Parkinson’s Awareness Month

Josh Dean Excerpts

Thursday 1st May 2025 Commons Chamber

[Josh Dean (Hertford and Stortford) (Lab)]

I thank my hon. Friend the Member for Dunfermline and Dollar (Graeme Downie) for securing this important debate and for his eloquent speech. There was not a word that I would disagree with. As he described, Parkinson’s is the fastest-growing neurological condition in the world and around 153,000 people live with the condition in the UK.

In April, we marked World Parkinson’s Day and Parkinson’s Awareness Month. As part of Parkinson’s UK’s event here in Parliament, I had the opportunity to hear directly from people affected. I am especially grateful to Angie, from Parkinson’s UK, for taking the time to share her experience with me, and discuss how we can improve care and support for people living with Parkinson’s disease. It is for people like Angie in Hertford and Stortford that I wanted to contribute to today’s debate. For me, as I know will be the case for other hon. Members, it is personal. Through the experiences of friends and loved ones, I have seen at first hand the impact of a Parkinson’s diagnosis. I would like to briefly share their stories today.

First, the mum of one of my closest friends was diagnosed with Parkinson’s in 2018, a person whom it would be no exaggeration to describe as one of the warmest, kindest and most generous people you could meet—the kind of mum who makes you feel like part of the family and always insists you stay for dinner. She, too, has benefited hugely from the Movers and Shakers group. With the support of Parkinson’s UK, she and a group of friends—all working-age people diagnosed with Parkinson’s—set up the Herts Parkinson’s wellbeing directory. Working with the NHS and other local organisations, their work ensures that Hertfordshire residents diagnosed with Parkinson’s can quickly and easily find information and access local support to help them manage their condition. Residents can access their directory by visiting hertfordshire.parkinsonsuk.group. I thank them for their inspirational work supporting others with their diagnoses.

I also want to talk about Andy. When I first met Andy, he was introduced to me as the husband of my local Labour party’s long-standing—or perhaps long-suffering—election agent, Brenda. I was about 19 at the time, standing in a local council election, in what used to be true blue Hertfordshire, that I was destined to lose. Little did I know just how important Andy and Brenda would be to me by the time I was elected to this place in July last year. In so many ways, I would not be stood here today as the Member of Parliament for Hertford and Stortford were it not for Andy and Brenda.

When I was preparing for this debate, I reflected on the fact that I could not pin down when or how Andy had told me about his Parkinson’s diagnosis. That is a testament to Andy’s innate ability to turn topics that others might find difficult to discuss into everyday conversation—indeed, I learned much about myself through simple conversation while travelling from visit to visit with him during the general election—but it is also a testament to his willingness to speak openly about his Parkinson’s, breaking down the stigma for others with a diagnosis, and knowing that it does not define him and that it can make it easier for others to talk about their condition. Today, Andy Pellant is not just a mentor to me, but a friend. It is my privilege to put his name on the record in this debate.

I would like to take this opportunity to pay tribute to Julie Walker, who has been writing her regular “Parkinality” column in our local newspaper, the Bishop’s Stortford Independent, for the past seven years to help people to better understand life with Parkinson’s. Diagnosed aged 44, every year Julie does something to mark Parkinson’s Awareness Month in the hope that a cure will be found and that there will be no need for another. This year, Julie has compiled all the poems she has written about living with the condition into a book, with the proceeds going to Parkinson’s UK and Cure Parkinson’s. I encourage everyone in Hertford and Stortford, and in this Chamber, to support her work.

I would like to take this opportunity to highlight some of the positive work being done in our community to support those living with Parkinson’s. I was really pleased to read this week that Everyone Active is partnering with Parkinson’s UK for the fourth year running to provide residents with Parkinson’s with free fitness memberships. That means patients in our community will be able to access gym facilities, swimming pools and exercise classes at Hartham leisure centre in Hertford and Grange Paddocks leisure centre in Bishop’s Stortford, alongside up to three of their carers. I encourage any residents in Hertford and Stortford living with Parkinson’s to take advantage of that support.

I welcome the work that this Labour Government are undertaking to deliver the 10-year health plan for England, which will radically reform how people in Hertford and Stortford with long-term conditions like Parkinson’s are treated on the NHS. With hundreds of thousands of patients in England still on the waiting list for neurology services, and almost half waiting for more than 18 weeks to start their treatment, I similarly welcome how the elective reform plan will help to deliver more neurology appointments every year. No one should lay awake at night worrying that their condition is getting worse while they wait to see a specialist. By providing extra appointments, scans and operations in the evening and at weekends, I know this Labour Government will clear the backlog for neurology appointments. However, we can go further, and I do have a few policy questions I would like to raise; I would be grateful if the Minister could reflect on them in her response.

First, as other hon. Members have said today, a number of residents have written to me calling on the Government to implement the five steps set out in the Parky charter, which my hon. Friend the Member for Dunfermline and Dollar set out eloquently. The points around speedy specialists, instant information, a Parkinson’s passport, comprehensive care and a quest for a cure are incredibly important. I will touch on the Parkinson’s passport, because a number of constituents have written to me raising the matter of free prescriptions, to which people with Parkinson’s are entitled in Scotland, Wales and Northern Ireland, but not in England.

Supported by major Parkinson’s charities, delivery of the charter would help to deliver timely diagnoses, comprehensive care and dignity for all those living with Parkinson’s disease. I know the Minister takes these matters incredibly seriously and will have read the charter in detail, so I would be grateful if she could share what consideration she has given to it in her response.

When I spoke to Andy ahead of today’s debate, he highlighted how almost everyone he has met with a Parkinson’s diagnosis recognised that with the benefit of hindsight, the signs of their condition were present years before they were diagnosed. Has the Minister therefore considered the potential benefits of a national education programme to help people to identify the early signs of Parkinson’s disease?

I know that hon. Members across the House will have their own experiences or will have known someone with Parkinson’s disease. We have heard many moving speeches today, and I am sure we will hear more. The unity shown across the House today in support of those living with Parkinson’s and in support of finding a cure is to be commended, and I am grateful for the opportunity to have contributed to the debate.