Arthritis and Employment

Ruth Jones Excerpts

Tuesday 21st May 2019 Westminster Hall

[Justin Madders (Ellesmere Port and Neston) (Lab)]

It is a pleasure to serve under your chairmanship, Sir Graham. I congratulate the hon. Member for Ayr, Carrick and Cumnock (Bill Grant) on securing the debate, which is of great interest to me, both in a professional capacity as a former employment lawyer, and in a personal capacity as the husband of a fibromyalgia sufferer. I have seen at first hand the impact that invisible conditions such as arthritis and related conditions can have on an individual’s daily life. We do not talk about it enough, because the hardest symptoms for any of us to understand are those that we cannot see. Symptoms such as fatigue and pain, which are common in arthritis and related conditions, can be invisible to the outside world but no less debilitating for that.

[Ruth Jones (Newport West) (Lab)]

As a former physiotherapist, I share my hon. Friend’s interest in this important subject. Anna Lockey, a young woman in my constituency, has psoriatic arthritis. She is planning on going back to work following her maternity leave in September. She is one of many who want to work and contribute to the wider economy. Does my hon. Friend agree that utilising the Access to Work scheme and the aids and adaptations, which are often inexpensive, can be really helpful?

[Justin Madders]

I thank my hon. Friend for her intervention, and welcome her to this place. She will clearly have a great deal of professional expertise to bring to bear. I will talk a little about some of the barriers that people with such conditions face in getting back to work. It is an important point, and central to the debate.

In my constituency, it is estimated that more than 16,000 people live with back pain, and that more than 4,000 and 8,000 people live with osteoarthritis of the hip and knee respectively. Versus Arthritis tells us that 17.8 million people live with arthritis or a related condition across the country, about half of whom live with pain every day. That is a staggering number of people coping with that in their everyday lives. Just because we cannot see their pain, it should not be ignored or written off as part of the ageing process. That can negatively affect the support that they receive.

The problem is exacerbated by the fact that many arthritic conditions can fluctuate in severity, leaving people unsure how well they will be able to cope from day to day. That can make it difficult to hold down a regular job, but equally it should not be used as cover for discrimination. Many people with arthritis want to work if the right support is in place. As has been touched on, that help is available through the Access to Work scheme. However, there are concerns that the scheme is not working as well as it should.

Not enough people who would benefit from the scheme are aware of it. We know that 60% of people surveyed by Versus Arthritis had never heard of the Access to Work scheme or were unaware of what kind of help it could provide, and nearly 70% had never accessed support through the scheme. Clearly, there is a lot more to be done to promote it. In a debate on disabled people and economic growth last year, my hon. Friend the Member for Battersea (Marsha De Cordova) made the point that the scheme is probably one of our best kept secrets. When we hear the figures about the lack of awareness, it is hard to disagree.

With the Government’s own figures showing that Access to Work was approved for only 25,000 people in 2016-17, it is clear just how much room we have to make up. The scheme can provide invaluable practical and financial support to meet the needs of disabled people, but only if it is actually accessed. If the Government are serious about meeting their aim of getting 1 million more disabled people into work by 2027, the scheme must be better publicised and actually work for its users.

A quarter of those who have applied for support from the scheme did not receive all the support that was asked for or that was recommended by their assessor. A tenth of respondents reported that they did not receive any support at all after applying to the scheme. Has the Minister looked at those alarming figures, and has there been any kind of research on why that is the case?

As we know, the major arthritis charities are calling for the Government to commission research on the meaning of “reasonable adjustments”, and for support to be put in place to help people who challenge employers who do not act on Access to Work recommendations. Employers are obliged to make reasonable adjustments, but if someone is in work and not in a trade union, who will help to argue for them? If someone is applying for a job, just how easy is it to introduce that issue at a job interview? If an employer still refuses to make adjustments, just how realistic is it to expect people to take their employer to tribunal, especially without support, and what comfort do they have that putting their head above the parapet will not rebound on them?

Do not forget that the coalition Government introduced employment tribunal fees, putting another hurdle in the way of those who seek justice. I make that point because having rights is one thing, but being able to enforce them is another, whether through support in the workplace or through access to the tribunal system. Too little protection is given to workplace rights in this country. If we are to change the hire and fire culture, those with disabilities need extra support, and we need to understand the real barriers that they face not only to accessing support but to enforcing their rights. Without doing that, we will not do them the service that they deserve.