Dementia Care

Linsey Farnsworth Excerpts

Tuesday 3rd June 2025 Commons Chamber

[Linsey Farnsworth (Amber Valley) (Lab)]

I thank the hon. Member for South Devon (Caroline Voaden) for securing this most important of debates. Dementia care is a subject incredibly close to my heart and that of many of my Amber Valley constituents who write to me. Any hon. Members who were present when I made my maiden speech may recall my speaking about my dad, David Farnsworth. Once an extremely talkative man, sadly, like that of so many others, dementia has taken his voice.

With that in mind, it is incumbent on me and other hon. Members to use our voices in this place to advocate for much-needed improvements to dementia care. That must start with increased diagnosis. Alzheimer’s UK is rightly calling on the Government to improve dementia diagnosis rates and set ambitious targets for the future. NHS statistics show that diagnosis rates, as of July 2024, were 65%, so a third of people living with dementia across the UK still do not have a diagnosis, meaning they are missing out on the vital care support and symptomatic treatment it can bring.

The picture is particularly bad for the 70,800 people in the UK who are estimated to have young-onset dementia, where symptoms develop before the age of 65. Getting a diagnosis can take twice as long as for older people. My father-in-law, Michael Spare, was diagnosed with dementia at the age of 64. My mother-in-law, Yvonne, recalls how hard it was to get a diagnosis and to be taken seriously, despite them both knowing that there was a problem. Dementia UK advocates for the Government to mandate every integrated care system to develop a young-onset dementia pathway to include providing timely and accurate diagnosis. I wholeheartedly support that.

When my dad was diagnosed with dementia in 2018, my family and I were frightened. At the time I had a colleague, Sue, who had gone through this with her mother. She was kind enough to give me some advice: try not to focus on what you have lost; celebrate what you can still share and enjoy together. I remembered that advice recently when my step-mum, Kate, started the engine of my dad’s beloved classic car. His face lit up at the sound. Somewhere deep inside, he remembers the joy that restoring his Triumph Spitfire brought him over many years.

Not everyone will have someone like Sue to talk to and living with dementia can be very lonely. For those people, Admiral nurses, employed by Dementia UK, can be a godsend. They provide an invaluable service to families confronting or navigating the reality of living with dementia. I recently had the pleasure of meeting Kath Hunt, who works at the Ripley branch of Nationwide building society. Nationwide has been partnering Dementia UK to offer free appointments with Admiral nurses in high street branches across the country, including in Ripley. Sadly, there are far too few Admiral nurses and, while I am thankful that the scheme exists, it should not fall to partnerships like this for families to get support. Dementia UK recommends that Admiral or specialist nurses should be core members of multidisciplinary neighbourhood health centres to provide vital care in the community. I wholeheartedly support that recommendation.

Admiral and specialist dementia nurses can also be hospital-based, but they are few and far between. When my dad was hospitalised for an infection unrelated to his dementia, he was put on a general ward. He was so ill, we thought he would never get out of bed. Several weeks into his hospitalisation, I saw a nurse perform what seemed a miracle. He was able to get my dad to engage and even got him to stand up. Amazed, I asked how this could be. He explained that he usually worked on the dementia ward. It was his expert skills and knowledge rather than a miracle that made the difference, but the nurse was certainly an angel in my eyes. Dementia UK is demanding that the Government commit ringfenced funding for a dementia specialist nurse service within each NHS acute trust, and Age UK is calling for urgent improvements to staff training in hospitals to ensure people with dementia have their needs fully met. I support both measures.

My dad is now at home and is looked after by my step-mum Kate and my brother Bradd Farnsworth, supported by visiting carers. I recently asked whether they had had specialist training for caring for people with dementia. They had not, but said they would find it useful. They are not alone. Despite people living with dementia making up 70% of residents of older age residential care and 60% of people drawing on care at home, around 29% of social care staff have no record of dementia training. I am calling for mandatory training for social care staff, in line with the dementia training standards framework, which is absolutely essential, and I will continue to campaign for that.

With the 10-year health plan for England due, this is a key moment. It is vital that improving dementia care is included in the NHS reforms, and I implore the Government not to pass up the opportunity to fix dementia care at long last.