Childhood Cancer Outcomes

Debate between Steve Brine and Caroline Dinenage

Tuesday 26th April 2022 Commons Chamber

[Dame Caroline Dinenage]

My hon. Friend makes an excellent point: there is such a huge impact on families who support a child through cancer and we need to look at how we support them in the round.

I have heard from parents of children who are known as cancer free—so they are probably counted as a success statistically—yet some of them are still in hospital because of the disastrous impact of the treatment itself. Very many survivors are left with long-term hormone deficiencies, some of which are life threatening. Survivors can also experience neurological, behavioural, cognitive and visual impairment. The St Jude Hospital in the United States takes an annual survey of former patients. By the age of 50, they all—100% of them—have life-altering health issues, from fertility issues to severe neuro-disability. I would love to know whether similar surveys happen here and whether the conclusions are the same.

As other Members have said, it is vital to find better treatments specifically for children, which means better research is vital. Children’s cancer is fundamentally different from adult cancer in that so much of it is developmental rather than environmental. The good news is that progress is within our reach—there is so much potential in immunotherapy and genomics—and the even better news is that the UK has a fantastic research community and the most comprehensive database of childhood cancer genomes anywhere in the world. The bad news is that paediatric oncology research is the absolute backwater of cancer sciences. It does not have the focus, the money, the public relations or the prestige of other forms of research. Until there is a concerted effort to change that, children like Sophie will be failed.

I expect the Minister to tell me today that great progress has been made on the cancer survival rate among children. Seventy years ago, children simply did not recover or survive a cancer diagnosis; now around 80% do. But the figures belie the fact that for many cancers, including the rhabdomyosarcoma that killed Sophie, the survival rate is as low as 20%. For another cancer, DIPG—diffuse intrinsic pontine glioma, which is a form of brain tumour—the survival rate is 0%. It is literally a death sentence. Can you imagine being that child? Can you imagine being that parent?

There is no doubt that research investment drives survival rates. Since 1960, the survival rate for childhood leukaemia has improved from 10% to 80%. By contrast, only two multinational clinical trials have ever taken place for rhabdomyosarcoma. With only 60 cases diagnosed in the UK per year, there is very little scientific evidence or appetite to develop and complete clinical trials. It is of no interest to big pharma. So we need to look much more imaginatively at how the National Institute for Health and Care Research can encourage more research in such types of cancer.

We also need to look at how new treatments can be brought forward much more quickly. I met Kevin and Karen, who lost their son Christopher just days before his sixth birthday from an aggressive form of brain tumour. They raised concerns about the EU paediatric regulations, which they feel are outdated and do not reflect the latest technological advances. Now that we have left the EU, we have the opportunity to produce new legislation that will incentivise world-leading pharmaceutical products, especially for children, and we need to take that opportunity.

Today, I ask the Minister to start a children’s cancer mission. We have seen from the incredible work on brain cancer inspired by our much-loved former colleague Tessa Jowell how much progress can be made when we are galvanised to bring together the best of Governments, charities, research, academics, medical and science into centres of excellence.

[Steve Brine (Winchester) (Con)]

My hon. Friend is speaking beautifully and powerfully, as always. When the late Baroness Jowell came to see us at the Department of Health, we got the clear impression that she would not take no for an answer. She recognised that although research funding was important, the thesis around which the research proposals were then taken forward was the key. She galvanised the brain cancer and tumour charities into bringing that forward, and that has revolutionised the number of proposals on which they conduct research. Does my hon. Friend agree that we need to do that across the board in cancer, but specifically in paediatric oncology?

[Dame Caroline Dinenage]

My hon. Friend makes an excellent point. I know that, as a former Minister responsible for this issue, he cares about it deeply. I want to bring everybody together in centres of excellence to make sure that we can galvanise everything to that point. I assure my hon. Friend that we will not take no for an answer either.

I am keen for the Government to look at progress in the Netherlands, where the Princess Máxima Centre for paediatric oncology has brought together the care for children and their families, scientific research, and an academy for health professionals, all under one roof, along with a foundation. The centre has a mission: to cure every child with cancer with optimal quality of life. The Government’s 10-year plan for cancer is a once-in-a-generation opportunity to move the dial on cancer outcomes. Will the Minister agree, as part of that work, to look at a children’s cancer mission? Will she bring together a working group of paediatric oncologists, charities, parents and young cancer survivors to formulate a plan to drive forward the work on how we detect, treat and care for children with cancer?

Live Events: Government-backed Insurance

Debate between Steve Brine and Caroline Dinenage

Tuesday 23rd March 2021 Westminster Hall

[Caroline Dinenage]

What I am saying is that the decision is with the Treasury right now. We are working very closely with the Treasury to provide the evidence it needs to make a financial decision on this, and it is a big financial decision. My hon. Friend the Member for Winchester hit the nail on the head when he said it is a leap of faith. It is obviously a big financial decision that the Treasury has to make. I am trying to articulate the background within which that decision will be made. But it is absolutely still on the table, and it is absolutely still a decision being looked at right now. In DCMS we are really keen to gather all the evidence that is needed to make that case.

