Sudden Unexpected Death in Childhood

Robbie Moore Excerpts

Tuesday 24th March 2026 Westminster Hall

[Robbie Moore (Keighley and Ilkley) (Con)]

It is a pleasure to serve under your chairmanship, Sir John. I thank the hon. Member for Rossendale and Darwen (Andy MacNae) for securing this really important debate.

There are a few meetings that Members of Parliament never forget. Over three years ago, in January 2023, I met my constituents Cheryl and Darren Midgley for the first time. On Christmas day 2022, Cheryl and Darren put their loving, happy and healthy 16-month-old son Jack to bed. The family had enjoyed the best Christmas, but when Darren, the father, went into Jack’s room the following morning, he quickly realised he had gone. He said that, that day, their “world fell apart”.

Christmas in the Midgley household is never just a day. Jack, with his brother Louis, saw Santa four times. They had had the best Christmas. On Boxing day, when Darren cracked open Jack’s door and went into the room, he said there was perfect silence. He walked over to his son’s cot, but as soon as Darren put his hand on his back, it was cool. From what Darren saw at that point, he knew that his baby son Jack had gone.

Jack was taken to Martin House children’s hospice in Wetherby, where he was cared for in one of its special cooled bedrooms. Darren described the hospice’s services as an anchor for the family. The fact that Jack could stay in one of the cooled bedrooms meant the world. Darren said:

“It was a huge comfort to us to know Jack was being looked after in a bedroom, in his Christmas pyjamas, and the staff would be there to talk to him and put his night light on.”

The family spent five days at Martin House until the post-mortem could take place, but the results were inconclusive.

Since meeting Cheryl and Darren three years ago, I have kept in touch with them, and I have been truly blown away by their resilience and mental fortitude, as well as that of their eldest son Louis. They have worked tirelessly to raise awareness to help others, despite their own grief, including by completing a 127-mile bike ride along the Leeds to Liverpool canal path, raising over £6,000 for the Airedale Hospital & Community Charity, where Cheryl works as a nurse.

I went to see them just this last weekend to catch up with them and check in, and I reiterated to them that I will continue, as their Member of Parliament, to do all I can to raise this issue on their behalf. I was glad to see that they are working united as a family to keep this issue going. Over the last three years, they have worked together to raise over £220,000 in total for local good causes.

Sudden unexplained death in childhood is the fourth leading category of death in children aged one to four in England and Wales. Approximately 40 children are affected by SUDC in the UK each year: one to two seemingly healthy children pass away every fortnight, often going to sleep and never waking up again. As seen in cases such as Jack’s, SUDC does not just affect young children under one year old; more one to nine-year-olds die of sudden unexplained death than as a result of road traffic accidents, drowning or fires.

Published epidemiology data suggests a common profile for children affected by SUDC. Most commonly, they are one to two years old and male. Most worryingly, they die unwitnessed and alone as they sleep. The children’s development is often normal, and their vaccinations are normally up to date.

The death of a child is always a tragedy. Sudden unexplained death in childhood is one of the most under-recognised medical tragedies, and simply not enough support is provided for many of the affected families. Cheryl and Darren received a year of support from the NHS following Jack’s death. They have both sought counselling, and the trauma still lives with them today.

I commend the work done by charities such as SUDC UK and Martin House children’s hospice in providing support for those impacted by sudden unexplained death in childhood. However, we cannot just rely on the good work of charities and volunteers. Despite their efforts, the delays in small charity-funded research into preventing these deaths remains completely unacceptable. One hundred and twenty seemingly healthy children have died without explanation since the last SUDC debate three years ago, which I took part in.

Although we are a long way from prevention, it is vital to develop a well-defined and co-ordinated national plan to gain better insight into the causes of SUDC and to raise awareness. There have been 13,000 publications on SIDS—unexplained deaths under 12 months—versus 100 publications on SUDC. There needs to be a co-ordinated and planned movement because, as I am sure the Minister is aware, a small amount of research will not move the dial. There also needs to be better and longer-term support, available free of charge, for families such as Cheryl, Darren and Louis, to help them to come to terms with the deep sense of loss, anguish and grief that comes with the death of a child.