Preventable Baby Loss

Olivia Blake Excerpts

Wednesday 4th September 2024 Westminster Hall

[Olivia Blake (Sheffield Hallam) (Lab)]

It is a pleasure to serve under your chairship, Mr Dowd. I thank the hon. Member for Ashfield (Lee Anderson) for securing this important debate. My thoughts are with all the families whose experiences he shared today and with all those present who have shared their personal experiences.

This is an issue that is deeply personal to me, and I have spoken about it many times in the last five years. I am sad to say that I have not yet had my rainbow baby, but that does not stop the questions every single month for probably the last year, asking whether I am pregnant. I encourage colleagues not to ask women, because not only is it very rude but it can cause a lot of heartache for those who are struggling to conceive.

I have had the honour of working with dedicated campaigners, including Myleene Klass, and we were privileged to welcome the then Minister responsible for women’s health to Tommy’s at Birmingham Women’s hospital. It was great to get them there. I extend that same invitation to the new Government’s health team to see the research that has been done there; to see an alternative model of care, which would see the end of the three-miscarriage rule and has since been piloted in response to the review; and to meet the families who Tommy’s has helped to have their rainbow children. It was incredibly rewarding to hear their stories about how small changes in care can really make that difference and allow people to have the families they so desperately need, while remembering the children they were unable to hold in good health. It has been brilliant to work with Tommy’s and Sands for several years, pushing for meaningful and long-overdue changes.

It is estimated that 50% of people will be affected by baby loss during their lifetime, either personally or through someone they know. Miscarriage is common but that does not make it any less heartbreaking, and often that leads women—as well as men who have gone through it—to face grief in isolation. We have been trying hard to break the taboo, increase support from employers and establish bereavement leave and better mental health support, because in many cases there is none. Most importantly, we have been trying to improve the pathway of care by pushing for more early intervention for women who may be at higher risk—such as myself as I had undiagnosed diabetes—and for funding for research to make sure we are doing all we can to improve the life chances of people going through pregnancy.

In the UK, 13 babies tragically die before, during or shortly after birth every single day. National reports indicate that up to one in five of those stillbirths and neonatal deaths could be prevented if guidelines were simply consistently followed. That is not good enough, and those deaths are not mere statistics but heartbreaking losses that call for our immediate attention and action.

I want to highlight the progress being made in addressing the challenges in miscarriage in response to the independent pregnancy review, because it is important that we show that more can be done. We have touched on the three-miscarriage rule; it is important that we make sure that ending that is rolled out successfully. We are waiting for the results of the pilot, but I hope the Government will take seriously that change in the model of care, which is backed up by research.

By all accounts, the number three was picked out of mid-air, and there is no reason why someone should have to wait to have three miscarriages before they get basic tests for diabetes or for other reasons to understand why they may have miscarried. It is cruel—we would not expect anyone to have three heart attacks before doing a basic test—and it lays bare the sexism in our medical system that we would allow people to go through that so many times and face so much loss and trauma before giving them the answers they need to perhaps go on to have successful pregnancies.

The review provided 73 recommendations across various areas, including the graded model of care, which would be the alternative to the three-miscarriage rule and would give people the support they need after one miscarriage. It is currently being trialled at Birmingham.

Another vital recommendation is 24/7 access to miscarriage care. At the moment, people may or may not have access to an early pregnancy unit, depending on where they live in the country. They may not have any access to information about what to do if they are suffering a miscarriage, which leads to people turning up to A&E or staying at home and losing a child unnecessarily. This critical measure would ensure that nobody has to navigate that painful experience alone, and I would love to work with the Government further on how we can develop it in an affordable and successful way to reach all communities, whether rural or inner-city.

Data collection is an important area that I feel has been left out of the conversation somewhat. It is vital that we understand the issue. There has been a push for the systematic recording of all miscarriages in order to understand their true scale. The numbers we quote today are unknowns, really, because we have not been recording them systematically.

I had an experience when being called for my flu jab. I was a bit bemused and asked why I had been called for one. They said, “Oh, it’s because you’re pregnant.” They looked down and saw that I was not pregnant and said, “Oh wait, you’re not.” That was a very difficult thing for me to go through. They did give me the flu jab, which is quite funny I suppose, but it was really hard for me to go to that appointment and hear that.

Many of my constituents have been asked whether it is their first child or how their other children are doing, because the notes are not there. The way that miscarriage and baby loss is flagged on medical records is not sufficient to stop those awkward and very upsetting experiences for women who have been through baby loss. We want to get national statistics because we want to understand the true picture. That will allow us to set targets and measure the impact of the interventions that we so desperately need to introduce.

Although the previous Government’s commitment to 20 short-term actions, including on some of the issues I have highlighted, is a positive step, it is deeply concerning that families are still having to face the trauma of multiple miscarriages before receiving investigative tests and mental health support, which is not fully understood either. People who have suffered loss are more likely to suffer from post-traumatic stress disorder, depression and suicide. These are very material issues for families who have experienced one miscarriage, never mind the trauma of three. I hope the Government can look into the issue in more detail.

We have heard about issues of inequality. Black babies are more than twice as likely to be stillborn, and black and Asian babies are more than 50% more likely to die shortly after birth than white babies. High rates of child fatality and miscarriage are also reported in the Gypsy, Roma and Traveller communities. This disparity is unacceptable. I urge the Government to renew and extend the national maternity safety ambitions and to set clear targets to reduce these inequalities. I welcomed the reviews of these two areas that were brought forward by the last Government, but I hope we can learn the lessons soon and get action for those mothers. Every baby deserves an equal chance of survival; their background should not matter.

We must also focus on improving prenatal care. This is an area that people are again not given enough information on. Early and regular antenatal care is critical, but if we can provide advice, guidance and support for women who have disabilities and illnesses, we can help them have safer pregnancies. As we have heard today, the basic care is still not there for many people, and it is essential for us to focus on that gap.

As I said, we need to ensure that every expectant mother has access to timely, high-quality care regardless of their background. Alongside that, addressing health inequalities is crucial; sadly, babies born into poverty are more likely to die by their first birthday than those born into wealthier families. That disparity is a stark reminder of the broader social determinants of health that contribute to infant mortality. We must tackle these inequalities head-on by improving access to healthcare, education and support for families—particularly those from disadvantaged communities.

Preventable baby deaths are a tragedy that we have the power to address and prevent. Although we have made important strides, more work is desperately needed. I urge the Government to commit wholeheartedly to giving every baby the chance to thrive and ensuring that every family receives the support they need throughout pregnancy and, unfortunately, throughout baby loss.