Medicines and Healthcare Products Regulatory Agency

Perran Moon Excerpts

Thursday 16th January 2025 Commons Chamber

[Perran Moon (Camborne and Redruth) (Lab)]

I thank the right hon. Member for Tatton (Esther McVey) for securing a debate on what is an incredibly important campaign in support of the reforms to the MHRA. I would like to make clear my interest as an officer of the all-party parliamentary group on Primodos.

I will focus on the human case for reform. I would like to share part of a speech delivered at a recent APPG meeting by Jason Farrell, a journalist who has been instrumental in communicating the campaign for some time and who powerfully put into words the experience of Marie Lyon and other victims. He said:

“In October 1970, in Billinge maternity ward in Wigan, a woman gives birth to a girl. The baby is quickly rushed out of sight and later brought back swaddled. When Marie Lyon unwraps her daughter, she discovers half her baby’s arm is missing.

Meanwhile, in Portsmouth, Shirley Gubbins gives birth. Her daughter is so damaged, medics put her in a cupboard, assuming she will be dead within minutes. Shirley’s husband demands to see his child and discovers the baby’s back is twisted, her face disfigured, and one eye is missing. When she’s eventually allowed to see her baby, Shirley reacts in exactly the same way as Marie does: ‘She’s beautiful. She’s mine.’”

As a relatively new MP, I first met Marie Lyon, campaigner-in-chief and chairwoman of the Association for Children Damaged by Hormone Pregnancy Tests, just a few months ago at the request of a constituent. Marie has met many MPs in her years campaigning for recognition and justice for mothers and children affected by hormone pregnancy tests. I had not met many campaigners like her before, and I had certainly never met a leader with such reserves of stamina and such a profound sense of injustice.

I speak here on the shoulders of victims, families, activists, MPs, scientists and academics who have called for substantial reform of the MHRA and for the Government to acknowledge the harm done to patients and to implement the recommendations of the IMMDS. The harrowing stories of victims of this scandal after decades of fudges, obfuscation and inaction that have hindered their pursuit of justice must be heard again and again in the Chamber. The evidence is clear. The time for talk has long passed. It is time for us now to act.