Charity-funded Medical Research

Debate between Rachael Maskell and Chris Green

Tuesday 24th November 2020 Westminster Hall

[Rachael Maskell (York Central) (Lab/Co-op)]

It is pleasure to serve under you, Ms McVey. I congratulate the hon. Member for Vale of Clwyd (Dr Davies) on securing today’s timely debate and the Backbench Business Committee on granting such a debate.

“A statistic will never truly capture the devastating impact research cuts will have on all of us. Research is hope. Research is more time with your loved ones. Research is improved quality of life. Its value is immeasurable.”

Those are not my words, but those of Aisling Burnand, the chief executive of the Association of Medical Research Charities. We have heard much today about the investment the AMRC has put into lives of so many of our constituents. Some 151 charities, which have joined together with the public through their fundraising efforts, have spent £14 billion over the last decade in funding 17,000 research staff and driving 213 clinical trials, advancing the frontiers of medicine and enhancing lives as they go. As we have heard in today’s debate, they also bring resources back Not only does every £1 invested bring 25p back into the economy on a permanent basis, but charities save our NHS so much money through their early interventions and by advancing the frontiers of medicine.

However, covid-19 has disrupted the incredible story of how charities play a central role in advancing science and the UK’s global excellence in this field. That partnership really makes its mark in advances in medicine.

[Chris Green]

The hon. Lady is making some excellent points. Does she share the view that there is immense collaboration with the private sector, universities and research institutes, as well as the charity sector, and that that ecosystem, which is so often talked about, is key to our position in the world and our contribution to the world?

[Rachael Maskell]

I thank the hon. Gentleman for that intervention. The interdependence of the various sectors in coming together really puts the UK in a unique position in the way it advances so much medicine. Over recent months, in response to covid-19, we have also seen the incredible work of all the sectors, which have come together to try to beat this virus. Charities play that crucial role, and they are playing it today as they try to support individuals through this difficult time.

We know that a £310 million shortfall in funding will have significant consequences. Cuts always do. As we heard, it will take about four and a half years to recover from the downturn. Tragically, that will all be too late for some. This year alone, it is predicted that we will see a 41% decline in research spending. Many PhDs, fellowships and other opportunities will be denied, cutting vital skills in medical research. If postgraduate researchers do not have the opportunity to apply their skills and knowledge, we will be at risk of losing a generation of medical research. That is why significant investment is needed to save the sector.

With 34% of staff furloughed, clinical trials have been paused and delayed to protect research in the longer term. Without additional funding, there is little hope that those trials will restart. That means that families, such as that of a constituent who came to me, will never see the opportunity to extend their lives and to have a quality life for longer.

The sector is rightly calling for a life science charity partnership fund to fund the research part of its work. That would be built on a match funding principle and would start with a three-year programme of investment into research. The Medical Research Council is seeking a commitment of £310 million in its first year to match the funding it has lost this year due to the lack of funding resource. Not only will that research-driven approach help with economic recovery in the wider field and reduce unemployment, but it help us to continue to lead advances in medicine.

Like all charities, medical research charities have not been served well during this crisis. In fact, that has been a major oversight on the part of the Government. Medical research charities provide not just research but crucial support to their beneficiaries. Over the last six months, I have met many research charities, which have told me about the work they are undertaking, and that work has expanded during the pandemic.

Many organisations provide support services to the people and families who depend on them. The NHS is less accessible, so people have turned to the charities they know and trust for additional advice and support. Regular therapeutic interventions have often not been available on the NHS because of its focus on covid-19—we all understand that—and appointments have been cancelled. People have turned to the charities they know and the relationships they have to seek advice on issues such as where to get food, shielding, what protections they have for their health, and how to support relatives and family members at such a delicate time.

Other organisations, which would normally provide psychological support or respite support or perhaps fund parents to stay near their child as they receive treatment, have also been under great strain. Many of these organisations have described demand for their helpline more than doubling as people turn to them for support. However, they have not received additional support from the Government in response to covid.

Yes, the Government did provide £750 million to all charities, although we must remember that 168,000 charities have had to share that money. However, I must stress that that money was for additional support directly relating to covid-19. Of that money, £2 million went straight to the hospice movement, and rightly so, although that money is now spent, and more is needed. The rest is being divided between the larger charities, and there is a pot for smaller organisations. However, the majority of charities have not received anything over this time, and we have heard today that medical research charities certainly have not had their share.

This was all a direct response to covid, and we have seen more demands being placed on charities, as I have set out. That has also meant that more investment is needed by those organisations. Charities themselves may have direct funding for funded spend, but they are really struggling with their core costs. If their core costs are not met, the charities cannot deliver the specific outcomes we all know so much about from our constituents. It is vital, therefore, that the Government step up tomorrow with a package to address those core costs. Charities have already lost £10 billion in the last six months, and they predict they will lose 60,000 staff. Some 20% of charities will not be there if the Government do not make that investment. They say they value charities, but charities need valuing with resources, and without those resources, they will not continue.

We know that fundraising opportunities have all but dried up. We know that retail, which has been successful since its return, has now been locked down yet again, and therefore the income of organisations is in a perilous situation. That is why the Government need to step up at this point. Many charities did not qualify for the grants that were available, and of course have struggled and still have bills to pay. As the charity sector says itself, rightly and proudly, it has never been more needed, but I would add that it has never been more in need. That is why it is vital that, after today’s debate, the Minister goes back to the Treasury one more time to make the case for research charities and all charities, to make sure they have the research support, funding and investment they need.

