Oral Answers to Questions

Nickie Aiken Excerpts

Tuesday 8th June 2021 Commons Chamber

[Matt Hancock]

Yes, I will ensure that the Minister of State takes a meeting with the hon. Lady.

[Nickie Aiken (Cities of London and Westminster) (Con)]

I am sure that my right hon. Friend saw Fergus Walsh’s report on the BBC news last week on spinal muscular atrophy and the importance of the UK’s newborn screening programme. Surprisingly, the UK screens for only nine rare diseases in the heel-prick test, compared with other European countries such as Iceland and Italy, which test for 47 and 43 diseases, respectively. The sooner the diagnosis for a child with a rare disease the better, because it can change their life and their life chances. With that in mind, does my right hon. Friend agree that the UK should now consider expansion of the newborn screening programme? Will he meet, or ask a Minister of State to meet, me and campaigners on the issue?

[Matt Hancock]

Yes, absolutely, I 100% agree with my hon. Friend. We have the funding to expand that programme. She will have seen in our national genomics healthcare strategy that newborn screening is specifically highlighted. It is a personal mission of mine to make that happen. I am happy to meet her and Baroness Blackwood, the chair of Genomics England, who has been driving the project forward.