Invisible Disabilities and Accessibility Challenges

Lisa Cameron Excerpts

Wednesday 5th June 2019 Commons Chamber

[Martin Whitfield]

My hon. Friend anticipates, as he so often wisely does, where my speech is going on street furniture and people with sight problems, and on the availability of toilets and facilities generally across the United Kingdom.

Yesterday I was delighted to meet the British Standards Institution, which supports the establishment of inclusive signage. Understandably, the process of standardisation is rigorous, and it is fair to say that it perhaps does not lend itself to political timetables. I am under no illusion. This is a long-term project, and there are a number of barriers that stand in the way.

Of course, because of parliamentary convention, I cannot explicitly show hon. Members the symbol. However, I am happy to preview the design after the debate. The “any disability” symbol depicts a range of disabilities, both visible and invisible, and it can be accompanied by text saying, “For people with any disability.” This is a profoundly important message that strikes at the heart of the campaign.

The nucleus of the campaign that Grace started those years ago is about changing the perception of what disability looks like. It strikes at the heart of how we define a disability. There are 13.3 million disabled people in the UK—21% of the population. If we examine the figures more closely, they reveal that 25% of those who are disabled report a mental health impairment and a further 18% have other non-visible conditions, yet I worry that what it means to be disabled is still not properly understood.

[Dr Lisa Cameron (East Kilbride, Strathaven and Lesmahagow) (SNP)]

The hon. Gentleman is making an excellent speech on such an important issue. As chair of the all-party parliamentary group on disability, I was approached before this debate by a number of individuals who would like me to point out that those with an autistic spectrum disorder are often overlooked or badly understood by members of the public, and such disorders are certainly not noted as a disability because they are not visible. As I know because my husband suffered a head injury while serving in the Army, head injuries can cause cognitive processing difficulties, and so on, that are not obvious. This signage is great work, and it will aid understanding of the whole range of disabilities and impairments.

[Martin Whitfield]

The hon. Lady raises a most profound and important point: people’s understanding of disability is influenced more by their personal experience than by what society brings together as to what it is to be disabled.

The figures show that those with non-visible disabilities suffer an unfair double attack. What sits at the heart of Grace’s campaign about having a heart and of what we hope to achieve here today and in the future is making that playing field more level and fairer. I worry about a misunderstanding of what amounts to “a disability”. Crohn’s and Colitis UK, which is leading the way in trying to change perceptions about this issue, has undertaken a huge amount of research, which shows that 93% of people think that if they challenge someone who looks healthy for using an accessible toilet, they are “standing up” for the “rights of disabled people” or doing this because the situation is not “fair” on others. One noticeable aspect of this debate is that I do not think many of the people who took part in that survey answered maliciously; they genuinely feel they are doing the right thing by pointing out to someone they do not think is disabled that they are doing the wrong thing. Their first thought is, “I want to stand up for people who are marginalised in society, those who rightly deserve full accessibility rights”. This instinctive reaction to what people believe a disability “looks like” needs to be challenged.

It is worth noting that the false perceptions of what constitutes a disability have a profound effect on the individual’s mental health. In preparing for this debate, I have been made aware of some incredibly upsetting cases of abuse directed at disabled people who have been queueing for accessible toilets or trying to use a parking bay. Further research by Crohn’s and Colitis UK shows that two thirds of people with Crohn’s or colitis have experienced an accident while they have been queuing to use a toilet, and they have, in turn, received abuse for that. Almost half say that they will change their attitude to social spaces such as restaurants because of their condition. That is just wrong, in this society; it is a damning picture of the everyday experience that disabled people suffer.

I was struck recently by an article on the impact of invisible illnesses by how hurtful people’s perceptions are. The piece noted what just an everyday misconception associated with a disability can do. We are talking about the idea, “You can’t be sick because you look so well.” There is a misconceived image of what it looks like to have one of these illnesses, and things start with a tiny casual gesture or throwaway line but then quickly evolve into something far more pernicious.