Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to WPQ 87435 answered on 26 November, if he will publish copies of the modules about close relative marriage and genetic risk for midwives and health visitors and guidance on how to submit data around consanguinity and pregnancy to the Maternity Services Dataset.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
NHS England has already published training modules about close relative marriage and genetic risk for midwives and health visitors, as well as guidance on how to submit data around consanguinity and pregnancy to the Maternity Services Dataset. The training modules have been published for health professionals to access and there are no plans to publish them more widely.
Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to WPQ 89628 answered on 20 November 2025, whether his Department plans to set targets regarding the improvement of community care for young people with eating disorders.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
Eating disorders have a devastating impact on young people’s lives and Lord Darzi’s investigation found that people accessing National Health Service mental health services are waiting too long, receive variable quality of care, and suffer from entrenched inequalities. This Government has already taken significant steps to stabilise and improve NHS mental health services but there is much more to do.
Although there are currently no plans to set targets regarding the improvement of community care for young people with eating disorders, more young people are being supported to access NHS mental health services. Between July and September 2025, 3,010 young people with eating disorder issues entered treatment, which is an increase of 14% compared to the same period last year. This is helped by almost 7,000 extra mental health workers being recruited since July 2024, against our target of 8,500 by the end of this Parliament.
The 10-Year Health Plan aims to shift more care to the community and reform the health system, including eating disorder services, to adopt more neighbourhood models of working where cross-sector collaboration is the norm.
Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 26 November 2025 to Question 92671 on Congenital Abnormalities, if he will publish the guidance issued by NHS England on submitting consanguinity and pregnancy data to the Maternity Services Dataset.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
NHS England has published guidance on how to submit data about consanguinity and pregnancy to the Maternity Services Dataset (MSDS). The guidance is publicly available on NHS Digital’s website under “MSDS Consanguinity Data Quality Guidance”.
Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how many a) neurologists with specialist training in Parkinson’s, b) geriatricians with specialist training in Parkinson’s, and c) specialist Parkinson’s nurses are currently practising in the NHS.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
While the Department does not hold data specifically on the number of Parkinson’s specialist staff in England, we do hold data on the number of doctors working in the wider specialities of neurology and geriatric medicine. As of August 2025, there were 2,010 full time equivalent (FTE) doctors working in the specialty of neurology and 6,284 in geriatric medicine in National Health Service trusts and other organisations in England. This includes 1,025 FTE consultant neurologists and 1,687 FTE consultant geriatricians.
These figures are based on NHS Digital’s workforce data and reflect staff employed by NHS trusts and other core NHS organisations in England. They do not include doctors working in private practice or outside NHS organisations.
The Department does not hold specific data on the number of specialist Parkinson’s nurses currently working in the NHS in England. These roles are commissioned and managed locally by NHS trusts and integrated care boards as part of neurology and movement disorder services.
NHS England has published a service specification for specialised adult neurology services, which includes Parkinson’s disease as part of its scope. This specification sets out requirements for multidisciplinary care, including access to Parkinson’s disease nurse specialists, consultant neurologists, and allied health professionals.
NHS England is also implementing initiatives such as the Neurology Transformation Programme and the Getting It Right First Time Programme for Neurology, which aim to improve access to specialist care, reduce variation, and develop integrated models of service delivery for conditions including Parkinson’s disease. These programmes align with the National Institute for Care Excellence guidance on Parkinson’s disease, reference code NG71, which recommends that people with Parkinson’s have regular access to specialist staff with expertise in the condition.
Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what potential new treatments for glioblastoma have been trialled in the NHS.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
The Department of Health and Social Care enables research via its research arm, the National Institute for Health and Care Research (NIHR), and is committed to furthering our investment and driving scientific advancements in research into the causes and treatment of brain tumours. Between 2018/19 and 2023/24, the NIHR directly invested £11.8 million via research programmes and training. UK Research and Innovation, funded by the Department for Science, Innovation and Technology, invested £46.8 million.
During the same period, the NIHR’s wider investments of approximately £37.5 million in research infrastructure and the research workforce have enabled the delivery of an additional 261 brain tumour research studies, allowing over 11,400 more people to participate in brain tumour research. NIHR infrastructure provides world-class research expertise, specialist facilities, a research delivery workforce, and support services to enable and deliver research across the National Health Service and wider health and care system.
For example, the CITADEL-123 trial, supported by the NIHR’s University College London Hospital (UCLH) Clinical Research Facility and the UCLH Biomedical Research Centre, is trialling the use of resection surgery followed by implantation of a medical device which delivers radioactive therapy in patients with recurrent glioblastoma. A separate trial of a drug derived from olive oil has shown promise in early studies for patients with glioblastoma. The NIHR Biomedical Research Centre at the Royal Marsden and the Institute of Cancer Research and Experimental Cancer Medicine Centre Network, which the NIHR jointly funds, support the work of the Drug Development Unit, which supported the study.
