Parkinson’s Disease

Steff Aquarone Excerpts

Monday 17th November 2025 Westminster Hall

[Dr Caroline Johnson (Sleaford and North Hykeham) (Con)]

It is a pleasure to serve under your chairmanship, Ms Lewell. I congratulate the hon. Member for Colne Valley (Paul Davies) for securing this debate and I thank the charities and organisations including Parkinson’s UK and the Royal College of Emergency Medicine for meeting me and sharing the insights into Parkinson’s that they have as patients and clinicians.

In the UK, 166,000 people have Parkinson’s. It is a progressive neurological disorder that can start with a tremor or muscle stiffness, sleep problems or a whole range of symptoms, and end in complications such as swallowing difficulties, falls and bone fractures. Like all degenerative conditions, it impacts not only the individual but their family. It is vital that our NHS has the neurologists and therapists to care for people with Parkinson’s, because they depend on them for world-leading care. Unfortunately, this is an area in which we could do better. The UK was ranked 44th out of 45 European countries for the number of neurologists per head of population. The UK has only one neurologist per 100,000 patients, compared with one for every 25,000 patients in France and Germany, and one in five patients here has no access to a Parkinson’s disease nurse.

[Steff Aquarone (North Norfolk) (LD)]

The real-world experience in North Norfolk is very much like that. It is a struggle to secure the care that people need. We have a shortage of specialist care and Parkinson’s nurses, and those are just some of the things that our rural health system struggles with. Does the hon. Member agree that those living with Parkinson’s in rural communities such as North Norfolk need support and care provided in a way that is equally accessible to them?

[Dr Johnson]

As I am a rural MP myself, the hon. Gentleman will not be surprised to hear that I agree with him.

The problem is with wider specialisms, too. According to the 2022 audit by Parkinson’s UK, just 40% of people with Parkinson’s had access to a speech and language therapist, 45% had access to an occupational therapist and 62% had access to a physiotherapist. I want to particularly highlight that to the Minister because there are no treatments that slow down the progression of Parkinson’s disease, but evidence published last year suggests that exercise might do, so physiotherapy—making sure that people are doing the right exercises to help them—is important. What plans does the Minister have to recruit, train and retain the NHS Parkinson’s health workforce? For the benefit of charities, hospitals and patients, will she shed any light on how her delayed long-term workforce plan, when it is published, might assist in that mission?

As was highlighted by my hon. Friend the Member for Chester South and Eddisbury (Aphra Brandreth), Parkinson’s disease patients can live for many years, often with huge positivity. I was inspired to read of Neil Russell, a 65-year-old gentleman who ran from London to Barcelona—almost 1,000 miles—to raise money for Parkinson’s disease research. One in three of those living with Parkinson’s is of working age. It is crucial that they can get support, because many work as doctors, nurses, chief executives, scientists, journalists and in other professions. I was inspired by a meeting that I was privileged to have with Dr Acheson last week. He is not only working as an A&E consultant, after being diagnosed with Parkinson’s almost 10 years ago, but is leading work on a time-critical medicines project.

We have already heard that medicines for Parkinson’s are time critical. If people with Parkinson’s do not get their medication within 30 minutes of the prescribed time, it can lead to them being unable to walk, talk or swallow. Research by Parkinson’s UK has found that 58% of people with Parkinson’s—a clear majority—do not get their medication on time every time when in hospital. That will not only cost hospitals £65.8 million in excess bed days and readmissions, but cost over 150 people their lives this year. That is inexcusable.

Just half of NHS trusts provide staff with training for time-critical medication, and one in four trusts in England does not have policies allowing people with Parkinson’s to take their own medication in hospital. That leaves patients capable but unable to take their medication, and they suffer detriment as a result. I was pleased that last week—following repeated questions to the Minister, both in the Chamber and outside—that the Minister for Health Innovation and Safety, the hon. Member for Glasgow South West (Dr Ahmed), met me, Dr Simin Nikou from the RCEM, and Dr Acheson to talk about self-administration of medicines. I am pleased that the Minister was able to commit that the chief pharmaceutical officer will work with those individuals to ensure that there is a protocol for self-administered medicines in A&E for those who are capable of taking them, and to ensure that the protocols for time-critical medicines are enhanced.

