Data Protection Bill [HL]

Lord Stevenson of Balmacara Excerpts

Report stage (Hansard - continued): House of Lords
Monday 11th December 2017 Lords Chamber

I hope that I have reassured the noble and learned Lord and the noble Baroness, Lady Hamwee, that the Government understand the concerns raised through these amendments and will undertake to work with the House authorities to, where appropriate, bring forward amendments to address them at Third Reading.

[Lord Stevenson of Balmacara (Lab)]

Before the Minister sits down, I put it to her that, in the considerations that will take place between now and the return in January, one thing that changes between 1998 and today in terms of the Act is something we have not looked at specifically, although it comes up in the Bill. It is the need to ring-fence the Information Commissioner from any involvement with Parliament or the Government. She is answerable to Parliament, but she should not be in that sense exposed to considerations that might adversely affect her. I hope that might be taken into account as well.

[Baroness Chisholm of Owlpen]

I agree with the noble Lord, and we will take that into account.

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[Lord Patel (CB)]

My Lords, I have already spoken on this at length and I do not intend to repeat myself, but I support the amendment from the noble Baroness, Lady Neville-Jones. This is a very important database. It is not just national but international, and it is difficult to collect. That is why I am glad that an accommodation has been made to support the amendment.

[Lord Stevenson of Balmacara]

My Lords, I add my voice in support of the noble Baroness’s amendment and wish it well. I suspect she has run into the logjam that constitutes the waiting list to see the Bill team and the Ministers, who have been worked so hard in the last few months. But I hope it will be possible, given that there is a bit of time now before Third Reading, for this matter to be resolved quickly and expeditiously before then.

[Lord Ashton of Hyde]

My noble friend Lady Neville-Jones explained in Committee that Unique plays a hugely important role in providing advice and support to sufferers of rare chromosomal disorders and their carers. Some of these charities have large databases dating back many years, so we understand their desire to maintain these when the GDPR comes into force without necessarily obtaining fresh consent to GDPR standards for each data subject included on the database. When families are providing support to their loved ones, some of whom may need round-the-clock care, filling in a new consent form may not be high on their agenda.

However, they may still value the support and services that patient support groups provide and would be concerned if they were removed from the charities’ databases. If charities such as Unique had to stop processing or delete records because consent could not be obtained, they worry that this would impede the work they do to put patients and their families in touch with others suffering from rare genetic conditions, help clinicians to deliver diagnoses and facilitate research projects. We recognise that this could be particularly damaging when there is barely any knowledge of the condition other than what they may hold on their database.

Let me be clear: if there is a grey area in the Bill that puts this work at risk, the Government are fully prepared to amend it. Legislating in this area is not straightforward and I am keen that the policy and legal teams in the department are able to continue with the constructive discussions they have been having with Unique and the UK Genetic Alliance to ensure that the legislation adequately covers the specific processing activities they are concerned about, while providing adequate safeguards for data subjects. I assure noble Lords that we will use our best endeavours to work on this legislative solution as quickly as possible. If it is not ready by Third Reading, and I am afraid I cannot promise it will be, the Government will endeavour to introduce any necessary provisions at the next possible amending stage of the Bill. I will of course ensure that my noble friend gets the credit she deserves for her persistent efforts on this subject when that time comes.

Government Amendments 72 to 77 are the products of detailed discussion with the noble Lord, Lord Patel, the noble Baroness, Lady Manningham-Buller, and representatives of the Wellcome Trust. I thank them very much for those constructive and helpful discussions. In Committee we discussed the operation of the safeguards in Clause 18 and the potentially damaging impact they would have on pioneering medical research. As I explained at the time, it was never the Government’s intention to undermine such important work, so it is with great pleasure that I table these amendments today.

Noble Lords will recall that the greatest concern stemmed from the safeguard in what is currently Clause 18(2)(a). That paragraph was designed to prevent researchers using personal data to make measures and decisions in respect of particular data subjects but, as the noble Lord explained, there are certain types of medical research where this is inevitable. In the context of a clinical trial, for example, a data subject might willingly agree to participate, but in the course of the trial researchers might need to make decisions about whether the treatment should continue or stop, with respect to some or all data subjects. Government Amendment 77 addresses this concern by making it clear that the safeguard is automatically met where processing is necessary for the purposes of approved medical research. Approved medical research is defined in the new clause and includes, for example, research approved by an ethics committee established by the Health Research Authority or relevant NHS body. Importantly, the new clause also contains an order-making power so that the definition of approved research can be kept up to date.

