Asked by: Kirsteen Sullivan (Labour (Co-op) - Bathgate and Linlithgow)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if he will review the status of endometriosis as a possible condition for the NHS outcomes and registry programme.
Answered by Zubir Ahmed - Parliamentary Under-Secretary (Department of Health and Social Care)
The NHS England Outcomes and Registries Programme (ORP) was set up to collate device level information that is not easily accessible elsewhere, with the aim of improving patient safety and device recall procedures.
There has recently been an expansion of this data platform to receive non-device-related data in exceptional circumstances, prioritising registry support to clinical services where there are gaps or existing data would otherwise be lost. As endometriosis can be identified through existing means, such as diagnostic coding, we have no plans to bring it in scope of the ORP at this time.
Asked by: Kirsteen Sullivan (Labour (Co-op) - Bathgate and Linlithgow)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of endometriosis healthcare services on the waiting times for receiving such services in the past year.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
Reducing waiting lists, including for endometriosis and other gynaecological conditions, is a key part of the Government’s Health Mission. We are committed to returning to the National Health Service constitutional standard that 92% of patients wait no longer than 18 weeks from referral to consultant-led treatment by March 2029. As of the end of December 2025, the gynaecology waiting list stands at 577,232, with 57.3% of patient pathways waiting less than 18 weeks, an improvement of 1.9% since December 2024.
We know there is more to do to improve access to endometriosis care and waiting times against the 18-week standard. We are expanding the number of dedicated and protected surgical hubs, of which gynaecology procedures are a key offering, and commissioning research focussed on endometriosis diagnosis, treatment, and pain. We are also introducing an “online hospital”, NHS Online, which from 2027 will provide additional appointments to cut waiting times for certain pathways. This includes people who are experiencing menstrual problems, a potential sign of endometriosis, who will be given the choice of receiving at least some of their specialist care from the convenience of their own home. Across all specialities, NHS Online will deliver the equivalent of up to 8.5 million appointments and assessments in its first three years, four times more than an average trust.
We are improving the standards of care for women with severe endometriosis by ensuring specialist endometriosis services have access to the most up-to-date evidence and advice on diagnosis and treatment. In 2025, the National Institute for Health and Care Excellence approved two new pills to treat endometriosis, Relugolix and Linzagolix. Both are estimated to help approximately 1,000 women with severe endometriosis.
Asked by: Kirsteen Sullivan (Labour (Co-op) - Bathgate and Linlithgow)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what progress he has made on reducing gynaecological waiting times in the last year.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
We are committed to returning to the National Health Service constitutional standard that 92% of patients are treated within 18 weeks of referral to consultant-led care, including gynaecology, by March 2029. As of the end of December 2025, the waiting list for gynaecology services stood at 577,232. Of these patient pathways, 57.3% were waiting within 18 weeks. This an improvement from December 2024 where the waiting list for gynaecology services was 586,202, 55.4% of which were within 18 weeks.
There is clearly more progress to be made. The Government will continue to develop innovative models of care in the community, including piloting gynaecology pathways in community diagnostic centres for patients with post-menopausal bleeding, and increasing the relative funding available to incentivise providers to take on more gynaecology procedures.
We are committed to expanding the number of surgical hubs, which provide valuable and protected capacity across elective specialities, including gynaecology. Currently, over half of the 125 operational elective surgical hubs in England provide gynaecology services.
We are also introducing an “online hospital”, NHS Online, which aims to provide additional appointments to cut waiting times. From 2027, people on certain pathways, including severe menopause symptoms and menstrual problems that may be a sign of endometriosis or fibroids, will have the choice of being referred to NHS Online to receive at least some of the specialist care they need from the convenience of their home.
Asked by: Kirsteen Sullivan (Labour (Co-op) - Bathgate and Linlithgow)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if he will take steps to increase awareness among healthcare professionals that endometriosis is a (a) long-term and (b) chronic condition, as recommended by the National Confidential Enquiry into Patient Outcome and Death.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The Government recognises the challenges faced by women with endometriosis and the impact it has on their lives, their relationships and their participation in education and the workforce.
The General Medical Council has introduced the Medical Licensing Assessment to encourage a better understanding of common women’s health problems among all doctors as they start their careers in the UK. The content map for this assessment includes several topics relating to women’s health including endometriosis. This will encourage a better understanding of common women’s health problems among all doctors as they start their careers in the United Kingdom. Endometriosis is also included in the core curriculum for trainee GPs, and for obstetricians and gynaecologists.
The National Institute for Health and Care Excellence (NICE) is the independent body responsible for developing evidence-based guidance for the health and care system. In November 2024, NICE updated their guidance on endometriosis. This makes firmer recommendations for healthcare professionals on referral and investigations for women with suspected diagnosis, and will help the estimated 1 in 10 women with endometriosis receive a diagnosis faster.
The updated NICE guidance is available at the following link:
https://www.nice.org.uk/guidance/NG73
Asked by: Kirsteen Sullivan (Labour (Co-op) - Bathgate and Linlithgow)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if he will have discussions with (a) Endometriosis UK and (b) other relevant stakeholders on the implementation of the 10 Year Health Plan to ensure it supports people with endometriosis.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The Government recognises the challenges faced by women with endometriosis and the impact it has on their lives, their relationships and their participation in education and the workforce.
We are committed to prioritising women’s health. Through our 10-Year Health Plan, we are delivering our manifesto commitment that never again will women’s health be neglected.
To develop the Plan, we had the biggest ever conversation on the future of the NHS with over a quarter of a million contributions from the public, staff, patient groups and charities including Endometriosis UK.
The Government and the National Health Service continue to work with the public, staff and partners to deliver the 10-Year Health Plan. We will establish stakeholder groups to steer implementation, and advisory input will be sought from expert committees where needed.
Asked by: Kirsteen Sullivan (Labour (Co-op) - Bathgate and Linlithgow)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether he plans to (a) review endometriosis classification as an acute illness and (b) introduce long-term care plans for endometriosis patients.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The Government recognises the challenges faced by women with endometriosis and the impact it has on their lives. The National Institute for Health and Care Excellence guideline on endometriosis diagnosis and management recognises that endometriosis can be a long-term condition, and can have a significant physical, sexual, psychological and social impact. Women may have complex needs and require long-term support.
Many integrated care boards are taking an innovative approach to endometriosis care. For example, in the North East and West of England there is the endometriosis transformation programme. This programme is addressing long waits for patients with severe endometriosis and improving patient pathways, from presentation in general practice through to management in secondary care.
Asked by: Kirsteen Sullivan (Labour (Co-op) - Bathgate and Linlithgow)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what data his Department holds on the amount of theatre time provided to gynaecology in comparison to other specialties; and in what way this has changed since the Covid-19 pandemic.
Answered by Karin Smyth - Minister of State (Department of Health and Social Care)
The data requested is not held by the Department.
Asked by: Kirsteen Sullivan (Labour (Co-op) - Bathgate and Linlithgow)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether he has had discussions with healthcare stakeholders on steps to improve Lobular cancer (a) diagnostics and (b) research funding.
Answered by Andrew Gwynne
Following publication of the 10-Year Health Plan later this year, we will develop a new national cancer plan. The cancer plan will include more details about how to improve outcomes for all tumour types, including lobular breast cancer. We plan to engage with a wide range of cancer partners on the national cancer plan, including charities and patient representative bodies.