Respite Care for Vulnerable Adults: Teesside

Paul Williams Excerpts

Monday 12th March 2018 Commons Chamber

[Dr Paul Williams (Stockton South) (Lab)]

I congratulate my hon. Friend the Member for Stockton North (Alex Cunningham) on securing the debate. I also congratulate him on his leadership in this area and on his engagement with the families and the clinical commissioning groups.

The challenge of being a carer for an adult with complex needs is a lifelong challenge. I have enormous respect and admiration for the people who do this work. My grandmother’s sister—I have just worked out that she is my great-aunt—has spent her life looking after several different adults with complex needs. She adopted them as children and has cared for them. I have seen the enormous amount of love and compassion that she has given them, and I have seen in all my constituents who have contacted me, and in my work as a GP in my constituency, the love and compassion that go into looking after adults with complex needs. But this comes at a cost for carers, mainly to their health. They often prioritise the needs of the person they are caring for and do not think about preventing their own ill health problems or about properly looking after problems as they arise. There is also a time cost. Being a carer for an adult with complex needs is a massive time commitment, a money cost and a career cost. So there is huge cost.

[Jim Shannon]

It is also important to get the issue of young carers recorded in Hansard. I have a vibrant young carers association in my constituency, in Regent Street, Newtownards. The work they do with elderly family members is the reason those families are together, so the issue of young carers is so important. Does the hon. Gentleman encounter the same issues I have in my area when it comes to young carers? Does he agree on the importance of keeping families together and of what young carers do?

[Dr Williams]

I thank the hon. Gentleman for highlighting the needs of young carers. In my constituency, as in those of all Members in this House, there are young people who grow up suddenly when they find themselves needing to be carers and who really do hold families together.

In the context of how difficult this caring can be and the tremendous efforts that people make in order to keep their loved ones well and look after them, the provision of occasional respite is the least we should be doing as a society. It is the least we should be doing to say thank you and to sustain the incredible efforts that these people are making. Like my hon. Friend the Member for Stockton North, I give some credit to the two CCGs involved, Hartlepool and Stockton-on-Tees CCG, and South Tees CCG, for taking some responsibility for this. We all see the constant jostling between local authorities and commissioners of health services about who should fund these issues in a time of austerity, but our CCGs have stepped up to the plate and taken ongoing responsibility for funding these issues.

However, a number of constituents have contacted me in what I can only describe as a state of panic during these consultations and since the outcome of the consultations was announced. They are fearful that their much-needed breaks are going to be taken away from them. As my hon. Friend pointed out, their fears may well prove to be ill-founded, but this should not mean that they should be discounted. Change is always difficult for people, but the possibility of services being cut has caused genuine anxiety for these people and we should rightly be recognising it. We all know that caring can be physically demanding, but it can also be mentally demanding, especially if it is being done for long periods of time. Adequate respite is essential if these carers are to be able to maintain their own health and wellbeing. It is also essential that carers are closely involved in any decisions about what is adequate and appropriate for their family members and for themselves. As he has said, a respite package should be designed around the needs of the whole family, not just those of the individual with complex needs.

What we are seeing, though, is limited funding. I do not know whether this is ring-fenced funding that the CCG has or whether it is taken from an overall pot, but there is limited funding. CCGs have a number of conflicting priorities. We know that throughout the health service demand is increasing and outstripping any increase in resource that it has. The limited funding and the rising need for this particular kind of care mean that for some people packages of care are likely to be reduced. That is causing people significant anxiety.

Before I finish, let me say that our experience on Teesside illustrates that health and social care do not exist in isolation from each other. Some small steps have been taken, including by changing the Department of Health’s name to the Department of Health and Social Care, but respite care is a really good example of where some more concrete steps can be taken to bring together health and social care funding. There should be a partnership between local authorities, clinical commissioning groups, parents, carers and the people with complex needs, so that they can work together. Respite care is an issue on which we should be seeing integration at its best. If we are talking about integration, I have to take the opportunity to talk about the forthcoming Green Paper on social care. It is inconceivable for me that in 2018 we should be considering social care in isolation. Will the Department think about whether the Green Paper should really be on health and social care together, rather than just on social care?

I pay tribute again to the carers who have come together to fight for the very best services for their loved ones. They deserve for us to listen, to consider and to act, so that they get the respite services that they need for themselves and their families.