Chronic Urinary Tract Infections

Sonia Kumar Excerpts

Wednesday 21st May 2025 Westminster Hall

[Luke Taylor (Sutton and Cheam) (LD)]

I beg to move,

That this House has considered chronic urinary tract infections.

It is a pleasure to serve under your chairship, Sir Desmond. I rise to speak about a horrific condition that has been ignored for much too long. For thousands of Britons chronic urinary tract infections turn ordinary lives into living nightmares. The pain and permanence of the illness has left thousands suffering on a daily basis. Having heard many of their stories it is clear to me that what they are living through is nothing short of torture. This speech is not just about a medical condition; it is about a scandal that highlights the systemic failure to take women’s pain seriously in this country.

Over the last few months a brave community of patients have shared their stories with me—stories of trauma, suffering and desperation. I have been utterly heartbroken by what I have been told. The cruelty of the condition is matched only by the cold indifference that its sufferers have faced from our healthcare system. It is a national disgrace that thousands of chronic UTI sufferers have been so profoundly let down by modern medicine.

[Sonia Kumar (Dudley) (Lab)]

I congratulate the hon. Member on securing this important debate. As a physiotherapist I meet patients with chronic UTIs who tell me about the increasing urgency leading to incontinence. The stigma behind incontinence is disgraceful. Does he agree that we need a wider strategy? When it comes to UTIs we need to look at the other effects, such as people falling and the number of fractures that happen because people are rushing to go to the toilet. It is important to look at a wider strategy instead of just thinking of this as a single issue.

[Luke Taylor]

Absolutely. I thank the hon. Member for raising those related issues, which are so important to consider. I will come on to talk about the wider challenge of women’s health being treated without the importance that it requires. I understand that she is attempting to secure a debate on a similar subject, so I wish her the best of luck in that endeavour.

Many of us have already heard of this illness and have heard people’s stories. I first learned about it from my constituent Phoebe, who has lived with a chronic UTI since she was three years old. Now in her mid-20s, she has become a tireless advocate for others suffering in silence. She shows remarkable perseverance and strength, even when the pain she lives with is beyond anything I can describe. Phoebe is here with us today, along with a number of other sufferers. It is my absolute privilege to stand in this place and speak for them and every other individual enduring such an awful condition. Will the Minister meet me, Phoebe and representatives of other campaign groups to hear how they have been let down by the system?

A chronic UTI is not just a diagnosis; it is at present a life sentence of torture that eats away at every part of a person’s existence. The condition first develops when bacteria from an acute UTI become permanently embedded in the lining of the bladder. Left untreated, the infection becomes entrenched, wreaking long-term havoc on the rest of the body.

I want to be absolutely clear: a chronic UTI should not be confused with the recurrent version of the condition. A patient diagnosed with a recurrent UTI might experience one or two infections over a six-month period. Although it is still serious, patients suffering from a recurrent UTI experience distinct intervals of relief from their symptoms. Chronic UTI sufferers live in constant and excruciating pain, with the infection never relenting. They are in agony every single day and every single night. Many sufferers have lived with the condition for decades, with the illness at present incurable.

Chronic urinary tract infections can affect anyone at any age, but they disproportionately affect women. At the UK’s only NHS specialist clinic, which I will come on to later, 95% of patients are women; only 5% are men. Individuals living with a chronic UTI are often forced to urinate more than 20 times an hour. I have been told that each time they use the toilet, it feels like they are passing razor blades through their urethra. Their urine is bloody. Their bladders are so tender they struggle to walk, and their bodies are consumed by fever. In many cases, the prolonged infection spreads from the bladder to the kidneys and the bloodstream, causing sepsis, with complications for other organs.

I have been told harrowing accounts of the agony caused by this illness. The pain has been likened to corrosive acid burning through the abdomen, glass shards lodged in the bladder and the feeling of mice eating away at the sufferer’s insides. Some liken it to scorching knives slashing forever at their stomach, or a hot cauldron constantly bubbling in their groin. The most common comparison I hear is that people’s bodies are perpetually on fire. To reiterate, the torment never stops—for the majority of patients, it is 24/7.

These symptoms destroy lives overnight. The illness renders individuals severely disabled, often forced to live a life of bedbound isolation. The pain is so overwhelming that patients can lose their ability to sleep and become trapped in a cycle of exhaustion. Household chores become impossible, and individuals can lose the ability to care for their children. Sufferers often lose their dream careers, as they cannot function with their symptoms in the workplace. They are unable to work or afford costly bills for private medicine.

Young adults living with the condition often have to forgo university studies, with the severity of their agony making their education unbearable. Romantic relationships break down, with at least one case of a marriage of over 40 years ending due to the illness. Sexual intercourse is virtually impossible due to the immense pain. Many people with the condition fear they will never be able to start a family. Patients face an utter loss of independence and, unsurprisingly, depression and suicidal ideation are daily struggles for the chronic UTI patient community.

This brings me on to my second ask for the Minister: every healthcare professional in the UK must be properly briefed to recognise and treat a chronic UTI. Since 2022, the NHS website has formally recognised the existence of chronic UTIs, yet I have heard that many GPs and urologists still deny the existence of the illness. Patients suffering from chronic UTIs are left to fight for recognition and are misdiagnosed with conditions such as internal cystitis or recurrent UTIs.