Keith Vaz
Main Page: Keith Vaz (Labour - Leicester East)
Keith Vaz (Leicester East) (Lab)
It is a pleasure to follow the hon. Member for North Devon (Sir Nick Harvey). The 500 signatures on my petition should be added to the 30,000 signatures on his. I was approached by my constituent, Trevor Murby, of Abbots Road, Leicester, because his grandson, Finley Murby, was having great difficulty in accessing this drug. As a result of the work of Trevor Murby and so many other people involved in the campaign, he was able to get the drugs that he needed. I concur with the hon. Gentleman that it is really important that everyone who needs this drug has access to it and that action is taken immediately to help those who are disadvantaged.
Following is the full text of the petition:
[The Petition of Mr T Murby and Mr Finley Murby Trustee Officers of aHUSUK,
Declares that aHUS patients should be given access to Eculizumab when they need it, without delay, and not be disadvantaged by the Ministers’ decision not to implement the AGNSS recommendation ahead of a review by NICE.
The Petitioners therefore request that the House of Commons issues instructions to the NHS CB to take such action, whilst waiting for NICE's decision.
And the Petitioners remain, etc.]
[P001177]