Career Breaks: Parents of Seriously Ill Children

Kevin McKenna Excerpts

Monday 3rd February 2025 Westminster Hall

[Clive Jones (Wokingham) (LD)]

It is a pleasure to serve under your chairship, Ms Vaz. I extend my thanks to the hon. Member for Keighley and Ilkley (Robbie Moore) for opening the debate so eloquently.

Like so many others in this debate, I want to start by acknowledging Christina’s heartbreaking story. Receiving my cancer diagnosis was hard; it changed my life and the lives of family members. Although it was happening to me, it had an equal or greater effect on my two teenage daughters. I just cannot imagine having those roles reversed—that must be very, very difficult. My Liberal Democrat colleagues and I send our sincerest hopes and best wishes for a full recovery to Skye. I am so pleased that she has had the opportunity to ring the bell.

The emotional turmoil that Christina and her wider family must have gone through in those first few hours, weeks and months is unimaginable. Yet through all that she has campaigned to correct an injustice and ensure that people receive better support than she did. That is selfless and brave. She has identified a real problem that exists in our society, which is that families of chronically ill children are not adequately supported by the Government. Families are forced to stop focusing exclusively on their child and instead stress about finances from day one.

A cancer diagnosis introduces new, unavoidable costs, from transport and energy to food and accommodation, which Young Lives vs Cancer predicts costs an average extra £700 a month on top of household incomes falling by an average of £6,000 a year. Although there are options such as taking sick leave, compassionate leave or reducing working hours, those eventually become exhausted, and not everybody can take them up. Those provisions are not intended to be used when someone has an unwell child. The losses in income and steps taken to try to juggle work and caring come despite there being a social security system. It is a distinctly difficult experience to navigate, and the existing support available is just not enough.

There are numerous problems with the existing system that categorically mean that it does not work. The three-month qualifying period that young cancer patients go through leaves families waiting for support after diagnosis, incurring an average of £2,000 in additional cancer-related costs and losing an average of £1,500 to £2,500 of household income before they can even apply for any support. Some families have to remortgage their house because the costs have been overwhelming. Research from Young Lives vs Cancer also highlights that nearly half of parents could not access flexible working arrangements, and three in five parents felt they had to go back to work before they were ready. Many will have found that extremely stressful, and that is why I support the campaign for Hugh’s law. There needs to be some form of day-one financial support for parents, instead of them having to battle through bureaucracy and impossible choices.

There is a precedent for providing that support. When a child is born, parents who stop working to care for newborns receive financial support through maternity leave. The Neonatal Care (Leave and Pay) Act 2023 provides parents of sick newborns with up to 12 weeks’ paid leave in addition to maternity or paternity leave. Why should it be different for those parents who need to stay with their seriously ill child who is no longer a small baby? I call on the Government to look further into the proposals set forward in the petition and to refer them back to the House so that their full merits can be debated.

Throughout this debate, Members have said that the United Kingdom needs to thoroughly modernise its employment rights and improve workplace protections that would benefit parents of seriously ill children. The Liberal Democrats have led the way on that debate—not this particular one, but the overall debate. My hon. Friend the Member for North East Fife (Wendy Chamberlain) introduced the Carer’s Leave Act 2023, which created an entitlement for employees to be absent from work on unpaid leave to provide or arrange care for a dependant with a long-term care need.

Unpaid carers are the backbone of our society. Millions of people care for loved ones, doing everything involved in day-to-day physical caring, including washing, dressing and feeding, yet far too many unpaid carers go without adequate support and struggle to balance caring responsibilities and work. Many people across the country have made the difficult decision to leave their jobs because they simply cannot make it work. I am proud that the Carer’s Leave Act provided greater support and the flexibility that people need. Let us also be clear that those changes benefit employers as well, leading to reduced recruitment costs and improved retention and wellbeing.

[Kevin McKenna (Sittingbourne and Sheppey) (Lab)]

I thank the hon. Member for Keighley and Ilkley (Robbie Moore) for introducing this debate. Demelza hospice in my constituency of Sittingbourne and Sheppey has come to me a lot on this issue. When it comes to employers, the interactions between employment and health and wellbeing are complicated and multifaceted. Some of the things that parents, or any worker, get from their employment include structure, relationships, support in the workplace and a sense of wellbeing. How does the hon. Member for Wokingham (Clive Jones) envisage juggling those dynamics, so that people do not lose all the benefits they get from employment and employers? They include not just the financial benefits, but the wider package—where people sit in society and how they operate in their day-to-day lives. Some of these conditions last a long time, so there is obviously a danger of them losing those connections with the workplace, as well as their acuity in the work space.

[Clive Jones]

The hon. Gentleman is absolutely right. Where somebody is off work for quite a long time, they will need the support of their employer. Very often, they could have been working for that for quite some time, so they have built up a history with them, and 99.9% of the time it will be a good history. They should be supported, but the Government have to help with that; it cannot just fall on the employer, especially over an extended period.

I would like to know what steps the Government are taking to encourage employers to do the right thing and offer career breaks. Will the Government review the proposal in the petition and come back to the House with a debate to discuss its merits? What additional support are they considering offering the families of seriously ill children?