Endometriosis Services

Liz Jarvis Excerpts

Tuesday 24th March 2026 Westminster Hall

[Liz Jarvis (Eastleigh) (LD)]

It is a pleasure to serve under your chairship, Mr Dowd. I am grateful to the hon. Member for Ipswich (Jack Abbott) for securing this important debate. I welcome to the House all the women in the Public Gallery.

I have also heard from many women in my constituency who have lived with the devastating impact of endometriosis. It is shocking that so many have had to endure years of pain, uncertainty, dismissal and a lack of access to timely diagnosis and specialist endometriosis services. According to the charity Endometriosis UK, it takes on average nine years and four months to receive a diagnosis of endometriosis in the UK—nearly a decade of a woman’s life blighted by debilitating pain, missed employment and educational opportunities, declining mental health, difficulties with fertility, and being told far too often that what they are experiencing is normal.

We know that one in 10 women are affected, yet awareness remains far too low among the public and healthcare professionals. The economic cost alone is estimated at £11 billion a year. Behind the statistics, however, are real people, real families and real suffering. My constituent Lucy, who is a teacher, told me that she has been suffering tremendously every month, unable to work on the first day of her cycle due to the pain and side effects. Every single month she has been left unable to stand, doubled over in pain, and with dizziness and vomiting. After nine years of debilitating pain, fertility issues, being refused treatment and being told that some people just suffer, she has finally had a laparoscopy, which revealed that she has endometriosis. She is hoping that she can now grow her family, but it should never have taken so long for a diagnosis.

[Dr Danny Chambers (Winchester) (LD)]

I can reiterate that point; my partner Emma has severe endometriosis. She is regularly crippled—barely able to get off the sofa and in absolute agony. She has been told for years that this is normal and that there is nothing wrong. She had to fight repeatedly to get the diagnostic surgery that she needed, which confirmed that she has endometriosis. It is a very common story, and it is completely outrageous that people are told that crippling pain, meaning that they cannot get off the sofa, is just a normal cycle.

[Liz Jarvis]

I thank my hon. Friend for his important point. Women should not have to fight to get the treatment they need. I have also heard from Kelly, who told me:

“Every month I am in debilitating pain and it is soul destroying. I cannot take days off work every month and there is nothing I can do but suffer. It affects my work, relationships and is ruining my life.”

Then there is Lucy, who has worked in the NHS for 20 years and is now a clinical nurse specialist for endometriosis. She told me:

“I grew up during a time when endometriosis was never mentioned. I was told that periods are painful, so the monthly debilitating pain and heavy periods I experienced were normalised.”

She was finally diagnosed with endometriosis in her mid-30s.

Women should not have to put up with the pain of this debilitating disease, and I urge the Government to take urgent action to tackle the postcode lottery for endometriosis care, address gynaecological waiting lists, improve training and awareness among healthcare professionals, and ensure full implementation of NICE guidelines, with clear referral pathways, so that no woman has to suffer for years without answers or support.

I am sure the Minister agrees that addressing delays in diagnosis, gaps in care and inequalities in access are of the utmost importance. More broadly, this debate highlights a wider crisis in women’s healthcare—from the scandal of unsafe maternity units to the nearly 750,000 women currently on gynaecology waiting lists, over 30% of whom have waited for more than a year from referral to treatment. It must be addressed, because women are being failed and society suffers as a result.

I hope the Minister also agrees that access to mental healthcare should be expanded for women with endometriosis. Dismissed symptoms and diagnosis delays left 98% of respondents to an Endometriosis UK survey reporting an impact on their mental health, and 63% of respondents describing that impact as significant. I hope that the Minister will consider expanding mental healthcare provision to give the countless women dealing with the psychological toll of endometriosis the support that they need. We need a system that is fit for purpose, which validates women, takes their symptoms seriously and provides timely, compassionate and effective care. I do not think that that is too much to ask.

Alongside investment in the workforce, improved access to GPs, continuity of care and a step change in research to address painful conditions that women have suffered from for far too long without remedy, are all absolutely essential.

Ultimately, this debate is about delivering better outcomes and proper support for those affected by endometriosis. I hope that the Government will tackle this issue, showing clear leadership and transparency, to ensure that every woman with endometriosis has access to the right care at the right time.