Hospice and Palliative Care

Shockat Adam Excerpts

Monday 13th January 2025 Commons Chamber

[Shockat Adam (Leicester South) (Ind)]

Palliative and end of life care is about dignity, compassion, and giving every person their right to live their final days in comfort and peace, as the hon. Member for Wimbledon (Mr Kohler) observed when compassionately describing his parents’ last moments. However, I agree wholeheartedly with the hon. Member for Stoke-on-Trent South (Dr Gardner) that access to high-quality care is a postcode lottery across the UK. Only a third of local NHS areas in England can provide 24/7 end of life care at home, which leaves nearly 100,000 people every year without the care and support that they deserve during their most vulnerable moments.

We must address this disparity. Every patient deserves a personalised care plan that respects their wishes and supports their physical, emotional, social and spiritual needs. Care plans should also offer non-clinical help, such as financial advice and opportunities for people to participate in meaningful activities while they can still do so; and let us not forget the families who require respite care during this period.

Hospices play a vital role in such care, but, unlike the NHS, hospice care is not fully funded by the Government. Hospices receive only about a third of their income from the state; the rest is raised through charitable donations, which is pitiful. This model is unsustainable. As a result of rising costs, which have not been helped by the national insurance increases, the sector faces a £60 million deficit this year alone. As demand for hospice care grows owing to an ageing population and advances in medicine that help children with life-limiting conditions to live longer, the strain on hospices will only increase. Without immediate action they will struggle to meet this growing demand, leaving more people without the care that they deserve.

We need bold and decisive steps to fix that. First, we need fair and sustainable funding. The Government must create a national plan to secure consistent funding for hospices. Emergency funding is urgently needed. Secondly, we need a national standard for care. National quality standards and agreed outcomes for palliative and end of life care are essential. Every integrated care board must meet minimum standards to provide fair access to care nationwide. Thirdly, we need support for underserved communities in areas where people are currently missing out. There should be access to palliative care in homes, care facilities and hospitals, ensuring that no one is left behind. Fourthly, the £26 million children’s hospice grant must be ringfenced.

Let me end by thanking the incredible teams at the two hospices in my city that serve my constituency: LOROS, which assists 2,500 people a year, and Rainbows, a fabulous organisation that cares for young people with life-limiting conditions. I want to thank them both.