[Steve Brine]

I want to stiffen the argument that the Minister is making to the Treasury. It is about the supply chain, which the hon. Member for Cardiff West (Kevin Brennan) touched on. It is not simply the case that they are going to have another rotten year; for many in the supply chain, two years of this will end their business, and then they will fall into other support schemes. The calculation that the Department can make to Her Majesty’s Treasury, therefore, is of a reduction in other areas if it saves here. I think that there is very much an argument about investing to save that the Department can make to Treasury colleagues.

[Caroline Dinenage]

I understand exactly what my hon. Friend is saying. Another Member—I cannot remember who it was—said that this is, by definition, quite a precarious industry anyway. My eldest son was due to go to the Boardmasters festival down in Newquay the year before, which was tragically cancelled because of the weather. The festival organisers have had to put up with two years of cancellations already before 2021, so Members can see what a huge pressure has been put on them.

However, hon. Members will recognise that the bar for considering Government intervention is set extremely high, as of course it has to be, especially in light of the considerable extension to so many financial packages that have already been helping our sectors—the furlough scheme, the business rate relief, the VAT cuts and local business support. The key thing that will give us much more certainty as we move forward is our world-class vaccination roll-out, along with all the steps we have been taking to beat the virus. This, along with reopening when we are confident that it is safe to do so, will reduce the chance of cancellation and interruptions due to covid-19, creating a much more predictable and secure opening context for all sorts of events to take place. Hopefully that will de-risk the sector as well.

In that context, we are continuing to engage with organisations to work through all the barriers to staging events, and indemnity insurance is of course one of those. It is part of our wider drive to reopen our crucial sectors as quickly as it is safe to do so. We are also working with other Departments. The Opposition spokeswoman, the hon. Member for Wirral South (Alison McGovern), asked me about that. We do meet regularly with other Departments. I met with representatives from a number of Departments last week, and we worked very closely with them to talk about the public health context and ensure that we are in a good position. In an ideal world, the insurance sector itself would step up to the plate and support this vital part of our economy, but in the absence of that, any decision on a sponsor package rests with the Treasury.

The Government recognise the challenges that have been faced by organisations and individuals alike and have ensured that support is available. The hon. Member for Cardiff West trailed this, but I will now talk about some of the specific things that have taken place across the wider economy. A number of Members have spoken about freelancers, and we know that so many of our live events depend upon an army of really talented freelancers, who do a whole range of really skilled jobs. Our sectors rely on freelance work more than any other, and I am keenly aware of the financial needs that many have found themselves in. That is why I was really pleased that in his Budget speech the Chancellor extended the self-employed income support scheme, which means an additional 600,000 people can access support on top of those who have already received it. In addition, Arts Council England has so far awarded £51 million to individuals needing support. Those things are important as well, as we try to work our way back.

The Chancellor also announced that the 100% business rates holiday for retail, hospitality and leisure in England has been extended by an additional three months. He has also extended the 5% VAT reduction until 30 September, before then tapering it for the rest of the financial year. It is worth saying that the VAT cut alone is forecast by the Office for Budget Responsibility to be worth around £4.7 billion for hospitality and tourism and visitor attractions. A new recovery loan scheme will also be launched to replace the existing Government guarantee schemes that close at the end of March, which have supported £73 billion of lending to date. This will help businesses of all sizes, including in our vital DCMS sectors and numerous live events, to take the next stage of recovery.

A total of £700 million of extra funding to support our world-leading arts, culture and sporting institutions was announced in the Budget, all serving to protect what makes the UK a world-leading destination. The levelling-up fund—45 new town deals and city growth deals in Scotland and Wales—shows how the Government are investing right across our Union.

UK Musicians: EU Visa Arrangements

Debate between Steve Brine and Caroline Dinenage

Tuesday 19th January 2021 Commons Chamber

[Steve Brine]

Surely the longer this situation persists the worse it gets for UK artists, and the longer their recovery from covid becomes. Right now, musicians, agents and those who book for them have way too much risk in fixing European gigs. It is no good Opposition Members who voted for no deal joining the debate now. We have the deal, but surely we need to return to it with the sensible UK proposal that was on the table, which presumably, as the Minister has said today, still stands.

[Caroline Dinenage]

My hon. Friend has just hit the nail on the head, and does so in a much more articulate way than I could. That is absolutely right: the deal is still on the table and our door is open for the EU to come back and take up that deal if it wants to. In the short term, we are speaking to member states bilaterally about the visa regime and whether there is any facilitation, as opposed to a waiver, that could be put in place. What the sector now needs is certainty and for us to be able to put in place the guidance and support for it to move forward.