Covid-19: Disability-Inclusive Response

Lisa Cameron Excerpts

Thursday 15th October 2020 Westminster Hall

[Dr Lisa Cameron (East Kilbride, Strathaven and Lesmahagow) (SNP)]

I beg to move,

That this House has considered a disability inclusive covid-19 response.

It is an absolute honour to serve under your chairmanship, Mr Rosindell. I thank the many Members who have been in touch with me all week and have dedicated their time today to speak in the debate. I declare my interest as chair of the all-party parliamentary group for disability, and I thank the organisations that have been in touch and that have supported people with disabilities across the United Kingdom during the pandemic. They include Disability Rights UK, Inclusion Scotland, Sense, Scope, Mencap, Leonard Cheshire, Care England, Age UK and Disability at Work, just to name a few.

Some 14 million people live with a disability in the United Kingdom. Although people with disabilities make up the largest minority group in the country, they have reported feeling largely forgotten in this time of crisis. In many ways, they have been the invisible victims of the coronavirus pandemic across the UK. Tragically, people with disabilities have accounted for six out of 10 deaths involving covid-19.

It is clear that the pandemic has had a disproportionate impact on people with disabilities, and the all-party parliamentary group for disability therefore sent an open letter to the Prime Minister in April of this year. It has since been signed by more than 100 MPs and peers of different parties. It called for five things. First, it called for Government guidance and restrictions to be communicated in a way that is accessible to people with disabilities. Secondly, it called for social distancing measures to be mindful of people with disabilities who need exemptions. Thirdly, it called on the Government to provide clear guidance on the implications of changes to the Care Act 2014 under the covid-19 legislation. Fourthly, it asked the Government to meet the needs of disabled people in the allocation of additional funding, training and personal protective equipment provision throughout the pandemic. Fifthly, it requested that the Government place people with disabilities at the very heart of their economic recovery plan.

It is very difficult to overestimate the disruptive impact that the covid-19 restrictions, which were implemented with little or no notice, have had on the lives of many people with disabilities. The restrictions have fundamentally affected not just whether people can go out socially with friends but whether the care services that many rely on day in, day out, are available to them. Some 75% of unpaid carers have reported receiving no information about support and care being reduced prior to that happening.

I am sure hon. Members would agree that it is of grave importance to ensure that Government guidance, communications and changes regarding the restrictions that we face are accessible for those with disabilities. All televised Government press conferences should, therefore, be interpreted live via British Sign Language and should have televised subtitles as standard. All Government communications about new guidance and policies must be created in accessible formats.

More and more, we rely on mobile devices, although I am quite technologically challenged in many ways. These devices, which we rely on so heavily, should now incorporate disability functionality and accessibility into their design. These issues must be researched and taken forward quickly.

This pandemic, as we know, is not going away. Communications must be improved at all levels of government, including local government. Will the Minister build an inclusive approach to communications and involve people with disabilities in the communications strategy?

Regarding restrictions, a survey conducted in April by the Office for National Statistics found that nearly nine out of 10 disabled adults expressed concern about the effect of the pandemic on their lives and their levels of isolation. Many have found it difficult to build confidence to go out, particularly after shielding for so many months. Some 42% of disabled people have reported feeling lonely or isolated due to the pandemic, and 41% of those interviewed by Scope believe that life will become worse for them over the long term.

Sense’s “Forgotten Families” campaign has demonstrated that the health and wellbeing of disabled adults and their family members has been adversely affected by this pandemic. It is vital that people have confidence to go back out into the community within safe restrictions given by Government.

Individuals with health conditions and disabilities are often exempt from wearing face masks. However, as chair of the all-party parliamentary group for disability, I have received numerous reports from people with disabilities across the UK who tell me that they have been verbally abused or harassed in the community because they were not wearing a face mask. They have since lost all confidence to go out. Will the Minister support a public awareness campaign about these exemptions and standardise techniques, such as the accessibility of lanyards for people with disabilities or those who may be exempt in a wider group, so that they can go outside with confidence in a safe way, and never again feel the need to justify and explain themselves or deal with harassment?

It would be remiss of me not to highlight the significant consequences of the Coronavirus Act 2020 on the health and care provisions afforded to people with disabilities over the past six months. One service user from Inclusion Scotland described their situation:

“I have gone from 20 hours of care… to ZERO. I am now bedbound completely because of this.”

