Childhood Cancer Outcomes

Debate between Justin Tomlinson and Caroline Nokes

Tuesday 26th April 2022 Commons Chamber

[Caroline Nokes (Romsey and Southampton North) (Con)]

With a all the moving stories, this is a difficult debate to listen to, but I congratulate my near neighbour, my hon. Friend the Member for Gosport (Dame Caroline Dinenage), on securing it. Hampshire is a small community, so it can be no surprise that nurses who treated Sophie live in Romsey and Southampton North and that her family have friends who live in my constituency. I have heard from them about Sophie’s bucket list and what her mother Charlotte wants to secure for children suffering from cancer, and that very much echoes comments made to me by my constituent Jane O’Brien, who lost her son George to teenage cancer some years ago. The O’Brien family have dedicated their time to setting up George’s trust, to raising funds to bring the first ever teenage cancer unit to Southampton General Hospital and to raising funds for the world-leading immunology centre in Southampton. Of course, we have heard today that too little of that research and money goes to childhood cancers, which are not as rare as we would like to hope.

George’s family have made a really important point to me about when he was diagnosed. When he went to the doctor’s surgery on the Tuesday, nobody recognised how serious his symptoms were. He died on the Friday, a matter of days later, but they felt strongly that the support was not there for them as a family. They did know what George had died of. They were not given the same level of support and assistance that other bereaved families might have received in similar circumstances.

[Justin Tomlinson (North Swindon) (Con)]

My right hon. Friend is making a typically powerful speech and she makes a key point. We must be better at linking up parents so that they have crucial peer-to-peer support as they go through the unimaginable horrors they face in such situations.

[Caroline Nokes]

That is a really important point, not just for parents but for the wider family and siblings who also need such help.

When I was a very new MP, I remember being contacted by my constituent Pip Armitage, who came to see me with Sacha Langton-Gilkes—the most amazing woman—to talk about the charity HeadSmart. They made a point that we have heard several times in the Chamber: we need a joined-up strategy and public awareness. We have heard about the meningitis campaign that has seen hugely improved awareness among families, parents and the medical profession and enables the condition to be identified early. In George’s case and that of too many childhood cancer victims, the condition is diagnosed too late because GPs do not have the awareness and the family do not know what signs to look for.

Sacha ran the most phenomenal campaign to put awareness cards, particularly on brain tumours, into schools and local authorities, and that was really effective. As part of the children’s cancer mission that my hon. Friend the Member for Gosport is rightly calling for, we need to have that same level of public awareness campaigning on childhood cancers. We need better referral guidelines for doctors, so that doctors such as George’s GP, who I levy no criticism at, spot the signs and refer children quickly and efficiently to the brilliant hospitals that are there to treat them.

This is such a crucial subject. As we can see this afternoon, there is enormous cross-party support for something to be done. I know that the Minister is listening hard and I look forward to what she will propose.

Covronavirus, Disability and Access to Services

Debate between Justin Tomlinson and Caroline Nokes

Thursday 15th April 2021 Westminster Hall

[The Minister for Disabled People, Health and Work (Justin Tomlinson)]

It is a pleasure to serve under your chairmanship, Sir Graham. I, too, want to put on record my personal tribute to Cheryl Gillan—a sad loss. No parliamentarian did more to champion the rights and opportunities of those with autism, and it was a great pleasure for me as the Minister for Disabled People to meet and work with her, and respond to her comprehensive, proactive and constructive letters, asks and challenges. With my ministerial hat on, I would say that her greatest legacy is how much she achieved for those who were reliant on having that strong voice in Parliament.

I thank my right hon. Friend the Member for Romsey and Southampton North (Caroline Nokes) who not only spoke passionately in the debate but has, through her excellent chairmanship of the Women and Equalities Committee, held the Government and the whole of Parliament to account on a number of serious issues. She is a formidable parliamentarian, and is held in the highest regard among colleagues. Frankly, it is staggering that she is not in the Cabinet helping to lead the challenges that are often raised, and on which we must keep a laser focus.

The unprecedented challenges of covid have impacted all, including disabled people, as has been highlighted by the important report by the Women and Equalities Committee. In my role as the Minister for Disabled People I welcome the opportunity to talk through the measures that the Government have put in place for disabled people throughout the pandemic, and how we are responding to those serious recommendations. My involvement in my cross-Government capacity, and that of the Disability Unit for which I am responsible, is to influence and shape Government policies, sharing our subject matter expertise, data, and knowledge of lived experiences and connecting relevant stakeholders with colleagues across Government to reach the best outcomes for disabled people.

Before I turn to the specific points raised by my right hon. Friend and the report, I would like to say how proud I am of the roll-out of the vaccination programme, which was an absolutely key issue and ask of the disability stakeholders that I regularly meet with. The Government are now offering vaccines to all those aged over 45, those on the learning disability register or clinically extremely vulnerable people, and health and social care staff. I am very pleased that my own Department has linked with NHS services in England to share data on over 600,000 carers, allowing the NHS to invite those carers to book an appointment for a vaccine. This is a huge achievement, and makes a significant impact on the lives of disabled people as they navigate this pandemic. This is a good example of cross-Government work.