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[Baroness Hamwee]

My Lords, I have put my name to this amendment. I stumbled on the omission of Members of this House during debate in Committee, when I asked what I thought was an innocent question. I was asked to appear on the BBC’s “Question Time” after the list of Peers of which I was one was announced but before I actually arrived here. It was a fairly difficult occasion, which I remembered when I was thinking about this issue at lunchtime today. When I referred, during the discussion, to Members of Parliament, Nicholas Ridley said, “You are a Member of Parliament”. We are all Members of Parliament. We happen to be Members of the House of Lords; those who are normally called MPs are Members of the House of Commons. I regard myself as being in a representative position, even though I am not elected.

I disagree with one comment of the noble and learned Lord, which was about the amount of casework that I do. I am so conscious of the problems of getting it wrong, particularly in the area of immigration, that I try not to do that work. However, it is notable how the number of requests to Peers to intervene in individual cases has grown over the last few years. I suppose that reflects the fact that MPs are taking on more and more of what a few years ago one might have called social work. There are not the same demarcation lines as perhaps there used to be.

The casework, among other things, informs our general response to policy issues and specific proposals put before us, so we cannot exclude ourselves from all this. Ten days or so ago, in response to a request to pursue a particular case, I made the point that the individual should approach her own MP. The answer came back, through an intermediary, “She’s an asylum seeker. She doesn’t have an MP. We’re looking for anyone who can help”.

In Committee, questions on this issue were asked round the House. I recall that the noble Lord, Lord Lucas, took up the point after I had asked a question. I am very grateful to the noble and learned Lord for pursuing this matter. I hope that the Minister will accept his suggestion that this should be considered further between now and Third Reading, and that it should be dealt with at this end. I hope that the Minister will this evening assure us that it will remain on the agenda and that we can return to it at the next stage of the Bill in this House.

[Lord Stevenson of Balmacara]

My Lords, we do not need to think very hard about this issue in terms of providing evidence that might be helpful to Ministers given that at Oral Questions today, at which I think the Minister and the noble Baroness were present, a case was raised by a Peer on our side of the House, in a Question to the DWP Minister, which verged on picking up a particular case. It was very useful in terms of making a broader political point. Are we saying that that will not be possible in future, as it raises significant questions? Secondly, as the noble Baroness, Lady Hamwee, said, irrespective of whether we have been an MP or a Member of the other House, we receive letters and emails almost daily offering individual data and information which, if we used it, would, I think, fall into the category mentioned by the noble and learned Lord.

At the weekend, I had the privilege of seeing the RSC perform the “Imperium” plays, adapted from the books of Robert Harris. These deal with a well-known orator, Cicero. Noble Lords will not be surprised to learn that he recommends to his clients—at one stage, he gives a tutorial to fellow citizens of Rome who intend to seek high office—that it is always helpful, and always catches the attention of an audience, if you give the specifics of an individual case and rise from that to the general. So if there is a possibility of placing a constraint on the ability of Members of this House to raise cases in an effort to improve the quality of life for citizens to whom we owe a duty of care and responsibility, that must be wrong. I hope that the Minister will take this away and work with the noble and learned Lord, Lord Brown, to bring something forward at Third Reading.

[Baroness Chisholm of Owlpen]

My Lords, Amendments 28 and 29 create a new processing condition for Members of this House. The Government’s view is that the provisions in paragraphs 19 and 21 of Schedule 1 are intended to reflect the unique and special nature of the relationship between an elected representative and their constituent.

Like the noble Baroness, Lady Hamwee, and the noble and learned Lord, Lord Brown, I am very aware of the important and valuable work that many noble Lords carry out on behalf of members of the public, advocating for their rights, taking up their cases with government departments and representing their interests in any number of scenarios. However, this relationship between a Peer and a member of the public is of a different nature and order from that conferred on an elected representative by their constituents. Elected representatives have particular rights and duties to act on behalf of the citizens they represent. The Government therefore consider it appropriate for them to be able to deal with urgent situations where they could not reasonably be expected to obtain consent; for example, in the case of an individual facing imminent deportation. There is no such need for Peers to be exempted from the provisions on consent. I stress again that nothing in the Bill or the GDPR prevents Peers undertaking casework if they first obtain the consent of the individual concerned.

I emphasise that these provisions are not new. The position under the 1998 Act is very similar and, in answer to the point made by the noble Lord, Lord Stevenson, it has not prevented Peers who are interested in undertaking casework doing so. Indeed, I have not found difficulty in this respect; I have just obtained consent first.

I hope I have reassured the noble and learned Lord that the Government understand the concerns raised, and that in this instance he will withdraw his amendment.