The Win-Glio trial, also supported by the NIHR’s UCLH Clinical Research Facility, is testing immunotherapy treatment using the drug ipilimumab prior to standard treatment in patients with glioblastoma.
The NIHR continues to welcome funding applications for research into any aspect of human health and care, including glioblastoma. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to the public and health and care services, value for money, and scientific quality.
Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to encourage healthy eating habits in young people, separate from Out of Home Calorie Labelling Regulations.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
The Government’s advice on a healthy, balanced diet is encapsulated in the United Kingdom’s national food model, the Eatwell Guide. The Eatwell Guide applies to most people from the age of two years old, and is available at the following link:
https://www.gov.uk/government/publications/the-eatwell-guide#
The Eatwell Guide’s principles are communicated through a variety of channels, including the NHS.UK website and Department social marketing campaigns, which encompass Better Health, Better Health Families, and Best Start in Life. This includes a series of websites and digital tools that support families with young children to eat better, providing guidance on healthy eating, such as the Food Scanner app and email programmes.
Education around healthy eating is also covered through a number of school curriculum subjects.
The Eatwell Guide also underpins Government catering guidance and standards. Earlier this year, the Government committed to reviewing the School Food Standards to reflect the most recent Government dietary recommendations. These standards are available at the following link:
As set out in our 10-Year Health Plan, the Government has committed to actions to encourage a food environment that supports everyone, including young people, to make healthier choices, including:
Further information on the 10-Year Health Plan is available at the following link:
https://www.gov.uk/government/publications/10-year-health-plan-for-england-fit-for-the-future
There are a range of actions that have already been taken, including the Soft Drinks Industry Levy, location promotions restrictions, and calorie labelling. Prior to the General Election in July 2024, the Department also legislated to introduce restrictions on the volume price promotions retailers can offer on ‘less healthy’ food and drink in stores and their equivalent places online. These measures came into force in England on 1 October 2025.
Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 11 November 2025 to Question 87431 on Congenital Abnormalities, what consanguinity data NHS England collects through the Maternity Services Data Set; what assessment he has made of the completeness and reliability of those data; and whether he has reviewed that information in his Department.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
Consanguinity can be recorded in the Maternity Services Data Set (MSDS) at any point in the maternity care pathway, by maternity services providers, including a relevant clinical code in the submitted MSDS record for an individual receiving maternity care. NHS England has published guidance for maternity services providers on preferred clinical codes to submit, and in which data tables. Only a small number of National Health Service trusts have recently submitted any of the consanguinity clinical codes to MSDS. An evaluation of the Genetic Risk Equity Project will include an analysis of the quality of the consanguinity data on MSDS.
Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 11 November 2025 to Question 87431 on Congenital Abnormalities, whether he has plans to (a) publish aggregated consanguinity statistics collected through the Maternity Services Data Set, (b) improve the completeness and reliability of those data and (c) integrate consanguinity indicators into wider national population health or genomics datasets; and whether he has reviewed options for doing so in his Department.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
NHS England has no current plans to publish aggregated consanguinity statistics collected through the Maternity Services Data Set. Through the Genetic Risk Equity project, the National Health Service is seeking to improve the quality of consanguinity data in nine pilot sites. There are no plans to integrate consanguinity indicators into wider national population health or genomics datasets.
Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 17 November 2025 to Question 87859 on Hereditary Diseases, if his Department will publish any estimates or research they have of the annual cost to the public purse for the NHS of treating (a) congenital and (b) genetic disorders arising from consanguineous unions.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
No, the Department is not planning to publish any estimates or research on the annual cost to the public purse for the National Health Service of treating congenital and genetic disorders arising from consanguineous unions. The Department does not hold this information and has no plans to collect this information.
Asked by: Richard Holden (Conservative - Basildon and Billericay)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 25 November 2025 to Question 87433 on Hereditary Diseases, for what reasons reporting of parental consanguinity within the National Disease Registration Service congenital conditions dataset remains incomplete; what assessment he has made of the impact of this incomplete reporting on the accuracy and usefulness of prevalence data; and what steps his Department is taking to help tackle this and improve compliance.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
Since assuming responsibility for the registration of congenital and rare conditions in 2015, the National Disease Registration Service (NDRS) has focused on improving the accuracy of case completeness and strengthening regional coverage to monitor trends in congenital and rare conditions. NDRS is reviewing the data items recommended for reporting of congenital conditions, including which information should be collected through specialist congenital condition registration datasets and which is better captured for all pregnancies through the Maternity Services Data Set. NDRS has not assessed completeness of the consanguinity field at a provider level. NHS England is working to improve the recording of consanguinity. NDRS continues to work closely with reporting trusts, maternity services, and clinical teams to improve the quality and completeness of congenital condition data, supported by a dedicated data liaison function.