Children and Young People with Cancer

Lisa Smart Excerpts

Wednesday 8th January 2025 Westminster Hall

[Clive Jones]

The hon. Member is absolutely right: we could save the NHS a lot of money, because a lot of appointments will be cancelled because people are getting used to the fact that their child has cancer, and that they have to make alternative arrangements in order to take them to the hospital where they will be treated. If they were able to get a payment straightaway, that would save the NHS money in the long term. The money that it might cost to make those payments could be recouped further down the line, so the hon. Member is absolutely right.

[Lisa Smart (Hazel Grove) (LD)]

I am grateful to my hon. Friend for securing today’s debate. He mentioned the impact of investing early and of people being able to qualify for payments from day one. Does he agree with me and with Teach Cancer a Lesson, a charity set up by one of my Hazel Grove constituents in Mellor, about the impact of ensuring that education continues when children have a cancer diagnosis? Teach Cancer a Lesson talks about making sure that local authorities have a responsibility to review the education provision for a child on day one, or within 28 days of a cancer diagnosis. Does my hon. Friend agree that the same principle applies—that it costs far less in the long term, in educational terms, if that review is done early, rather than waiting and waiting and allowing a child’s education to suffer?

[Clive Jones]

My hon. Friend is absolutely right. If a child can try to have a normal life, which includes still going to school, seeing their friends and being educated, that will help them and their family to cope with their treatment. Schools and local authorities should work hard to ensure a normal life for that child very quickly.

One family supported by Young Lives vs Cancer received their first DLA payment only in January, after their child was diagnosed in July. In another case, a delay of four months from the start of a DLA application meant that a young cancer patient’s mother was left with no financial support, because her statutory sick pay ended before the DLA started. How the Government expect people to manage with those extra costs is beyond me.

This is the very worst form of bureaucratic inflexibility, and it leads to some people not applying for benefits because they see a system stacked against them, quite apart from the burden of applying during the most disruptive time of their lives. People are not going to prioritise form filling when they or their child needs radiotherapy. The process takes so long that sometimes children and young people have either finished their treatment or, most concerningly, passed away before the benefits have been awarded. A child being treated in Leicester sadly died before a DLA decision was made, leaving their family to go through the challenging conversation of wanting the claim form still to be reviewed because the family were owed a back payment. That is unacceptable.

The Minister responded to a parliamentary question by arguing that those nearing the end of life can apply for special rules. However, this simply does not work very well, because situations can change quickly and some who are not terminally ill can rapidly deteriorate. Some may still receive potentially curative treatment even if the risk of death is high, or some may wish not to know their prognosis. The Minister needs to urgently assess the benefits of changing to a medical evidence-based eligibility for these patients.

There is a precedent for medical evidence being used to expedite access to benefits. The existing special rules process for those with terminal illness definitions means that they do not need to meet the three-month qualifying period with medical evidence. That principle should be applied to all children and young people with cancer, to facilitate immediate access to benefits.