Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve equitable access to clinical trials for brain tumour patients; and what plans his Department has to help eligible brain tumour patients to access treatments through clinical trials.

Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)

The Department is committed to working with the pharmaceutical industry to develop a more efficient, more competitive, and more accessible clinical research system in the United Kingdom, ensuring that all patients, including those with brain tumours, have access to cutting-edge clinical research and innovative, lifesaving treatments.

Research is crucial in tackling brain cancer, which is why the Department spends £1.5 billion each year on research through its research delivery arm, the National Institute for Health and Care Research (NIHR), with cancer being one of the largest areas of investment, at over £121.8 million in 2022/23, reflecting its high priority.

The Department is committed to ensuring that clinical trials are people-centred and more accessible, including for brain tumour patients. For example, the NIHR provides an online service called Be Part of Research which promotes participation in health and care research by allowing users to search for relevant studies and register their interest.

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that all brain tumour centres have equitable access to (a) funding, (b) resources and (c) recognition within national frameworks.

Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)

The Tessa Jowell Brain Cancer Mission (TJBCM) is an independent organisation funded by 11 charities as well as by Government. The Centre of Excellence programme is community led, being designed and delivered by a committee of National Health Service professionals and scientists from centres across the United Kingdom. The centres that participate in the TJBCM Centre of Excellence initiative do so voluntarily.

All UK neuro-oncology centres are invited to apply for Tessa Jowell Centre of Excellence status, which is the main “national framework” in neuro-oncology, beyond the National Institute for Health and Care Excellence’s guidelines that apply to all hospitals treating brain tumours. Centres that are not awarded Centre of Excellence designation can also access support from TJBCM and through the Tessa Jowell Network, so all centres and their patients nationally can benefit from this standard-setting. The TJBCM works with every centre in the UK who seeks its support.

The TJBCM welcomes applications from any centre which provides treatment and care for patients with a brain tumour who can demonstrate how they meet the Tessa Jowell Standards of Excellence, to achieve the same high standards of treatment, care, and research. The mission works with every centre in the UK who seeks its support to develop its service, both in England and the devolved nations.

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what criteria his Department uses to determine the inclusion of tumour centres in the Tessa Jowell Brain Cancer Mission; and what steps his Department is taking to ensure equitable access for all centres regardless of onsite surgical capacity.

Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)

The Tessa Jowell Brain Cancer Mission (TJBCM) is an independent organisation funded by 11 charities as well as by Government. The Centre of Excellence programme is community led, being designed and delivered by a committee of National Health Service professionals and scientists from centres across the United Kingdom. The centres that participate in the TJBCM Centre of Excellence initiative do so voluntarily.

All UK neuro-oncology centres are invited to apply for Tessa Jowell Centre of Excellence status, which is the main “national framework” in neuro-oncology, beyond the National Institute for Health and Care Excellence’s guidelines that apply to all hospitals treating brain tumours. Centres that are not awarded Centre of Excellence designation can also access support from TJBCM and through the Tessa Jowell Network, so all centres and their patients nationally can benefit from this standard-setting. The TJBCM works with every centre in the UK who seeks its support.

The TJBCM welcomes applications from any centre which provides treatment and care for patients with a brain tumour who can demonstrate how they meet the Tessa Jowell Standards of Excellence, to achieve the same high standards of treatment, care, and research. The mission works with every centre in the UK who seeks its support to develop its service, both in England and the devolved nations.

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that hospices in England receive sustainable funding.

Answered by Stephen Kinnock - Minister of State (Department of Health and Social Care)

We want a society where every person receives high-quality, compassionate care from diagnosis through to the end of life. The Government is determined to shift more healthcare out of hospitals and into the community, to ensure that patients and their families receive personalised care in the most appropriate setting, and hospices will have a big role to play in that shift.

We are supporting the hospice sector with a £100 million capital funding boost for adult and children’s hospices in England to ensure they have the best physical environment for care. We are pleased to confirm that the Government has recently released £25 million for 2024/25, and that Hospice UK will distribute the money to hospices throughout England. An additional £75 million will be available from April for 2025/26.

We are also providing £26 million of revenue funding in 2025/26 to support children and young people’s hospices. This is a continuation of the funding which, until recently, was known as the Children and Young People’s Hospice Grant. It will be transacted once again by the integrated care boards on behalf of NHS England. This is in line with National Health Service devolution and promotes a more consistent national approach, and supports commissioners in prioritising palliative and end of life care.

I recently met with key palliative and end of life care, including hospice, stakeholders to discuss the long-term sustainability of palliative and end of life care within the context of our 10-Year Health Plan.

Found: Gill Furniss Tracy Gilbert Gurinder Singh Josan Lee Pitcher Frank McNally Tom Morrison Joy Morrissey

Submit Evidence (by 9 May 2025)

One of the most frequently raised areas of interests during the committee’s call for views has been accessibility.