Parkinson’s Awareness Month

Saqib Bhatti Excerpts

Thursday 1st May 2025 Commons Chamber

[Saqib Bhatti (Meriden and Solihull East) (Con)]

I thank the hon. Member for Dunfermline and Dollar (Graeme Downie) for securing this debate and the Backbench Business Committee for allowing it, and I also thank him for the eloquent way he addressed the issue. I do not think I disagreed with him on a single thing. At the risk of repeating some of what he said, I will try to explain why I am standing here today.

To be honest, because I had seen the stories of Michael J. Fox and Muhammad Ali, I was previously of the opinion that a huge amount of progress had been made in dealing with Parkinson’s disease. I was recently invited to meet people at the Parkinson’s Café in Balsall common in my constituency, where I had a moment of clarity—as Members of this House, we all go through such moments—and understood that there is a huge gap. There were about 30 carers and people suffering from Parkinson’s, who spoke about their conditions eloquently and bravely. This is a really timely debate on a day when many of us will have demands on our time, given the local elections, and it is a great privilege to speak.

As the hon. Member said, Parkinson’s is a hugely debilitating disease. Although a disproportionate number of people get diagnosed in their later years, there is no minimum age threshold, as we saw in the case of Michael J. Fox—in fact, I think he was diagnosed at the age of 29. Parkinson’s can lead to sensory issues, voice changes, facial masking and, of course, movement issues. It really is a significant, life-altering condition, which obviously affects not just the individual but the people around them.

I have been astonished to see the lack of care and support for people with Parkinson’s, for which there a number of reasons. The Parky charter has some reasonable and legitimate requests, to which I certainly lend my support. I will work with the Government and support their endeavours in this area, because there are about 153,000 people in the UK who suffer from Parkinson’s. We have a significant number across the borough of Solihull.

I had the pleasure of meeting Jane Lindsay, who was diagnosed with Parkinson’s in 2019, and a lot of the things that she told me relate directly to the requests in the Parky charter. After receiving a diagnosis and leaving hospital with her husband, Jane did not know anything about the disease. She said to me, “I just wasn’t sure where this will all lead me.” There was a significant lack of support and information, so Jane, who had been in the teaching profession for almost 40 years and spent 17 years as a headteacher, decided that she was going to do something about it. With the help of local GP Sally Frank, she set up the Balsall Common Parkinson’s café in 2022—the date will not be lost on people, as it was at the height of covid. She found that being in touch with other sufferers of Parkinson’s was a “lifeline” because, as the hon. Member for Dunfermline and Dollar said when he recited a poem, she knew people who walked in the same shoes and who shared the same experiences and concerns.

Initially, there were only six members of the group, but it has now expanded to at least 30. They are very lucky, because they meet regularly in the church hall, where they get the facilities for free. I commend the church for offering that support. Jane, her husband and GP Sally Frank, along with friends and family, have done an immense amount of work to raise awareness and funds. They have done charity walks, golf days, sponsored half-marathons, afternoon teas, balls, comedy nights, quizzes and croquet games. They have raised over £230,000, which is really valuable.

However, only four of the 30 people at the Balsall Common meeting that I attended had the support of a Parkinson’s nurse, which shows the sheer need for the specialist care that is required. The chair of the Solihull branch of Parkinson’s UK, Martin Sewell, said:

“This is a great opportunity for us to reach more people affected by the condition in the Solihull area with information and support”.

He specifically thanked the people of that Solihull village, who are able to meet in such a marvellous location at the heart of the community.

I turn to the Parky charter. The hon. Member for Dunfermline and Dollar mentioned the workforce, which is clearly a really acute issue. That is demonstrated by the fact that only four of the 30 people at the meeting had access to a relevant nurse. I would really welcome the Minister’s reflections on how the NHS long-term workforce plan, which the Conservatives instigated when we were in government, will help to give more support to sufferers of Parkinson’s.

As the hon. Member mentioned, there is a significant lack of data on Parkinson’s. I tried to get the figures for how many people in my constituency suffer from Parkinson’s from the House of Commons Library. We were given the waiting lists for neurology departments, but the number of Parkinson’s sufferers was not reported or published anywhere. That is a fundamental issue that I would encourage the Government to look at, and it should certainly be addressed at the very first instance. Some 55% of those waiting for neurological referrals wait more than 18 weeks, so a significant number of people have to wait for a very long time. Those who, like Jane, have very little information are in effect left to their own devices to figure out the next step.

I greatly support the Parkinson’s passport, which the Parky charter calls for, not least because it would provide instant access to a blue badge and to free prescriptions. This seems to me to be a logistical or operational need, so if a doctor is able to assess someone and say that they have Parkinson’s, that should set the individual down a neurological pathway that allows this stuff to happen almost instantly. It is something that people with Parkinson’s should not have to worry about. We know how debilitating the disease is, how people will deteriorate and that there is no cure—such individuals are set down that path—so we should look to alleviate some of their concerns.

The hon. Member for Dunfermline and Dollar mentioned PIP, and one of the things raised with me at the café was the issue of reassessments and of having to go through all that again. If the reassessments are to see how the individual has deteriorated and what further support needs to be given, that is different from having to go through the rigorous PIP reassessment to see if they are still entitled to it, which is really stressful for people who are already in a very stressful situation. I would greatly support anything that can be done about that, because PIP, certainly in this instance, is a basic lifeline to maintain a level of wellness. I would be interested to hear the Government’s thinking, because while there has been a lot of talk about PIP encouraging people into work, we know that these people are only going to deteriorate, so what support can be given?

The real question here is about research and development. I know that the Government have committed £20 billion to R&D funding, but I would be interested to know what their thinking is about supporting the treatment of Parkinson’s. The hon. Member mentioned this, and I join his call for more funding in this field. I did not realise that a lot of the treatments were developed 50 or 60 years ago and that there has been very little progress since, so I would very much support any increase in funding.

My remarks have been limited because the hon. Member went through the issues comprehensively, and I thank him for doing so. To steal one of his lines, the Parky charter is really a manifesto for dignity. Probably all of us across the House would agree that we do this job to help the most vulnerable, so if we can make changes to give these individuals dignity, I will certainly support them.