Autism

Debate between John McDonnell and Angela Watkinson

Tuesday 20th November 2012 Commons Chamber

[John McDonnell]

I welcome—everyone welcomes—the longer transition, and my hon. Friend the Member for Stalybridge and Hyde made that point. It would be useful to get it on the record that people want the specific right of the appeal that has existed since the Education Act 1981 to be endorsed in the new legislation as well. We need to give people security that that will happen, and if that is what the Minister is saying, that is incredibly helpful.

Mandatory mediation also came up in the group discussion. I have never known mandatory mediation to work in any walk of life. If people are not willing to go into mediation, it does not usually work. To have mandatory mediation that involves penalties as well is, I think, completely counter-productive, but it has worried people, and on that ground a rethink is needed, and perhaps further clarification about how that will be introduced is needed. The parents, who got a lawyer to take them through what they envisaged the new system would be, wrote to me to say that what they had seen was extremely complex. My hon. Friend made the point about the difficulty of knowing what is referable to a tribunal. Is it now only education matters? What about health and other matters—where can they be referred to and where can parents appeal? Getting some clarity and simplicity in the system is critical.

In some cases in my area we have had to resort to law, using legal aid. There is therefore some anxiety about some of the restrictions on access to legal aid. Some clarity about that would be extremely helpful.

Everyone has their own experience and some of these cases are the most distressing I have ever dealt with, but I read John Harris’s piece in The Guardian a few months ago and recommend it to other hon. Members, because it summarised for me exactly what many of the parents in my area have gone through. They have been fighting their way through the system and then the Government come along and promise the opportunity of improving it, but now many fear that, in fact, we may be going backwards unless we get secure commitments from the Government.

[Angela Watkinson]

The hon. Gentleman may be aware that a problem for families who have a child on the autistic spectrum that often goes unnoticed or unmentioned is the financial burden. Often, because the child has poorly developed gross motor skills and co-ordination, there is lots of accidental damage in the home, with items such as televisions, washing machines and carpets having to be replaced quite frequently, so in addition to all the challenges he has just listed, there is also a hidden financial burden of which most people are unaware.

[John McDonnell]

I am glad that the hon. Lady makes that point, which I should have made earlier, because it is absolutely critical. We can get all these rights, but we need to be able to finance them, and it is not only local authorities and other services that provide that funding, because families often have to complement it. That needs to be taken into account in the benefits system.

I will give another example. When it comes to housing for families with a child on the spectrum—I have families in my constituency who have more than one child on the spectrum—one of the biggest clamours is for a garden so that they can play outside. I have dealt with one such family who were allocated a house by the local authority—it was in the private sector—that was on a busy road near a roundabout and had no front garden. That was a particular problem, because when the door was opened the child could run straight out on to the road.

There are many issues that must be dealt with when addressing the complex needs of individual families. That is why we had hoped that the new legislation would show a broad understanding and acceptance of the complexity of what individuals and families have to go through and at least have a faster and more simplified system that gave greater security. The message I am getting from the parents and local organisations I have met is that they are very fearful that their existing rights, limited though they may be, and the existing system, however difficult it may be, might be undermined and that everything we were hoping for in the new system will not be achieved.

I hope that, as a result of this debate—this is why I welcome it—we can improve some of the Government’s proposals and that they can then take away some of the concerns that have been expressed today to ensure that we get the legislation we all need and want.