Siobhain McDonagh
Main Page: Siobhain McDonagh (Labour - Mitcham and Morden)(1 year, 1 month ago)
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Siobhain McDonagh (Mitcham and Morden) (Lab)
It is now 12 weeks since my sister Margaret died of a glioblastoma brain tumour. May I thank you, Madam Deputy Speaker, for attending her funeral? Since her death, I have made it my mission to make sure that glioblastoma has a cure. I would not wish Margaret’s experience on my worst enemy.
Through caring for Margaret for 19 months, I have learned a few things. Through Margaret’s treatment and campaigning on this issue, I have met industry experts, trade bodies, Ministers, charities and scientists. It is a topic that I know far more about than I would ever have wished to. And the biggest insight I have gained is this: the treatment of brain tumours in the NHS has not improved in 30 years. When a person is diagnosed with a glioblastoma, they get eight weeks’ radiotherapy, followed by as much chemotherapy with temozolomide as they can manage. That drug was introduced in 2005, and it is called the gold-standard treatment in our NHS. I can tell you that it is not gold standard; it is not even plastic standard. It does not cure anyone; it extends the life of very few people. Margaret could take only four to six weeks of it before her kidneys collapsed.
What else are you offered? A lifetime of paying your taxes, working hard, doing your best, and there are no drug trials; there are no alternatives; there is no hope. Perhaps the unspoken advice is just to go home, lay down and wait to die. The only hope that does exist is in other countries. Families crowdfund and spend their life savings travelling all over the world. In my case, I took a very ill Margaret on a plane to Germany every month.
Over the last decades, we have seen a transformation in hope and life expectancy in relation to some cancers, but absolutely zero progress for brain tumours. Members do not need to take my word for it; they just need to check the facts at a glance. The average life expectancy for the 3,200 people who will be diagnosed with a glioblastoma in the next year is nine months. The five-year survival rate is only 12.9%. The sad facts speak for themselves: nothing has changed; nothing has improved; and if we keep carrying on down the same path, nothing will ever improve.
On Friday, I received an unsolicited text from Cancer Research UK, which told me that together we are beating cancer and powering progress, and I was to see how far we have come. You can imagine the irony with which I read that text.
But it is not the same for all cancers. We know that great things have been done. For lung cancer, in 2010 the five-year survival rate was 10.3%, not dissimilar to the survival rate for glioblastoma; the difference, however, is that by 2020 the five-year survival rate for lung cancer had doubled to 21%. In 2020, the five-year survival rate for breast cancer was 85.9%. There has been a concerted effort by clinicians, charities, the Government and families to make sure that people with breast, lung and bowel cancer live longer, as they should. The sad truth is that brain cancer has been forgotten about, and because only 3,200 people are diagnosed each year it is not profitable for the pharmaceutical industry to invest in it and find a cure.
I promise that this speech will get a bit brighter. I said earlier that the biggest insight I have gained through this process is that the treatment of brain tumours on the NHS has not improved in 30 years. The next thing I learned is equally important: it does not have to be this way; there are solutions, we just need to try something new. And here is my something new: my four-point plan to transform the outcomes of people diagnosed with a glioblastoma.
First, we need a target of getting 200 glioblastoma patients into clinical trials each year on a drug that has the potential to change the course of the disease. That would be 1,000 patients over the lifetime of a Parliament. With those trials, we can begin to understand what works and what does not.
Secondly, the NHS should repurpose every drug already licensed to deal with other tumours for clinical trials on brain tumours. That has not happened yet, because glioblastoma is a very small target market for the pharmaceutical industry. The Government must either encourage or ultimately force the pharmaceutical companies to provide the drugs for these trials. Repurposing those drugs would be a cheap way to make a huge difference. It is the only way that we can make a difference.
Thirdly, the NHS should ensure that every neuro-oncology multidisciplinary team has a medical oncologist who is a core member and is required to attend meetings to discuss patients, so that brain tumour patients are not left in a corner of the ward because there is no specialist arguing for them. Unless a neuro-oncologist is in the room, we will not benefit from their ideas or expertise.
Fourthly, the NHS should require that every doctor training to be a medical oncologist should go through a mandatory course on brain tumours. At the moment, the Royal College of Physicians requires no compulsory training. Doctors have to take two courses on bowel cancer as part of their training, but nothing on brain tumours—believe me, they do not take the brain tumour option. The reason why there is nobody on those wards and the research infrastructure is not there is that nobody is being trained or is excited to do the job.
