Business of the House

Mark Pawsey Excerpts

Thursday 6th December 2012 Commons Chamber

[Mr Lansley]

I am sure that the hon. Gentleman and all other Members—and indeed those outside the House—would benefit from a visit to the Imperial War museum, just south of the river, which has an excellent new display of Victoria Cross medals that also describes the heroism that led to the awarding of them. I entirely share the hon. Gentleman’s feelings about his constituent and others.

[Mark Pawsey (Rugby) (Con)]

I recently met my constituent, Stephen Leadbetter, who has suffered from lung problems since he was 14. He is now 22, and has recently been diagnosed as having alpha-1 antitrypsin deficiency. Stephen believes that if he had been diagnosed earlier, his health would not now be declining so rapidly. May we have a debate about raising awareness of this and similar conditions?

[Mr Lansley]

It is important that the Department of Health should continue to support research and development into rare genetic diseases, and we have protected the research and development budget in order to do so. We consulted on a rare disease plan, and published a summary of the consultation responses last month. Work is on track to produce a UK rare diseases plan by the end of 2013, which could help my hon. Friend’s constituent and many others.