(4 years, 10 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
Yes, I would like that to be the case. It seems to me that if someone is intentionally seeking to build an unauthorised development and is subject to a temporary or a permanent stop notice, they should do what that notice says—stop the work and restore the land to its original state. To my constituents, that would seem a sensible way forward.
My hon. Friend is talking about the huge increase in retrospective planning applications. The Times ran an article quite recently showing that there were 39,200 retrospective applications over three years, and only one in eight of those was rejected. If somebody develops land without consent, there is a good chance that they will ultimately get consent. There is a huge incentive for Gypsy and Traveller encampments, because in most circumstances the land is acquired at agricultural value and once consent is achieved, it has a worth as developable land. There is a big incentive for people to try to abuse the system in that way.
I totally agree with my hon. Friend. Local planning authorities should have the ability to enforce a requirement that people occupying sites without permission should not be permitted to remain on site while it is going through the planning process. That would stop the problem.
Where intentional unauthorised occupation has occurred, the requirement on the local planning authority in the decision-taking process to consider
“the availability (or lack) of alternative accommodation for the applicants”
should be removed. If a member of the settled community built a dwelling on land in the open countryside without first obtaining planning permission, the local planning authority would not, as part of the retrospective decision-taking process, consider the availability of alternative sites or be obliged to have to hand alternative sites to which the applicant could relocate. All I am asking for is equal treatment for everyone under the planning system, not preferential treatment for Gypsies and Travellers.
Often when Gypsies and Travellers find themselves in that situation, they say, “We’ve got nowhere else to go.” One of the problems for local planning authorities is that it is very difficult for them to check, when they are told that by Traveller families, whether those families own land elsewhere. We need a sensible arrangement with the Land Registry to help local authorities accurately check and verify an applicant’s other land holdings. That is difficult for local planning authorities to do, and it is something I believe the Minister can tackle.
I know that the Minister is here representing the Ministry of Housing, Communities and Local Government, and the Home Office will probably have the lead on the trespass issue—I would welcome his confirmation on that. When changing the rules on trespass, can we lower the number of vehicles needed to be involved in an illegal camp before the police can act? At the moment, I think it is six; it needs to be at least two, and I would go lower.
The police need to be given powers to direct Travellers to sites in neighbouring local authorities, not necessarily just in the local authority where the trespass takes place. Officers should be allowed to remove trespassers from camping on or beside a road, not necessarily just on land, and the time in which Travellers are not allowed to return to a site from which they have been removed should be increased from three months to at least a year, and I would go further than that.
There are lots of distinguished Members seeking to contribute to this debate. I thank you, Sir George, for your indulgence. On behalf of my constituents in the borough of Kettering, I press the Minister and the Government to seize the initiative on this issue and get something done.
(6 years, 1 month ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
That is certainly a frustration for the many patients who suffer. I hope that the Minister will address progress towards the outcome that we would all like to see.
There are changes that patients can make to their lifestyle to help to manage the condition, including specific exercise programmes and altering their diets. It is also important for them to avoid being around second-hand smoke and other environmental pollutants, such as open fires, petrol fumes, paint, solvents and dust, and that they avoid coming into contact with anyone suffering from a cold or the flu. However, that is often not enough. There is a need for Government action. We would like the Government to look at the prescribed specialised services advisory group’s recommendations and address the specific recommendation for a national, highly specialised service for patients with severe alpha-1.
A Department of Health and Social Care paper sets it out that that service, referred to by the hon. Member for Warwick and Leamington (Matt Western), should be operational by April 2019, which is only six months away. However, I understand that the formal development of the service has not yet commenced, and that it is highly unlikely that it will be operational by the original deadline.
The need for progress on the service forms one of the two principal objectives of the alpha-1 patient community, and I look forward to the Minister’s commenting on that. The second particular ask is to ensure that alpha-1 antitrypsin augmentation therapy—access to Respreeza, the only licensed treatment—will be available. I hope that the Minister responds positively to that.
It is the view of the alpha-1 patient community that the Government should focus on five key areas. The first is that that highly specialised service should become operational in a timely fashion. Secondly, patients should be involved at all stages in the development and implementation of the service to ensure that the patient voice is fully heard and taken into consideration. Thirdly, we are calling for a review of the impact of the NICE highly specialised technologies guidelines on patient access to rare disease treatments.
Fourthly, we are looking to apply a broader decision framework to the NICE process of evaluating the value of rare disease treatments, looking particularly at the social and societal benefits that impact patients and carers. Finally, we ask the Government to consider the appropriateness of introducing a more formalised process of conditional approval of rare disease treatments in England, such as alpha-1 augmentation therapy, as is being implemented in Scotland.
I shall conclude by referring to an email I received from a patient only yesterday that sets out her concerns with alpha-1 and its misdiagnosis. The sufferer emailed me to say that her mother died from antitrypsin deficiency, and that she now has the lung version of the disease. She is 48-years-old, and two years ago was a runner, but can now barely run for a bus or climb stairs. Her lung function has dropped dramatically in just one year. She is an ex-smoker and acknowledges the harm that smoking caused with respect to the condition. Had she been diagnosed earlier, she would have been able to make better lifestyle choices. The bit that got me was when she said that the deficiency for those who are symptomatic progresses at a very fast rate, and that, for many, it will end in gasping for breath for a long, drawn-out period, until such time as their lungs stop functioning completely. She says it feels like being eaten alive.
If the Government can work towards the two principal objectives and five key recommendations of the alpha-1 patient community, there will be a huge benefit to a significant group of people. It is our hope that the present and future needs of patients suffering this rare condition may finally be met.