Another said,

“I am so lonely and feel so depressed. I feel suicidal.”

Research by Leonard Cheshire shows that 55% of disabled people in receipt of social care have experienced changes to their care packages since April and 18% reported difficulties in even accessing food. Action is, therefore, desperately needed to support disabled people and their families to recover from the impact of lockdown. Testing will be fundamental to that, in terms of management in non-community settings; perhaps designating one person per resident as a special visitor in care home accommodation would increase vital contact with family. I would be obliged if the Minister could look at that issue.

The Government must commit to switching off the Care Act easements as soon as it is safely possible and provide reassurance that the high bar set in these easements will not become the new normal in terms of social care for those with disabilities across the UK.

To conclude, I would like to highlight the importance of an inclusive economic recovery plan in education, employment, business and beyond. This is an immense opportunity in many ways for disability inclusion in employment practices across the UK, and to develop strategies to help disabled people start their own businesses and become entrepreneurs.

However, I must begin with a word of caution. Analysis by Disability at Work shows that, historically, disabled people have been disproportionately impacted by economic downturns, in terms of new employment and redundancy. It is therefore vital that inclusion is a core element in the build back better plans that the Government are developing. However, I was incredibly disappointed that the Government’s plan for jobs, which was published recently, mentioned disability only once. I am sure the Minister will highlight that to his Cabinet colleagues to ensure that disability is a priority and retains the status that it should have.

The all-party parliamentary group for disability made several recommendations about employment and preventing people with disabilities from losing their jobs and livelihoods as a result of the long-term consequences of this pandemic. We are asking the Government to monitor and regularly publish data on disability prevalence. Beyond that, we have long recommended that they take steps towards introducing mandatory reporting of employers’ performance on disability inclusion in the workplace. We believe it is vital to make kickstart available to disabled candidates by guaranteeing funding for reasonable adjustments through the Access to Work scheme, but that must be done in a timely manner. We must better promote and fund Access to Work so that it can widen the support that it gives, as it has helped many people into work and to remain in work as disabilities arise.

We believe that there must be a review of the impact and promotion of home working, which might offer flexibility for people with disabilities and help them into employment. The Government should consider introducing a new support scheme or extending furlough for those who are at high risk due to health issues and are unable to return to work safely when furlough comes to an end.

We believe that it is absolutely vital that we change the narrative on entrepreneurship. People with disabilities are pigeonholed unfairly into single issues by the Department for Work and Pensions. There should be a great harnessing of potential, skills and ability. We support self-employment and entrepreneurship among disabled people. I recommend that hon. Members join the new all-party parliamentary group for inclusive entrepreneurship, which has been set up to maximise those ends.

Many hon. Members wish to speak, so I will finish in a moment. I have not been able to touch on education or many of the other areas affected, but I hope other hon. Members will be able to lend their voices to those issues. I agree with the World Health Organisation director general Tedros Adhanom Ghebreyesus, who said that those with disabilities

“must not be left behind”

in the covid-19 response. We must ensure that that is undertaken domestically and internationally. I understand that the Minister will not be able to respond on behalf of all his Cabinet colleagues, but I want to reiterate that UK aid should be supporting people with disabilities internationally. We must have a leadership role in the aim of leaving no one behind and meeting the sustainable development goals. We must show true leadership in the UK and beyond.

I am asking the Minister to cover a wide base, and I realise that he will have to speak to his colleagues in order to do that. I thank everyone who has come to the debate, which has wide, cross-party support. I look forward to hearing people’s thoughts, ideas and recommendations. I hope we can have a consensual debate that highlights the great support that people from across parties and across the United Kingdom have for people with disabilities. It is important that we prioritise and support their needs.

[Andrew Rosindell (in the Chair)]

We are quite short of time, so I ask colleagues to keep their remarks to four minutes or four and a half minutes—

--- Later in debate ---

[Dr Cameron]

I thank all hon. Members on both sides of the House who took part in this excellent debate. I thank the Minister and shadow Minister for their heartening responses. We all wish to ensure that disabled people are at the heart of strategy moving forward. For the hon. Member for St Albans (Daisy Cooper), the APPG for disability will be taking forward an inquiry into access to parliamentary offices.

Motion lapsed (Standing Order No. 10(6)).