Turning to the specific points raised, from the very start of the pandemic, we have ensured that the views of disabled people and their families and carers have been taken into account when considering how best to support disabled people and link through to the relevant Ministers, Departments and agencies. Casting our minds back to the beginning of the pandemic, there was real concern about access to food and medicine, as a number of the people who have spoken in this debate have highlighted. In normal circumstances, Governments would typically take 12 to 18 months to develop policies, engaging, consulting and piloting before implementing new legislation. However, with the challenges of covid, that time was simply not available.

Therefore, by connecting key stakeholders with real lived experience, we were able to help relevant Ministers and Departments develop responses quickly. For example, we linked stakeholders including Disability Rights UK, Scope, Sense, Leonard Cheshire and the RNIB with the Minister for farming, fishing and food, my hon. Friend the Member for Banbury (Victoria Prentis), and her officials to engage through the food vulnerability stakeholder group. Within days, they were able to resolve this potentially serious issue, as the Committee report highlights. This is an example of best practice. Several speakers raised the challenge faced by those who did not get included in the clinically extremely vulnerable list, but an additional scheme was organised through 305 local authorities, Age UK, Mind, Scope and RNIB, which were able to then make referrals for priority online shopping slots. Again, these important changes were vital.

More widely, to identify potential issues and areas of real lived experiences, we have an extensive programme of engagement. I regularly meet with the Disability Charities Consortium, which includes Scope, Leonard Cheshire, Disability Rights UK, the National Autistic Society, Mind, Mencap, Sense, RNIB, RNID and the Business Disability Forum. That includes being joined by relevant ministerial colleagues to discuss aspects of the pandemic’s impact on disabled people. During covid-19, this forum’s work has included meetings with the Minister for Covid Vaccine Deployment, my hon. Friend the Member for Stratford-on-Avon (Nadhim Zahawi); the Minister for Care, my hon. Friend the Member for Faversham and Mid Kent (Helen Whately); and the Minister for Civil Society. It has been a real opportunity to share their expertise and help shape the urgent new policies that are needed to support those who are most vulnerable in society.

Furthermore, the Cabinet Office covid-19 taskforce considers disproportionately impacted groups, including disabled people, through policy development to tackle the pandemic. They do this through close working with the Equalities Hub and, within it, the Disability Unit, co-ordinating with other Government Departments and wider stakeholders to ensure a holistic approach to policy implications and delivery. In addition, we have regular stakeholder engagement through our regional network, which includes disabled people, carers, and crucially those with real lived experiences.

Turning to accessibility, I reaffirm that it is vital that public information on covid-19 is accessible to all, and we have made key strides in this area. These are things I was challenged on during my stakeholder engagement, and I happily raise these across Government. The Government are committed to providing both key covid-related guidance and communications in alternative formats, including large print, easy read, British Sign Language and audio. Most recently, this has covered ensuring that national restrictions, vaccination testing and the Government’s road map are accessible. We have now established BSL interpretation at the No. 10 press conference via the BBC News channel and iPlayer, available on all TV packages as part of Freeview. Accessible information is also available on the Government’s social media channels.

A significant further improvement, following the Committee’s report, is that the Cabinet Office now has a senior lead for accessible communications as part of the national resilience communications hub, who meets with a group of disability charities on a monthly basis. The group is briefed on the latest covid-19 guidance, including accessible versions, and works to ensure that communications to disabled people continue to be accessible and timely. Most recently, we held bespoke briefing sessions with the disability communications working group on 25 March, explaining the road map and communications activity, enabling charities to brief their audiences, prepare and share accessible communications through their network. I have personally pushed hard for that and I thank the Women and Equalities Committee for its support on the need for this vital additional layer of support.

Turning to health and social care, as we have seen, the covid-19 pandemic has had an unprecedented impact on the NHS and social care systems. Recognising the challenges in care settings, the Department of Health and Social Care made £546 million available in its adult social care winter plan, including money for vital infection control measures to ensure that disabled people getting social care and support are kept as safe as possible. The Government has also made £4.6 billion available to local authorities to address pressures on local services, including adult social care. Furthermore, the Minister for Mental Health and Suicide Prevention announced £500 million for mental health recovery, of which £31 million will be used to support learning disability and autism services, alongside an additional £3.6 million announced by the Minister for Care for disability voluntary sector organisations to provide practical support to disabled people to mitigate the impacts of covid-19.

I know many disabled people and their families have raised concerns about easements to the Care Act, which were introduced as a temporary measure to help local authorities continue to meet the most urgent and acute needs in the face of covid-19, when local authorities were experiencing extraordinary pressures. The measure was used sparingly and has now ended. In response to concerns about the use of “do not resuscitate” decisions and the clinical frailty scale, the Government recognised the issues and guidance was changed strongly and quickly.

It is important to recognise the particular challenges the covid-19 outbreak has had on families of children with disabilities or serious illnesses. Supporting vulnerable children is a priority for this Government and has been central to our response throughout the pandemic. Turning to the work done by the Minister for Children and Families, the Government provided £40.8 million for the family fund in 2020-21, which supported more than 90,000 low-income families who are raising children who are disabled or seriously ill.

