Paediatric Cancers of the Central Nervous System

Mark Tami Excerpts

Monday 22nd October 2018 Commons Chamber

[Chris Elmore]

I agree, and I will touch on the impact on families later in my speech. People talk of the late Baroness Jowell—Tessa—and her legacy. There can be no greater legacy than securing the additional research funding through her campaign on tackling the causes of brain tumours. Of her many great achievements, that has to be the one that will live with all of us the longest.

[Mark Tami (Alyn and Deeside) (Lab)]

My hon. Friend will be aware of CLIC Sargent’s campaign. In an event today, the charity highlighted the cost of travel for families with children who are in treatment. The average is about £200 per month. We need to do a lot more to support families and to cover some of those costs.

[Chris Elmore]

I agree. Often with children’s cancer, one member of the family—usually the mother—has to give up their job to be a carer. That has a massive impact on the family. I completely agree with my hon. Friend that that has to be addressed.

--- Later in debate ---

[Chris Elmore]

I agree with the hon. Lady entirely. There is clearly a need to look not just at treatment but at what comes next. If we are to improve survival rates, which we must—research is a key part of that—then we need to look at what comes next for these families and for the children who, touch wood, will survive.

[Mark Tami]

We must not forgot mental health either. It is very important that we provide support and counselling afterwards. After what these young people have gone through, it is important they receive mental health support.

[Chris Elmore]

I agree entirely with my hon. Friend. It is such an important part of the recovery that families go through. That a child has cancer is in itself a huge trauma. What comes next is so important, and mental health for both the child and the family cannot be forgotten. This again underlines the life-changing effects of cancers such as AT/RT on a child. It will in all likelihood impact on every aspect of their life.

There is a great deal of positive work happening in this House. I would like to pay tribute to my hon. Friend the Member for Bristol West (Thangam Debbonaire) and her colleagues on the all-party group on children, teenagers and young adults with cancer, who recently held an inquiry into patient experiences of childhood cancers, the findings of which were published this year. After discussing the inquiry with my hon. Friend, I would like to thank the Minister for the positive contribution he made to it. I ask him and the Secretary of State to look at the report’s recommendations. Many are comparatively inexpensive and would make a huge difference to the children and their families who find themselves in this situation. I appeal to the Minister to update the House on his response to the all-party group’s findings.