Eating Disorders Awareness Week

John Howell Excerpts

Wednesday 27th February 2019 Westminster Hall

[Kirstene Hair (Angus) (Con)]

I beg to move,

That this House has considered Eating Disorders Awareness week.

It is a pleasure to serve under your chairmanship, Mr Bailey, for this very important debate. As we are in the middle of Eating Disorders Awareness Week, this is a timely day on which to remind ourselves of the good work that has been achieved in the past year, but also to look forward to where we want to be by this time next year.

I want to take this opportunity to thank Beat—the Eating Disorders Association—and the many other charities that have been in touch with me ahead of the debate for their sheer hard work and determination to keep this issue at the forefront of the Government agenda. I see many of you in the Public Gallery and want to say thank you for all that you do.

There is always great cross-party support in debates on eating disorders. I have been in this place for only 18 months, but it is the debates in which we are all travelling in the same direction that are so powerful, because we show our constituents that we can agree, and when we do, this place is much stronger and improves lives much more quickly.

As we know, eating disorders affect more than 1.25 million people throughout the United Kingdom, but that is a conservative figure, because many sufferers have not yet been diagnosed or identified. It is for that reason that this debate is opportune. We are all here today for those in the Gallery, for those who are fighting for this cause, for those who are currently fighting this debilitating disease, for those who have fought and come through it and for those who are currently living their daily lives as normal but may suffer at some point in the future. My colleagues and I will always fight your corner, and I am delighted to see many hon. Members here today to support the debate.

I wish to begin with the topic of stigma, which is the focus of the Eating Disorders Awareness Week campaign this year. As we know, eating disorders affect all age groups, genders and backgrounds. An eating disorder is not a diet gone wrong, a fad or a phase. It is not caused simply by a young female being exposed frequently to magazine images of skinny models or going on online platforms with similar material and deciding that they wish to look the same. It is an illness so deep rooted in the individual that it leads to devastating consequences for those who are suffering and for those around them.

[John Howell (Henley) (Con)]

My hon. Friend has talked about the effect on constituents. I have to say that, in this case, it was the effect on me, because a close member of my family suffered from an eating disorder. The help that was available was pretty close to negligible. Does my hon. Friend think that there is much more that we can do to increase the help available for people whose family members are in that sort of situation?

[Kirstene Hair]

My hon. Friend is absolutely right. The sufferer of course needs specialist support, but I will go on to speak about how I believe that we also desperately need to support families and, indeed, all those around them. This disease is so complex that it is often difficult to treat and, trapped in the disease, sufferers feel that there is simply no way out. Many believe that if the disease does not take them, they will take their own life, just to rid themselves of it. No matter how strong an individual is, an eating disorder is so all-consuming that once it has taken hold, some people believe that they will never live a normal life again, and many do not: the condition becomes chronic for about 20% of sufferers.

Normally, a series of events has encouraged the person’s mind to think differently about their body image. Perhaps they have decided that they are not good enough: one too many times, people or life events have created a narrative in their mind that they are inferior to those around them, or perhaps life is out of control in many aspects—nothing is going right. They compare themselves with others around them and see only the negatives in their own life and the positives in other lives, but they can take back control of one aspect of their life—control of what they eat. That may well start off as a diet, but not a diet that would be followed by a normal individual, which often fails. It soon becomes a focus and then a more extreme calorie-counting exercise that involves hiding food, burning off every calorie possible and social isolationism. Before they know it, the candle is burning at both ends. Before a sufferer has identified that they need help, the registered impact on their body is always perceived as being caused by some other reason. There is a voice inside a sufferer screaming that too much food is being consumed or not enough exercise is being done—praise when they miss a meal or hear the sound of a rumbling stomach. That voice inside a sufferer will not and cannot go away.

The loved ones around a sufferer see their daughter, son or friend fade into a shadow of their former self; they are helpless in every way. Parents struggle and are in emotional turmoil. They know that if their daughter falls and skins her knee, they can bathe it, put a plaster on it and make it better. If their son is upset because he is struggling at school, they can get him the support that he needs. We have solutions, and it is human nature to want to fix and help those we love. However, when it comes to eating disorders, everyone is helpless and feels hopeless. No one, unless they are trained, can provide support, other than the individual themselves. Many, if not all, sufferers who have managed to recover will say that it was the hardest journey that they have ever taken, but having spoken to some of Beat’s bravest ambassadors, we have seen at first hand the amazing, inspiring individuals they can become—but that is only if we help them.

As a result of the stigma attached to eating disorders, black, Asian and ethnic minority people, lesbian, gay, bisexual and transgender people and people from less affluent backgrounds are less likely to seek and get medical support. Research developed ahead of today’s debate showed that four in 10 people believe that eating disorders were more prevalent in white people than in other ethnicities, yet research shows that they are just as common or more common in the BAME community. Thirty per cent. thought eating disorders were more likely to affect the more affluent; in fact, they evolve at the same rate irrespective of education or income. Sixty per cent. of respondents believed that they affected only young people. That is having a significant impact on adults coming forward for support, and we see men and boys not being referred as soon as girls and females.

The statistics might not be surprising, but we have to challenge them continually. They are preventing certain groups in society from appealing for help, and creating an inequality in support. As a result, people are more ill by the time they are referred, making the recovery process much more difficult and sometimes impossible. We have seen fantastic work by members of the royal family as well as other notable figures, who have raised awareness of mental health disorders and who seek to break down the barriers to people speaking out, but also recognise that it is okay to talk and okay for someone to say that they need help.

When sufferers reach out for help, they have often been suffering for years. They need urgent specialist help immediately. The average cycle of relapse and recovery lasts six years, and there must be constant efforts to reduce that. To undo months and years of torture, specialists need time and resources to allow a patient to open up, to analyse, to find out the root causes, to get under the skin of the issues and to develop the mind to fundamentally change—a long-term approach, but a life-changing one.

Families, too, need guidance and support on how to deal with this troubling time. Many do not know where to go for support. This was one comment from the social media campaign that I ran before the debate:

“When anorexia arrives in a family it is like throwing a grenade into a home and watching it explode...caring for my daughter has impacted on the mental health of all those in my family.”

That is why I agree with my hon. Friend the Member for Henley (John Howell) that family-based therapy would provide a much-needed support base throughout the recovery process.

Without the investment of time, those patients will be back in our GP surgeries and hospitals time and again. We must look beyond weight. This is an issue of the mind, so whether it is a case of referral or recovery, it cannot be determined by the number on the scales. As a result of the digital campaign that I ran, I heard from many people up and down the country, and I thank them for coming forward with their stories. One person, who wished to remain anonymous, said that

“my granddaughter never got so thin but she died nearly 7 years ago at the age of 19 and I feel that if there had been some positive help she would have been alive today.”

She had been disregarded simply because her weight was not low enough. Recent research shows that GPs do not have adequate training for supporting individuals who have an eating disorder, with three in 10 sufferers not being referred when required.