Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of ensuring that a permanent access agreement is reached for Brineura as a treatment for patients with neuronal ceroid lipofuscinosis type 2 (CLN2).

Answered by Karin Smyth - Minister of State (Department of Health and Social Care)

The National Institute for Health and Care Excellence (NICE) is currently developing guidance for the National Health Service on whether cerliponase alfa, also known as Brineura, can be recommended for routine NHS funding, considering real-world evidence collected during a period of managed access. NICE and NHS England are actively engaging with the company, BioMarin, as well as other stakeholders in the development of the guidance to secure continued access for NHS to Brineura at a cost-effective price. These discussions are complex and given the nature of this evaluation and the potential impact on patients and their families, it is essential that they take the necessary care to reach the best possible outcome. All parties are also committed to providing updates to stakeholders, notwithstanding the necessity that discussions are undertaken in a confidential setting.

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will hold discussions with relevant stakeholders on providing access to Brineura for patients with neuronal ceroid lipofuscinosis type 2 (CLN2).

Answered by Karin Smyth - Minister of State (Department of Health and Social Care)

The National Institute for Health and Care Excellence (NICE) is currently developing guidance for the National Health Service on whether cerliponase alfa, also known as Brineura, can be recommended for routine NHS funding, considering real-world evidence collected during a period of managed access. NICE and NHS England are actively engaging with the company, BioMarin, as well as other stakeholders in the development of the guidance to secure continued access for NHS to Brineura at a cost-effective price. These discussions are complex and given the nature of this evaluation and the potential impact on patients and their families, it is essential that they take the necessary care to reach the best possible outcome. All parties are also committed to providing updates to stakeholders, notwithstanding the necessity that discussions are undertaken in a confidential setting.

Question to the Department for Energy Security & Net Zero:

To ask the Secretary of State for Energy Security and Net Zero, what data his Department holds on the number of jobs (a) related and (b) dependent on the net zero transition in South Yorkshire; and if he will make an estimate of how much private investment this work attracts to South Yorkshire.

Answered by Kerry McCarthy - Parliamentary Under Secretary of State (Department for Energy Security and Net Zero)

The net zero transition is the economic opportunity of the century—supporting hundreds of thousands of good quality jobs across the UK, including in South Yorkshire. The UK has made significant progress in attracting investment into green sectors. According to analysis by the CBI, the net zero sector is growing three times faster than the overall UK economy and the GVA of the net zero economy grew by 10% in 2024. Around the 2024 International Investment Summit £34.8bn of private investment into low carbon sectors was announced. Government also supports local areas to attract investment – including funding the North East and Yorkshire Net Zero Hub.

Found: Louise Jones MP Home Office Pamela Nash MP Defence Rachel Hopkins MP Defence Sally Jameson