Oral Answers to Questions
Debate between Paul Scully and Kerry McCarthy(1 year, 5 months ago)
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The Parliamentary Under-Secretary of State for Digital, Culture, Media and Sport (Paul Scully)
The Government are committed to supporting our grassroots music venues, the lifeblood of our world-leading music sector. Arts Council England has extended its Supporting Grassroots Live Music fund until 31 March 2023. During the pandemic, venues benefited from the cultural recovery fund; we are also supporting venues through the energy bills support scheme and will continue to do so through the energy bills discount scheme until spring 2024.
Kerry McCarthy
I draw the House’s attention to my entry in the Register of Members’ Financial Interests. With Independent Venue Week coming up next week, I pay particular tribute to Big Jeff, the best ambassador for grassroots music venues anyone could ever want, who is finally getting back out on the gig circuit after his terrible accident last year—thank you for indulging me on that, Mr Speaker. The sector is on a knife edge, sustained by a 0.2% profit margin. As I understand it —although the Minister may want to correct me, considering the answer he has just given—it is not included in the support for energy bills from 1 April. Will the Minister, if he does not have good news for me today, take that up with the Treasury as a matter of urgency, because it could be energy bills that finally push many independent music venues over the edge?
Paul Scully
I thank the hon. Lady and congratulate Big Jeff on all the work that he is obviously doing in the sector. We will certainly reflect on that. I think that the new energy scheme strikes the balance between supporting businesses over the next 12 months and limiting taxpayers’ exposure to volatile energy markets, and there is a cap based on estimated volumes. It is really important that we support music venues, hospitality and wider community venues to the benefit of our community and the amazing creative sector.
The Parliamentary Under-Secretary of State for Digital, Culture, Media and Sport (Paul Scully)
I can confirm that we are looking carefully at this. We have had a range of reactions to the proposals. The Minister for IP, my hon. Friend the Member for Mid Norfolk (George Freeman), welcomed the additional evidence, and the Government have now launched a period of stakeholder engagement on implementation options, taking into account the evidence received. We are confident that, together, we can come up with a proportionate response.
Kerry McCarthy (Bristol East) (Lab)
Paul Scully
I have not heard the song, but I will look it up. As I said to my right hon. Friend the Member for Ashford (Damian Green), we are confident that we will design a balanced approach. We will work with the industry to develop the creative industries sector vision and set out our ambitions for the sector, including in that important area.
Cystic Fibrosis Drugs: Orkambi
Debate between Paul Scully and Kerry McCarthy(5 years ago)
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Paul Scully
The hon. Lady has hit on a really crucial point. The underlying thing that I took away from my meeting with the people living with CF this morning was mental health, which ran through all their situations.
I heard from Oli Rayner, who talked about the fact that he is 43 and has dedicated his whole life to staying alive; he had effectively been told that he would not make 10 years. He was then told that he would not make 20, then 30. This is a guy who has now got cystic fibrosis-related diabetes and a number of other conditions. He has had a lung transplant, and he had Orkambi to get him to that stage. The fact is that his lungs are now doing what he wants them to do, without his having to think about it. We can imagine the mental issues that he had before.
Jessica Jones told me that people with CF are very good at living. Yvonne Hughes said she felt broken. One lady, Carly Beale, told me that she had been on the original Orkambi trial. The NHS had not prepared her for when Orkambi stopped at the end of the trial. She had suddenly improved and started to get her life back—perhaps a life that she had not had in the first place—and she was not ready to have it taken away from her. She said that it is almost worse that this drug exists but she cannot get access to it. She said, “I’d rather it didn’t exist than have it dangled in front of me in expectation.”
Kerry McCarthy (Bristol East) (Lab)
I am really pleased that there is now cross-party working on this issue. Life expectancy is a very sensitive issue for cystic fibrosis patients and their parents. I am aware that Conservative MPs have been sending round a letter that points out—as if the letter’s recipients ought to be grateful—that life expectancy for CF patients has now increased to 40, although I think it is more like 31. It seems a little insensitive, and I hope that MPs present would report that back.
Paul Scully
It is an unfortunate manner of phrasing. There is no doubt about the fact that median life expectancy has increased. For someone born now, the projection is that they are likely to have a median life expectancy of 47. It is clearly an improvement, and hopefully these drugs will carry on extending that. It is a matter of wording, and I do not think any offence was intended.