(5 days, 15 hours ago)
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I agree that we should commend such charities. The hon. Gentleman shows moral clarity in rightly saying that the Government have an obligation to support families going through this incredibly difficult time.
Research shows that all the factors I have described mean that families are on a difficult footing even before facing the additional pressures of caring for a seriously ill child. When families need extra support during such challenging times, they are often met with bureaucratic hurdles that only add to their mental and financial stress. To access disability living allowance, parents face a 90-day waiting period, a daunting 40-page application form and long waits for responses. Universal credit and shared parental leave are unsuitable options for too many parents in this situation, as the rigid eligibility criteria mean that many parents of seriously ill children simply do not qualify.
My constituent Vicky came to my constituency surgery and spoke about Hugh’s law and how she had to take time off to look after her son, who has thankfully recovered. Does my hon. Friend agree that the £750 grant would provide certainty and help parents, by stopping the rigmarole of going through universal credit and those sorts of things? Would the grant help?
I absolutely agree with my hon. Friend. I encourage the Minister to reflect on the fact that all the evidence we hear from It’s Never You shows that this very real problem is impacting families right across the country.
The systems that are in place were not designed to accommodate the urgent and unpredictable nature of childhood illness. Studies have shown that delays in financial support during critical life events significantly increase psychological stress and deepen financial instability. Research published in the Journal of Pediatric Psychology found that economic insecurity heightens parental stress, which can in turn hinder a family’s ability to provide the best possible care for their child.