Motor Neurone Disease

John Lamont Excerpts

Thursday 20th October 2022 Commons Chamber

[John Lamont (Berwickshire, Roxburgh and Selkirk) (Con)]

Motor neurone disease is an incredibly cruel and scary illness. It can strike anyone at any time. It can knock young and healthy people down in their prime. What makes this disease so frightening is the fear of the unknown. There is no cure for it. We do not know why it occurs. All that makes it even more remarkable that so many brave people suffering from MND find the courage to speak out candidly and publicly about their condition. I pay tribute to all those who campaign so passionately to find a cure, especially those who suffer from the awful effects that the disease causes to them personally. In this debate, however, I want to highlight one particular inspirational person who suffers from MND, and whom I am proud to say I represent as his Member of Parliament in the Scottish Borders.

Long before he was told he had MND six years ago, my constituent Doddie Weir was a hero to people across the Borders and all over Scotland, but he has become even more of a hero since his diagnosis. In his playing days he was a tartan colossus, a giant of Scottish sport. He was a big character on the pitch at Murrayfield—once famously described by the Scottish commentator Bill McLaren as being

“on the charge like a mad giraffe”.

However, Doddie is an even bigger character off the park. He lives his life to the fullest, even now. His positive energy is infectious. When anyone has been around Doddie, they are happier for it. He fought hard every time he took to the rugby pitch, and he continues to fight, even harder, on his mission to find a cure for MND.

I cannot say enough how much I admire Doddie for remaining relentlessly positive, no matter what life throws at him. Receiving an honorary degree earlier this year in Scotland, he said:

“Six years later, still fighting, still pushing for that cure, and still winning with every new day. If things don’t go your way, don’t give up. Instead, use your tremendous energy and brains, try again. There’s always a way round, another way to achieve your goals—find it.”

We owe it to Doddie and everyone in his position to keep fighting for a cure, and we owe it to Doddie to listen closely to his frank assessment of the Government’s funding for research. He said recently that the Government needed to act with more urgency. He said that the fight for a cure was

“definitely getting better but the government has not given MND the money they promised.”

He also said:

“The current process for accessing the money is just not delivering for the MND community. It needs to be streamlined or the professors will spend their valuable time writing multiple applications instead of tackling MND.”

Last year, the Government made a generous and welcome commitment to invest £50 million in motor neurone disease research. I was incredibly proud to play my part in pushing for that funding towards a cure for the devastating disease. That victory, won overwhelmingly by Doddie’s relentless campaigning, was a wonderful display of compassionate government; it is one of the finest actions that this Conservative Government have taken.

But just as Doddie never stopped on the pitch and continues never to stop loving life, we must keep pushing to make sure that this vital funding reaches the frontline faster. Today I want to urge the Government and the Minister to listen to Doddie and do what he asks—not just for his sake, but for every patient in need of some hope. I urge them to provide more resources for MND research, to improve the process and to deliver on our promises. Let us continue to play our part in finding a cure for this awful disease.