Appropriate ME Treatment

Mohammad Yasin Excerpts

Thursday 24th January 2019 Commons Chamber

[Mohammad Yasin (Bedford) (Lab)]

I am grateful to the hon. Member for Glasgow North West (Carol Monaghan) for securing this very important debate. I have received a number of requests from my constituents to attend this debate to highlight this devastating condition.

Sufferers of ME are often stigmatised and marginalised, as their conditions are not fully recognised by the Government or the medical profession. A number of my constituents suffer from ME. At least two have been bedridden for 30 years because of their condition, and their story is not uncommon. Some 250,000 people suffer from ME, with 25% of individuals house or bed-bound. Children as young as five can develop the condition, and it is the most common cause of long-term school sickness absences.

A Westminster Hall debate last February raised issues about the PACE trial, which has influenced the NHS treatment of ME. A report had recommended CBT and GET as effective treatments. More recent research has disproved that study, which shows that CBT is not effective, and that GET can worsen individual symptoms, as has been the case for some of my constituents. However, those are the only treatments available on the NHS, which means that individuals and their families must endure treatment that not only fails to improve them, but can worsen their condition.

I therefore support suspending CBT and GET treatments in the NHS, as well as updated training for GPs and medical professionals, to alleviate the unnecessary hardship to which individuals with ME are currently subjected. ME has been overlooked for too long. We must fund and support research properly, and work to ensure that those who suffer from ME are listened to, diagnosed, and treated in the best possible way.