Medical Data Sharing Debate

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Lord Hunt of Kings Heath

Main Page: Lord Hunt of Kings Heath (Labour - Life peer)

Medical Data Sharing

Lord Hunt of Kings Heath Excerpts
Monday 1st June 2015

(9 years ago)

Lords Chamber
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Baroness Chisholm of Owlpen Portrait Baroness Chisholm of Owlpen
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The Health and Social Care Information Centre is working closely with NHS England and the Department of Health to put a method into place for resolving these issues. People’s private identifiable health information cannot be shared unless there is a legal basis to do so. Data will be held securely and will be made available more widely only in safe de-identified formats with crucial safeguards.

Lord Hunt of Kings Heath Portrait Lord Hunt of Kings Heath (Lab)
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My Lords, in welcoming the noble Baroness to her new position, I also pay tribute to the noble Earl, Lord Howe, for his stewardship of the health brief over the last five years. Not the least of his contribution has been his willingness not just to come to Oral Questions but to do most of the statutory instruments and Questions for Short Debate as well, which your Lordships have much appreciated.

On the Question—I remind the House of my presidency of GS1—does the noble Baroness agree that it would be an absolute nonsense if those patients who wished to opt out were actually denied access to screening services? That would be the impact of putting their wishes into practice. Of course there are lessons to be learnt about mistakes that have been made, but surely the Government should be vigorously in favour of, and supporting, the proper sharing of information to the benefit of patients.

Baroness Chisholm of Owlpen Portrait Baroness Chisholm of Owlpen
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I thank the noble Lord for his kind words. I hope that your Lordships will have patience while I learn the ways of this House. Indeed, I feel that behind me my noble friend Lord Howe, who has indeed done an incredible job over the past 18 years, is sitting on his hands at the moment, longing to rush to the Dispatch Box, push me aside and take over this brief.

To answer the noble Lord’s question, the Secretary of State intimated that we are determined to guarantee that personal data are protected, and we are enthusiastic about reacting to the benefits of sharing them. Indeed, Professor Peter Weissberg of the British Heart Foundation stated:

“Locked inside our medical records is a mine of vital information that can help medical scientists make discoveries that can improve … and save lives”.

We must keep this at the forefront of our minds.