NHS England launched a three-year national quality improvement initiative on time-critical medications that is not yet complete. I worried that the Minister’s eagerness to merge NHS England and her own Department may cause such ongoing initiatives to be simply lost. I encourage the Minister to correct me if I am wrong but, from conversations with her ministerial colleague, I understand that NHS England’s three-year initiative on time-critical medicines will be completed.

Research is important because, at the moment, treatment for Parkinson’s is symptom-relief treatment, not disease-modifying treatment. In fact, some of it is not symptom-relief; it is treatment to relieve side effects of the treatments that are providing symptom relief. Ramping up research is an important step towards finding better treatment, and hopefully chasing down a cure for Parkinson’s.

Between 2019 and 2024, the last Conservative Government invested almost £80 million into research for Parkinson’s disease, on top of a £375 million investment over five years for research into neurodegenerative diseases. Will the Minister confirm whether that funding commitment will be renewed as part of her Government’s spending review? What assessment has the Minister made of companies pulling out of billions of pounds of life sciences investment in the UK? How does she think that will impact critical research into conditions such as Parkinson’s? Is she working with her colleagues in the Department for Science, Innovation and Technology to resolve matters for the health sector?

Within the treatments that we have so far, Produodopa was approved in February 2024, and made available on the NHS, under the last Conservative Government, to around 900 people with Parkinson’s. As people with Parkinson’s often struggle with taking numerous tablets to manage fluctuating symptoms, delivering a continuous dose of medication 24 hours a day by a canula under the skin can be ideal to manage symptoms day and night. What assessment has the Minister made of the benefits of Produodopa so far? What steps is she taking to make sure that more people with Parkinson’s have access to that potentially life-changing treatment? More broadly, what is she doing to mitigate the supply issues for some Parkinson’s medications?

Financial Transparency: Overseas Territories

Steff Aquarone Excerpts

Wednesday 5th November 2025 Westminster Hall

[Steff Aquarone (North Norfolk) (LD)]

I congratulate the hon. Member for Bolton West (Phil Brickell) on the way he has framed this discussion, because we are debating the impact of these tax arrangements in the overseas territories on UK communities. Every penny being shielded from paying the fair share in these places is a penny that is not getting into our NHS and is not going to support local schools or improve public transport.

Hard-working people in North Norfolk pay their taxes fairly, but thanks to the shady systems of places like the BVI or the Cayman Islands, the multimillionaires and multibillionaires can squirrel their money away and pay very little tax at all. With their shell corporations and subsidiaries, trusts and transfer pricing, the fat cats can get away without paying their fair share. It is a tax system that is “pay to play”, and the billionaires are playing all of us.

The BVI, the Cayman Islands and Bermuda all have something in common: up there, in the top left-hand corner of their flags, is the Union Jack. Many look at this as a legacy of centuries past, but it must actually represent the existing British responsibility for—dare I say, complicity in—tens of billions of pounds of corporate tax avoidance and abuse. We still hold power over many of these places, and we can take steps to force their hand if necessary. Orders in Council have been drafted previously, which can require our overseas territories to take this action. Governments have been understandably reluctant to take this step, not wanting to appear as the colonial hand reaching across the ocean to meddle in the affairs of its territories. But if we are to provide defence and security for them, stand up for their interests internationally and support them in their hours of need, it is not too much to ask that the Governments of those territories play fair.

[Richard Foord (Honiton and Sidmouth) (LD)]

The Panama papers, released in 2016, were so-called because the company whose papers were exposed, Mossack Fonseca, was headquartered in Panama. Is my hon. Friend aware that one out of every two companies listed in the Panama papers was incorporated in the British Virgin Islands?

[Steff Aquarone]

Yes, I am frighteningly aware, because I have tried to access these registers myself, and I have relied upon reports by other organisations to tell me what is really going on. When a country’s wealth in savings is a multi-hundred-times multiple of its GDP, that brings all this into sharp focus.

But to get back to my focus, when people in North Norfolk see their health services closing down, their children’s schools unable to buy glue sticks and the cuts to public services, and then they look at the billionaires and their yachts, mansions, football clubs and private jets, they smell a rat—they know something is not working here. Something has to change. That change is real, and it is possible, if the Government have the will and the guts to stand up for it. I hope the Minister and his Government can finally be the ones to end this scandal, secure money for our public services and stop these tax havens once and for all.