Charities are not an optional extra. We know that because, as we have heard during today’s debate, the outcomes they deliver—in not only research but care support and civil society—transform people’s lives. Some 7 million people every year generously donate to medical research charities, often as the result of personal experience or the loss of a loved one. The paucity of the response compared with the public contribution needs to be addressed. Charities stretch their pound further than any other sector, and they provide the highest standards in research and care. They are essential, yet in just a few months’ time, they may no longer be there. We need a robust response from the Minister today, and we need a financial response from the Chancellor tomorrow.

Regional Transport Infrastructure

Debate between Rachael Maskell and Chris Green

Tuesday 5th March 2019 Westminster Hall

[Rachael Maskell (York Central) (Lab/Co-op)]

It is a pleasure to serve under you in the Chair, Ms Ryan.

We have had fantastic contributions from the north, south, east and west of the country, with hon. Members making representations and airing grievances. I am sure that the Minister will respond to all of those. I want to start by thanking my hon. Friend the Member for Barnsley Central (Dan Jarvis), who has brought forward a really exciting, multi-modal approach to transport in south Yorkshire. He proposes a transport system connecting people and places, taking the Sheffield city region through to 2040 with his ambition for transport there, and ensuring that transport is the servant and not the master of the local economy.

We know that we need to develop housing and industry around our transport system, so that transport can be sown into a modern, sustainable and accessible process, in order to move people around. This is about productivity and social inclusion. We have heard what a stimulus that can be for our modern economy.

We have seen the power of devolution in places such as Manchester and London. We want to see that across the whole of Yorkshire. However, devolution has to mean a real emphasis on moving resources, power and decision making, and not just lip service, so that regions can determine their own destiny.

The transport brief is about clear, strategic objectives. However, there are some really important things missing and areas where greater focus is needed from the Government. I want to highlight the decarbonisation of our transport system. We have a carbon crisis at the moment. Transport comprises between 29% and 32% of all carbon emissions in the UK, and we have to reduce our carbon emissions by 15% year on year.

The catastrophic road building project and the cancellation of rail electrification show that the Government are moving in the wrong direction. They are adding to the carbon footprint, rather than reducing it. In my city, 50,000 people each year lose their lives due to poor air quality. That is a national crisis and it must be addressed as such.

[Chris Green]

Will the hon. Lady give way?

[Rachael Maskell]

I am sorry, I do not have time.

I want to see a focus on decarbonisation and decongestion as a priority for my city of York. Over the next 12 months, Labour’s citizens and transport commission will achieve that.

We have heard about inequality of spending across the country. The north-east has the worst levels of investment. That must change. It was also interesting to hear about the need for greater investment on the Isle of Wight, which shows that our infrastructure needs to be brought up to the modern era.

When we are making these investments, we have to plan for our railway system over a 30 to 40 year period—the length of time our infrastructure is sustained. Therefore, we need to ensure not only that the infrastructure is right, but that we have the skills to serve the infrastructure. While the Government have issued great plans around energy, construction and the transport system for future engineering projects, I say to the Minister—I am sure he has had similar conversations himself—that we are facing a skills cliff edge at the moment, given our ageing demographic and Brexit. The industry is doubtful that the infrastructure projects mentioned will be delivered. At the same time, there is a draw-down into the south-east, which means that we may not see the development across the country that we want.

We are seriously concerned about the emphasis on road building as opposed to moving forward into modern transport systems, bringing about modal shift, and ensuring that people are moving from their cars to public transport and to active travel for local journeys, which constitute 80% of journeys. We need to focus on a modern system, such as exists in Strasbourg, Copenhagen and much of the Netherlands. That is the kind of ambition that Labour has, and why we believe that we will deliver strongly in the transport brief.

We also recognise that there have been some good initiatives. The tram-train project in Sheffield has taken forward a mechanism of good, clean energy for the future. Importantly, it serves not only the city, but the more rural areas. As has been mentioned, this is about drawing in people from the towns and wider conurbations, so that people can get to work and travel for leisure. That is so important.

Opposition Members spoke about bus services. The Government’s profit-driven bus plan—I use the word “plan” lightly—does not deliver for the public. We believe that buses should be brought under public control. When we look at places such as Reading, where we see an increase in patronage and a service that meets the needs of residents, day and night, we can see what is possible when bus services are integrated into economic development. There are powerful testimonies to that from elsewhere. Coaches never get a mention, but I want to mention them, because they can also form part of a modal shift and bring rapid change. I believe that we must explore all options.

The trans-Pennine route was mentioned yet again. I say to the Minister that it is really important at this stage to scope out the work for the full electrification project, and to ensure that the scope includes opportunity for future freight. Labour will electrify that line and ensure that freight is deliverable on it. Speaking of freight—which, again, has not been mentioned yet—it is important that we build a freight system for the future, putting as much freight as we can on to rail and ensuring that all long-distance journeys are accessible, reliable and timely for freight. Therefore, we need to see a real move in that direction, as well as investment in urban consolidation centres, which will enable us to stop heavy goods vehicles travelling into town centres.

Finally, I want to touch on inter-modal connectivity. Joining everything up is really important. We have been quite startled by the fact that HS2 is being placed at Curzon Street, as opposed to New Street, meaning that people will have to trundle through the middle of Birmingham. I am sure that might be an advantage to Birmingham, but it does not really address the connectivity that is needed. We need to ensure that there is good connectivity across all transport modes. We expect the Government to look again at the way that they have put transport into siloes. Labour believes that inter-modal connectivity and moving people more on to public transport is the way forward, and that is what we will deliver in government.