If we can do those four things, we can have some hope. I have spoken to Dr Paul Mulholland, the fantastic oncologist at University College Hospital, and he feels that he could find a cure within seven years. But it is not going to happen on its own, and it is certainly not going to happen if we carry on trying the same things we have been trying for the last 30 years. Einstein famously said:
“The definition of insanity is doing the same thing over and over again and expecting different results.”
I think we are getting to that point with the treatment of glioblastoma. It is time to break the mould, take a risk and try something different. Margaret’s life requires nothing less.
Madam Deputy Speaker (Dame Rosie Winterton)
I am sure I speak on behalf of the whole House in passing our condolences on to you, Siobhain, and your family. Your dedication in caring for Margaret was unsurpassed—we all know that—and your bravery and energy in the campaigning you have done since, at a time of such grief, is truly inspiring. We are all thinking of you, and thank you for making such a brave speech. [Hon. Members: “Hear, hear.”]
Paul Bristow (Peterborough) (Con)
It is a pleasure to speak in this debate before the forthcoming Adjournment. It is also a pleasure to follow the absolutely outstanding speech by my hon. Friend the Member for Bury North (James Daly).
I pay tribute to the member for Mitcham and Morden for her really heartfelt speech—it was a real honour to be in the Chamber to listen to it. I know a little about what she is going through, because my father also died of a brain tumour. Like my hon. Friend the Member for Chatham and Aylesford (Tracey Crouch), I will work with the hon. Lady, if she would like that, to bring her plan forward. Hopefully it will be taken up, because it is a jolly good plan, and I know what she is going through.
It is a pleasure to speak in this debate, because I get to talk about Peterborough—my favourite thing to talk about. I am going to do that very briefly at the start, and then there are several other things I want to mention. However, before I go on to the meat of my remarks, I want to mention a little lad called Louie Clarke, whom I met relatively recently. He raised a considerable amount for a little girl who was particularly ill and suffering from a rare genetic condition. He cycled from one side of the city to the other, raised about £300 and contributed it to the fundraising effort. Overall, this little community raised over £16,000 for that little girl. I just wanted to put that on the record before I talk about other matters relating to my city.
I am incredibly proud of my home city of Peterborough—the city I grew up in—but I am not blind to the challenges associated with it. We do have challenges, and the good people of Peterborough expect me to come to this place and raise them. The issue I want to raise relates to St Michael’s Gate, a street in Parnwell. Parnwell is a lovely community, with streets such as Keys Park and Finchfield, which are occupied by more elderly residents. It also has family homes on Martinsbridge and Whitacre and socially rented homes on Henshaw and Whittington. It is a community that just kind of works.
However, since August 2022 there has been increasing concern in my city about St Michael’s Gate. Other local authorities are utilising this area to house homeless households to meet their own statutory duties under the Housing Act 1996. These are not Peterborough people; they are, inevitably, being shipped from London and housed in my city on behalf of councils that are basically disregarding their duty to house their own homeless families.
The legal constraints regarding moving households and placing them outside the local area are governed by section 208 of the Housing Act, which acknowledges that accommodation should be provided in an authority’s own district as far as reasonably practical. Peterborough City Council has therefore written to local authorities known to place households in this way, asking them to be mindful of this legislation, because the situation is having a serious impact on the community I just talked about.
The short-term solution being put upon this community in Peterborough is having a severe impact on local services. Local areas cannot cope. There is a great local school, the Lime Academy, that specialises, believe it or not, in Traveller children. The number of children it is being forced to accept from outside Peterborough is having a serious impact on the equilibrium of that school. It has a huge impact on Stars nursery, a huge impact on the GP surgery, which is closed at the moment, and I will come on to that in a minute. The situation is having a huge impact on the whole community, and many local residents and business owners have raised concerns about antisocial behaviour in the area.
Siobhain McDonagh
I thank the hon. Gentleman for his offer of help. I would love to accept that offer and any help he can give in finding a cure for glioblastoma.
I appreciate the problems he must have in Peterborough, and I am sure many London councils are placing homeless families there. To put the situation in context, the reason for that happening is that there are currently 104,510 homeless families, in London including 131,370 homeless children. One in 50 Londoners is homeless, and one in 23 children in London is homeless—that is one in every class. The pressure for all London councils is how to meet their legal responsibilities and find homes for people on a temporary basis, and his town is feeling the impact of that.
Paul Bristow
Peterborough is not just feeling the impact; it is feeling a colossal impact on local services. It is also sometimes not fair for the vulnerable people being moved from London—inevitably—to places such as Peterborough. How a particular council in London seeks to deal and cope with this problem is also a postcode lottery. In certain areas, the council recognises that these placements are having an impact on Peterborough and will work with the local authorities in Peterborough to deal with it, but others simply wash their hands of it. Something has got to give. I will do what I can to prevent Peterborough from being a place where local councils can offload what I would say is some of their homeless and what they would consider to be their problem residents. It is not the right attitude, and we need to do something about it.
