Health (Norman Lamb)]

I congratulate the hon. Member for Liverpool, Walton (Steve Rotheram) on securing the debate. I remember his speech in the Chamber during the debate he referred to earlier. He talked passionately about the House of Memories initiative in Liverpool, and I think I am right in saying that he also spoke about his mother’s battle with dementia, so I know he cares a lot about this issue. I am keen to work with him and to talk to him further about how we can maximise the benefits of such an approach.

I should also refer to another institution in Liverpool—Everton football club. I am not sure where his loyalties lie in that great city, but Everton have done great work on reminiscences and dementia. I have had people from Everton come to the Department, together with other representatives of football and sport. The hon. Gentleman talked about long-term memory and the power of reminiscence, and sporting memories can be incredibly valuable in bringing people back who are suffering from dementia. I am absolutely with him on that.

[Steve Rotheram]

I thank the Minister for giving way, and for mentioning Everton football club and the Everton in the Community project. During my visit to the museum, Everton were represented, and they had their football reminiscence material there. It does exactly what the Minister has outlined, and stimulates conversation like nothing else because of people’s memories of great moments in their lives. Some of those will obviously be sporting-related, and that could be part of what the House of Memories project is about.

[Norman Lamb]

I am grateful for that intervention. I have been asked to give my own footballing memory, and it is Jeremy Goss scoring a fantastic goal away at Bayern Munich. Norwich City were for a long time the only club that had beaten Bayern Munich away. I am looking to see whether we can extend the work of Everton to other premier league and football league clubs, because they have a powerful position in their communities and can be opinion leaders in developing these ideas powerfully in their communities.

I am wholly supportive of the House of Memories. It is an exceptional project that has been funded in part, as the hon. Gentleman said, by the Department of Health; more than £220,000 has been allocated during the last two years. As we have heard today, National Museums Liverpool provides an innovative training programme that is making a real difference for social care staff by helping them to connect with the people with dementia whom they support every day. They use the objects that the hon. Gentleman referred to and the stories linked to the museums’ collections. Museums across the country have a rich collection of objects and art that can be so powerful in helping people to live well with dementia. It is a very powerful partnership with care providers. I think the hon. Gentleman said that 3,000 care workers had already participated. That demonstrates the reach of this project. It is fantastic that the cultural sector is involved in work on dementia; it is a great collaboration. Getting the medical profession to consider new and different approaches beyond pure medicine can be very powerful. The work to which I have referred is critically important in supporting our drive to create more dementia-friendly communities.

The hon. Gentleman is right about the value of early intervention and the savings that can be secured for the NHS in this way. My understanding is that the money from the Department of Health has already helped to roll out this approach to museums across the north of England. There is a funding application in at the moment for 2013-14. That is being considered by the dementia work force advisory group. It could extend the roll-out to museums and galleries in the midlands. I think the decision on that will be communicated to National Museums Liverpool over the summer. Obviously, I cannot pre-empt the outcome of that application, but clearly, as I have said, I am wholly supportive of this project and keen to work closely with the people involved to develop this initiative and concept further.

There are 670,000 people in England with dementia. That number is increasing year on year, as is the £19 billion cost to society of dementia. Faced with that, the Prime Minister launched in March last year the challenge to which the hon. Gentleman referred, which builds on the dementia strategy the Labour Government initiated in, I think, 2009. It is a powerful and good initiative and was one of the first globally to be developed. This condition is the biggest fear for people over the age of 55—as someone who has just turned 55, I am acutely aware of that.

A year on from the launch of the Prime Minister’s challenge, dementia remains a priority for the coalition Government, for their partners in health and care and for me personally. The House of Memories was I believe referred to in the updated report on the Prime Minister’s challenge last November, so its effect has been recognised. In the first year, we have achieved a lot, not only laying the foundations for delivery but making progress across all three areas of the challenge: first, improving health and care services for people with dementia; secondly, creating more dementia-friendly communities, where this work can play such a valuable role; and thirdly, the importance of research and committing more resources to research into finding cures and prevention mechanisms for dementia. That is creating a momentum that will lead to real improvements in the lives of people with dementia and their carers.

For the first time, there is a quantified ambition to increase the diagnosis rate for dementia from the current 45%, which is far too low. Our aim is that by 2015 two thirds of people with dementia should have a diagnosis, with appropriate post-diagnosis support. We are also seeing real action on the creation of dementia-friendly communities, with 50 areas expressing an interest in becoming dementia friendly. An awful lot is going on in Liverpool, and I do not know whether the city as a whole is exploring that, but clearly there is good leadership in that city.

The launch of the Dementia Friends initiative has already captured the imagination of thousands of people, and the number of people attending the awareness sessions is growing every week. I participated in a session in Warwick in April, so I have become a dementia friend—I have the badge to show it. If the hon. Gentleman has not done that yet, I encourage him to do so and, indeed, I encourage others to take up that challenge locally.

The UK will use its presidency of the G8 to identify and agree a new international approach on dementia research. A specific G8 dementia summit will be held in London in the autumn. It will bring together Health and Science Ministers alongside world-leading experts, senior industry figures and the Organisation for Economic Co-operation and Development. The event will look to secure more co-ordination and collaboration on dementia globally. I suspect that initiatives such as the one from Liverpool could play a part internationally, through this G8 process, in teaching other countries about what could be learned from them.

A skilled work force is vital to delivering compassionate care for people with dementia. That is why we are taking forward work to ensure that we have front-line staff who are capable and competent in dementia care. The Department of Health and NHS England are working closely with Health Education England to put in place a forward work programme for the delivery of the work on dementia set out in their mandate. That includes ensuring that 100,000 NHS staff have undertaken foundation-level training on dementia by March 2014, so that they can better support people with the condition. A new e-learning package has been published that will lead to 100,000 nurses and health care assistants receiving dementia training via e-learning by 2015.

In March, the Department launched a new nursing vision and strategy for dementia care that sets out what is expected of all nurses in order to meet the level and quality of care expected in all settings. In social care, the dementia pledge builds on the care and support compact by supporting social care employers to develop their work force’s understanding of dementia and to adapt their services to meet the needs of people with dementia. More than 900 care providers have already signed up to the pledge and almost 150 to the compact.

The hon. Gentleman asked one or two questions at the end of his contribution. In the spending review discussions, the focus on and the priority that the Government give to dementia will remain central to our thoughts in ensuring sufficient funding to maintain the momentum we are starting to build. As I said, in this Parliament we are building on the last Government’s strategy through the Prime Minister’s challenge.

I confirm again my absolute support for the House of Memories initiative. I want to maintain the liaison and collaboration that has been developed in the last year or so. The hon. Gentleman mentioned the possibility of meeting in Liverpool, which I would love to do if time allows. My diary is a complete nightmare, but if it is possible I will be very happy to do that. I certainly want to do all I can to ensure that the valuable lessons learned from this exciting and imaginative initiative, bringing together two sectors, are learned elsewhere, so that people with dementia really benefit from it.