Data (Use and Access) Bill [HL]

Lord Tarassenko Excerpts

Report stage
Tuesday 28th January 2025 Lords Chamber

I am not alone. Indeed, swathes of those inside the sector think there is a role for AI that will be a smaller, higher-quality, problem-solving technology that will power real-world businesses, innovations and an information ecosystem of the future. It is that growth opportunity that lies within the capability and the datasets of the UK. I beg to move.

[Lord Tarassenko (CB)]

My Lords, I speak in support of the noble Baroness, Lady Kidron, on Amendment 58, to which I have also put my name. Given the time, I will speak only about NHS datasets.

There have been three important developments since the Committee stage of this Bill in mid-December: the 43rd annual J P Morgan healthcare conference in San Francisco in mid-January, the launch of the AI Opportunities Action Plan by the Prime Minister on Monday 13 January and the announcement of the Stargate project in the White House the day after President Trump’s inauguration.

Taking these in reverse chronological order, it is not clear exactly how the Stargate project will be funded, but several US big tech companies and SoftBank has pledged tens of billions of dollars. At least $100 billion will be available to build the infrastructure for next-generation AI, and it may even rise to $500 billion in the next four years.

The UK cannot match these sums. The AI Opportunities Action Plan instead lays out how the UK can compete by using its own advantages: a long track record of world-leading AI research in our universities and some unique, hugely valuable datasets.

At the JP Morgan conference in San Francisco, senior NHS management had more than 40 meetings with AI companies. These companies all wanted to know one thing: how and when they could access NHS datasets.

It is not surprising, therefore, that it was reported in November that the national federated data platform would soon be used to train different types of AI models. The two models mentioned were Open AI’s proprietary ChatGPT and Google’s medical AI, Med-Gemini, based on Google’s proprietary large language model, Gemini. Presumably, these models will be fine-tuned using the data stored in the federated data platform.

Amendment 58 is not about restricting access to UK datasets by Open AI, Google or any other US big tech company. Instead, it seeks to maximise their long- term value, driven by strategic goals rather than short-term, opportunistic gains. By classifying valuable public sector datasets as sovereign data assets, we can ensure that the data is made available under controlled conditions, not only to public sector employees and researchers but to industry, including US big tech companies.

We should expect a financial return when industry is given access to a sovereign dataset. A first condition is a business model such that income is generated for the relevant public body, in this case the NHS, from the access fees paid by the companies that will be the authorised licence holders.

A second condition is signposted in the AI Opportunities Action Plan, whose recommendations have all been accepted by the Government. In the third section of the action plan, “Secure our future with homegrown AI”, Matt Clifford, the author of the plan, writes that

“we must be an AI maker, not just an AI taker: we need companies … that will be our UK national champions … Generating national champions will require a more activist approach”.

Part of this activist approach should be to give companies and organisations headquartered in the UK preferential terms of access to our sovereign data assets.

These datasets already exist in the NHS as minimum viable products, so we cannot afford to delay. AI companies are keen to access data in the federated data platform, which is NHS England’s responsibility, or in the secure data environments set up by the National Institute for Health and Care Research, NIHR.

I urge the Government to accept the principles of this amendment as they will provide the framework needed now to support NHS England and NIHR in their negotiations with AI companies.

[Lord Stevenson of Balmacara (Lab)]

I have signed Amendment 58. I also support the other amendment spoken to by the noble Baroness, although I did not get around to signing it. They both speak to the same questions, some of which have been touched on by both previous speakers.

My route into this was perhaps a little less analytic. I used to worry about the comment lots of people used to make, wittily, that data was the new oil, without really thinking about what that meant or what it could mean. It began to settle in my mind that, if indeed data is an asset, why is it not carried on people’s balance sheets? Why does data held by companies or even the Government not feature in some sort of valuation? Just like oil held in a company or privately, it will eventually be used in some way. That releases revenue that would otherwise have to be accounted for and there will be an accounting treatment. But as an accountant I have never seen any company’s assets that ever put a value on data. That is where I came from.

A sovereign data approach, which labels assets of value to the economy held by the country rather than a company, seems to be a way of trying to get into language what is more of an accounting approach than perhaps we need to spend time on in this debate. The noble Baroness, Lady Kidron, has gone through the amendment in a way that explains the process, the protection and the idea that it should be valued regularly and able to account for any returns it makes. We have also heard about the way it features in other publications.

I want to take a slightly different part of the AI Opportunities Action Plan, which talks about data and states:

“We should seek to responsibly unlock both public and private data sets to enable innovation by UK startups and researchers and to attract international talent and capital. As part of this, government needs to develop a more sophisticated understanding of the value of the data it holds, how this value can be responsibly realised, and how to ensure the preservation of public trust across all its work to unlock its data assets”.


These are very wise words.

I end by saying that I was very struck by the figures released recently about the number of people who opted out of the NHS’s data collection. I think there are Members present who may well be guilty of such a process. I of course am happy to have my data used in a way that will provide benefit, but I do recognise the risks if it is not properly documented and if people are not aware of what they are giving up or offering in return for the value that will be extracted from it.

I am sure we all want more research and better research. We want research that will yield results. We also want value and to be sure that the data we have given up, which is held on our behalf by various agencies, is properly managed. These amendments seem to provide a way forward and I recommend them.