I also want to talk quickly about park home residents. Many of my constituents across Peterborough have raised concerns over a law that allows park home landowners to claim 10% commission on the resale of a home. There are many park home sites across Peterborough, including Fengate mobile home park, Keys Park, Pioneer in Eye, and sites in Werrington. That is why I felt compelled to raise this issue today. That 10% commission is wholly unfair on what is typically people from the elderly generation who own their own homes. Some of the impact may be short term, but unfortunately all cannot make back what they have put in due to this law. I have seen that the Park Home Owners Justice Campaign has created a petition that has gained tens of thousands of signatures. I commend my hon. Friend the Member for Worthing West (Sir Peter Bottomley) on his support for this cause. We must make sure that we protect everyone from exploitation and call out unfairness wherever we see it. Taking 10% off someone’s home on top of any other taxes they may pay is just wrong.
I just talked about Parnwell and the surgery there, and I put on record my congratulations to my constituent Rahul Ramechandra, who started a petition to save that GP surgery, or for it to reopen at the very least. Far too many people are taking taxis to Ailsworth, and the closure is having a profound impact on that local Parnwell community. I am sure that those on the Front Bench would agree that two years or 18 months is long enough to solve this building problem, and I am concerned that inertia has set in and we will see the situation go on and on.
I want to raise a slightly different issue. On Sunday 10 September, just over a week ago, I attended the celebration of Gibraltar National Day just below the great Rock of Gibraltar with many other Members from this House. The first national day was held in 1992 to mark the 25th anniversary of the 1967 sovereignty referendum. It is now a wonderful annual celebration of the national pride of Gibraltarians. Gibraltar is one of our overseas territories and was ceded to Great Britain under the treaty of Utrecht in 1713.
The Spanish maintain a claim to Gibraltar. Following talks between our two countries, the people of Gibraltar themselves were asked to determine their future in a referendum in 1967. Some 99% voted to remain British, compared with only 44 votes for Spanish sovereignty. That is an incredibly special thing. Armed only with ballots and pencils, the people of Gibraltar stood up to General Franco’s Spain and asserted their right to self-determination. I was honoured to join the people of Gibraltar and be part of the celebrations. I know that the proud people of Peterborough stand shoulder to shoulder with the people of Gibraltar in thanking them for their military service and celebrating their freedom and self-determination.
Before I finish, I want to mention two more issues. First, fireworks are being set off at all times of the night and at all times of the year. It has become a serious issue in Peterborough. These are not one-off incidents but a recurring nightmare, plaguing many of my constituents. They are not merely an annoyance; they cause misery to many. The law regarding fireworks is crystal clear. However, it is evident that a substantial number of individuals choose to flout the regulations with impunity. Many of the reports I receive are about fireworks occurring in the early hours of the morning—a blatant violation of the law. Despite bringing that to the police’s attention many times, these incidents still continue. In a recent survey that I did online, more than 1,000 constituents responded, and there was overwhelming support for a ban on fireworks other than on bonfire night and new year’s day. The results are clear. We need to look at a change in the law to resolve this problem.
Finally, I want to talk about bipolar disorder. A friend of mine who works for Bipolar UK, the bipolar charity, asked me to support his initiative to bring more attention and awareness of bipolar disorder to Parliament. It was a pleasure to be part of the Bipolar UK parliamentary reception, hosted in November last year. Along with 21 other commissioners, we helped to launch the Bipolar Commission, with recommendations on diagnosis and care pathways. The commission’s aims are to reduce the risk of suicide and to transform healthcare for people living with bipolar disorder while improving diagnosis times.
Bipolar used to be known as manic depression, and it can take up to 10 years for a diagnosis. It is estimated that 1.3 million people—one in 50 people—in the UK have bipolar, which increases an individual’s risk of suicide by up to 20 times. We have come on leaps and bounds as a country on mental health, but there is always room—lots of room—for improvement. Mental health conditions such as bipolar affect people’s careers, their quality of life and their relationships with family and friends. We need to ensure that diagnosis is fast and that appropriate support is available immediately so that people with the condition can live better and fulfilled lives. Bipolar is life-threateningly serious in some cases; our response should treat it that way.
It has been an absolute pleasure to speak in the debate. Again, I wish all hon. Members, and certainly you, Madam Deputy Speaker, a very happy few days of recess.