I know there are concerns about the legal duties to provide support to children and young people with education, health and care plans. The Secretary of State for Education has not used this power since July last year and has made it clear that he would need a compelling reason before doing so again.

[Caroline Nokes]

I thank the Minister for giving way on the point about the Secretary of State for Education’s powers. My right hon. Friend the Secretary of State has made it clear that he would require a compelling reason to use them, but he has not used them, he does not plan to use them and there is much less need to use them. Will my hon. Friend indicate whether there might be a timescale for when they are going to go?

[Justin Tomlinson]

That is a fair challenge. I do not have the answer, but I will certainly make sure that the Secretary of State for Education gives a clear response to that question.

While the covid-19 pandemic has unavoidably delayed the completion of the special educational needs and disabilities review, the Secretary of State for Education is clear that it remains a key priority for this Government. It is vital that we deliver on our promises to children and young people and the DFE intends to publish proposals for consultation in the coming months.

Several speakers talked about the importance of disability employment. I am incredibly proud, as the Minister for Disabled People, to have presided over record disability employment. In normal times, when I have the pleasure of travelling around the country on visits, when I talk to young disabled people and say, “If you were the Minister, what would be the single thing that you would want to see?” the answer is nearly always, “I just want to have the same opportunities that my friends have for work and career progression.” I have never lost sight of that. I speak as somebody who has employed and benefited from employing disabled people, both prior to being an MP and as an MP. We have faced unprecedented challenges, but we have not lessened our ambition to have a million more disabled people in work by 2027. I want to reiterate that that has not changed.

During covid, we have made changes to the support provided. We have recently announced over 300 more disability employment advisers, taking the figure to over 1,000. We continue to review our Work and Health programme. All of the plan for jobs is fully inclusive, and we have made changes to schemes such as Access to Work, where we now provide support within the workplace. We will keep that beyond covid-19, which will perhaps open up opportunities for more people who have not been able to access work opportunities up to now. I am proud that we have reached 20,000 employers signed up to Disability Confident. The equivalent of 11.2 million employees are now represented by businesses in the Disability Confident scheme, sharing best practice about helping disabled people into work, to progress in work and be retained in work. That is very much a priority for me and the Department.

While there will undoubtedly be opportunities to learn from our covid-19 response in the longer term, the overall picture is that the Government have moved fast and flexibly to provide support for disabled people in these unprecedented times. The importance of cross-Government work linked to and supported by those with real lived experiences is absolutely clear, as it allows us to move faster and more flexibly to provide support to those most in need, including those with disabilities.

To ensure that that notion is embedded at the heart of the Government, we now have ministerial disability champions in every Department, with whom I meet regularly, with the full authority of the Prime Minister. They are genuinely enthused, engaged and determined to play their part on behalf of their respective Departments. In our forthcoming ambitious national strategy for disabled people, we will demonstrate the very real and vital focus on cross-Government work to remove barriers and create a fully inclusive society as we return to normality.

In conclusion, I thank all the staff and volunteers across the country working on the frontline, and in particular those supporting people with disabilities, as we navigate these challenges. I thank again my right hon. Friend and her Committee for their fantastic ongoing work, the Committee’s important report and the recommendations it made. The Government and I personally take them very seriously, and we are acting on them.

Oral Answers to Questions

Debate between Justin Tomlinson and Caroline Nokes

Wednesday 23rd September 2020 Commons Chamber

[Justin Tomlinson]

That is a really important point. Through my work as the Minister for Disabled People and in conjunction with the Disability Unit, for which I am responsible, where stakeholders identify challenges around support for those who were shielding, we raise that with the relevant Minister. Obviously, shielding has come to an end, and that is kept under review. We must ensure that people feel safe, particularly those who are seeking to work. We expect employers to act in accordance with the Equality Act 2010. Working with the Department for Business, Energy and Industrial Strategy, the Health and Safety Executive and ACAS, we are publishing helpful guidance to ensure that there is sufficient support for those who are coming out of shielding and returning to normality.

[Caroline Nokes (Romsey and Southampton North) (Con)]

The charity SignHealth has been working to provide British Sign Language translation for covid sufferers in health settings free of charge since the pandemic began. It has submitted a grant application to the Department of Health and Social Care, but so far that has not been awarded. Will my hon. Friend use his best endeavours with colleagues at that Department to get this apparent blockage shifted? As we seek to avoid a second wave of the virus, we also have to ensure that deaf people who are reliant on BSL as their main form of communication are not disadvantaged in their access to information.

[Justin Tomlinson]

I know that, through my right hon. Friend’s work as Chair of the Women and Equalities Committee, there is no stronger advocate for accessible communications. Stakeholders rightly raise this issue time and again, and through the Disability Unit, we have reminded all Departments of the importance of it. It sounds to me like SignHealth has provided a wonderful service. I know that the DHSC values good services, and I will encourage the relevant Minister to look at this personally and respond as quickly as possible.