--- Later in debate ---

[Charlie Maynard (Witney) (LD)]

I thank the hon. Member for Bolton West (Phil Brickell) for securing this debate. I also thank the right hon. Member for Sutton Coldfield (Sir Andrew Mitchell) for all his work on this issue and for his good speech today. Indeed, I have enjoyed the contributions from all hon. Members so far. The common theme has been explaining that what goes on in the overseas territories impoverishes people in the UK and takes money out of their pockets, which we all want to see stopped.

The Government have an opportunity to improve financial transparency by working with the overseas territories so that they adopt the same standards as the UK. The deliberate masking of corporate ownership is used to dodge tax, accountability and responsibility. It inhibits law enforcement and prevents citizens, workers and journalists from holding the powerful to account for their corporate actions.

If Labour wants bad actors to be brought to heel and to stand up for people in our country and globally, this is its chance; it has the power to act. The world’s top three corporate tax havens—the British Virgin Islands, which have been much discussed, the Cayman Islands and Bermuda—are all British overseas territories. Tax Justice Network estimates that, in total, profit-shifting through the UK and its Crown dependencies and overseas territories accounts for nearly a quarter of all lost tax revenues globally—over £80 billion annually. The continued lack of transparency in the overseas tax havens, or overseas territories, including the absence of truly publicly accessible registers of beneficial ownership, poses a real threat to the UK’s reputation and standing in the world.

[Steff Aquarone]

Does my hon. Friend agree that the documentation often exists to prove ultimate beneficial ownership, where it suits the individuals concerned? In some cases, we have a perverse situation where respectable UK financial institutions obtain that information in confidence when carrying out their required “know your customer” due diligence, without any obligation to pass on the details to UK tax authorities.

[Charlie Maynard]

I did not know that, so I thank my hon. Friend for informing me.

How can we ask others to get their own house in order when we enable these entities on UK sovereign territory to beggar their neighbour on a global scale? The UK Government bear responsibility for this lack of transparency, as British overseas territories are subject to UK law in certain respects. The Sanctions and Anti-Money Laundering Act 2018, or SAMLA, requires the UK to support these territories in implementing public registers of company ownership, which are a crucial tool for combating tax evasion and financial crime. More specifically, section 51 of SAMLA allows the UK Government to make regulations requiring overseas territories to establish publicly accessible registers of the beneficial ownership of companies, and if they do not do so voluntarily, we have the power to enforce them to do so.

Israel and the Occupied Palestinian Territories

Steff Aquarone Excerpts

Wednesday 4th June 2025 Commons Chamber

[Mr Falconer]

I will return to this House when I have further announcements.

[Steff Aquarone (North Norfolk) (LD)]

Parishioners in the Matlaske benefice have raised over £3,000 to support the people of Gaza. They were visited last year by a priest from Bethlehem, who shared how this conflict is impacting people there. They hope for the return of the hostages, and for peace for the Palestinian people. I will not ask the Minister to repeat his answer to the question, “when?”, but will he confirm to them that the tools that he is considering using as a next step include sanctions against extremist Government Ministers, and formal recognition of a Palestinian state?

[Mr Falconer]

I pay tribute to the work of the hon. Member’s constituents. So many of our constituents, including mine in Lincoln, are doing so much to keep these issues in people’s minds, and to raise funds. I will not be drawn on what further steps may be taken. We were clear in the leaders’ statement that they could include targeted sanctions, so he can assure his constituents that that remains under review.

London Sudan Conference

Steff Aquarone Excerpts

Thursday 24th April 2025 Commons Chamber

[Mr Falconer]

I have heard the House’s interest in the fine detail of which elements of our aid programme are working with survivors, and I commit to providing that further information in due course.

[Steff Aquarone (North Norfolk) (LD)]

I am deeply concerned by the ongoing conflict in Sudan and in particular the sexual violence that was brought to light so shockingly by the hon. Member for Norwich North (Alice Macdonald). When the Minister next engages with his counterparts in South Sudan, will he raise the case of Dr Ding Col Dau Ding? He travelled from Norfolk to South Sudan to practise medicine shortly after independence and saved many lives across east Africa in his time there. Just a year later, he was shockingly murdered, and his family—my constituents—have been fighting for justice for almost a decade. Will he meet me and the family of Dr Ding to discuss how they can finally secure justice for their beloved brother and son?

[Mr Falconer]

I am not familiar with the case. I will discuss it with the Minister for Africa and ensure that the hon. Member gets a proper response.