Ehlers-Danlos Syndrome and Craniocervical Instability Debate
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Patricia Ferguson
Main Page: Patricia Ferguson (Labour - Glasgow West)Department Debates - View all Patricia Ferguson's debates with the Department of Health and Social Care
Ehlers-Danlos Syndrome and Craniocervical Instability
Patricia Ferguson Excerpts(1 day, 16 hours ago)
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Patricia Ferguson (Glasgow West) (Lab)
I congratulate my hon. Friend on securing this important debate. Like others, I was not aware of this condition until I was contacted by my constituent Jo, who has bravely shared her story widely. I am grateful that she has done that. However, one of the things that Jo wanted to have raised today is that a recent report by Edinburgh University indicated that patients in Scotland can wait up to 20 years for diagnosis, and that when they are diagnosed—if they are diagnosed—they then, as my hon. Friend has said, face a very difficult journey in trying to find care, help and medical treatment. They often have to come south of the border for that treatment and pay for it privately. I echo my hon. Friend’s point about finding a pathway for people with these conditions, and I hope that today’s debate leads to one.