Autism

Mark Tami Excerpts

Thursday 29th March 2018 Commons Chamber

[Dame Cheryl Gillan (Chesham and Amersham) (Con)]

I beg to move,

That this House notes that World Autism Awareness Week 2018 runs from 26 March to 2 April; believes that there is a lack of understanding of the needs of autistic people and their families; and calls on the Government to improve the support provided to autistic children in school and to autistic adults in or seeking employment, to reduce waiting times for autism diagnosis, and to promote a public awareness campaign so people can make the changes necessary for the UK to become autism-friendly.

I welcome to the Front Bench the Minister for Care, who will be responding to the debate. I gather that she chaired an autism accountability meeting on Monday, so she brings knowledge of that to the debate, and I look forward to hearing what she has to say. I thank the Backbench Business Committee for granting this debate during World Autism Awareness Week itself.

I want to put on record my great pride at chairing the all-party group on autism, which is a really good cross-party group that embraces people from both sides of the Chamber. It is important that we continue this debate on a cross-party basis because, as we must remind ourselves, in each Member’s constituency we probably have approximately 1,000 autistic people. The accepted statistic is about one in 100 people. This is therefore a subject that we share between us, and one on which we can make good progress when we all work together.

I am also aware that many Members have family members who are on the autism spectrum. I wish to put on record my thanks to colleagues who have shared their own experiences, because those experiences add to the body of knowledge and to the effective way in which we can improve situations for people with autism and their families.

The fact that this is such an important issue is reflected particularly in the National Autistic Society’s Too Much Information campaign, with which many of us will be familiar. Only 16% of autistic people and their family members think that the public really understand autism in any meaningful way. As a result, an alarming number of people—79% of autistic people and 70% of families—feel socially isolated. At a time when our Prime Minister has put in place a Minister for loneliness, we must not forget the isolation that can be caused for autistic people through behaviour or a lack of understanding in this area. Half of autistic people and their families sometimes do not even go out because they are worried about how people will react to autism, while 28% of autistic people have been asked to leave a public space because of behaviour associated with their autism.

[Mark Tami (Alyn and Deeside) (Lab)]

Does the right hon. Lady agree that the situation is also very frustrating for those who fail to get a diagnosis of autism, particularly when their local authority is not able to provide one, or says that it does not have the resources to do so? Even if a person pays privately for one, the local authority will not accept that as a diagnosis.

--- Later in debate ---

[Mr Sheerman]

My hon. Friend is absolutely right. Indeed, I would urge Members of Parliament to encourage autism-friendly environments in their constituencies. Having soft lighting and not too much noise can make a very big difference to accessibility.

This is World Autism Awareness Week. As I said, the Westminster Commission on Autism works very closely with the all-party group. Indeed, the right hon. Member for Chesham and Amersham is a member of the commission. Yesterday, we were proud to launch a report called, “A spectrum of harmful interventions for autism”. Many people in this country—very wicked people—play on people’s stress, worries and concerns and sell treatments for autism that really should be banned. They use social media. It is a disgrace in our society that people prey on very stressed families with children or other members with autism. We took evidence on this, and it was really upsetting to hear about the kinds of treatments and therapies that were on offer. It is a very interesting area, because it is unclear whether it is covered by the food regulator or the medical regulator, so no one is quite sure who to complain to. Our report has the answer. It is very important, and I hope that hon. Members in all parts of the House will promulgate it.

The most serious thing that we have to address is what happens when someone—usually both parents, but a mother nearly always knows earlier—notices very early on that something is not quite right. Then there is the frustration of not knowing who to talk to, where to go and where the support is. I am not going to be political at all, but one little thing is that children’s services are deeply under pressure in every local authority.

[Mark Tami]

Does my hon. Friend agree that another crucial time is when someone moves from children’s services to adult services? That can be a very traumatic period if it is not handled properly.

[Mr Sheerman]

Absolutely. All my experience suggests that most work now needs to be put into early family support, in every way. People feel so isolated and bereft of support, and bereft of knowledge. Thanks to the right hon. Member for Chesham and Amersham and others, there is a lot of information out there, but how do people get it when they have never even really understood what autism means?