Dementia Care

Joe Robertson Excerpts

Tuesday 3rd June 2025 Commons Chamber

[Dr Chambers]

I completely agree with what the hon. Member has just suggested. There is no way that we can approach dementia without a huge amount of compassion and empathy.

[Joe Robertson (Isle of Wight East) (Con)]

I thank the hon. Member for drawing attention to the issue of not seeking to correct those with dementia on where they think they are. In that respect, dementia care and understanding have come a long way, and in fact it is now standard not to try to do that. I thank the hon. Member, along with my right hon. Friend the Member for Wetherby and Easingwold (Sir Alec Shelbrooke), for raising that issue in the Chamber.

[Dr Chambers]

I remember trying to explain to my father about the sheepdog, which he loved to train but which he did not recognise as his own any more. That is unusual for a farmer. There was no need to have that discussion; it was heartbreaking. The dog loved my dad and dad not recognising him any more was very upsetting. This all still feels very raw, but as we have heard today, my story is not in any way unique. There are so many families in Winchester and around the country who are experiencing that similar, heartbreaking journey.

Caring for my father is one of the hardest things that my family has ever done. I pay tribute to my mother, who bore the brunt of caring for my father for many years; to my sister Irene, who helped hugely for years and years; to my cousin Patrick; and to our neighbours James and Deborah Hodgson—we could not have managed without them. However, especially nearer the end, we could not have done without the extraordinary support of the care workers who came to help on a regular basis. Their compassion, skill and dedication helped get us through some of the darkest days.

That dedication was extraordinary. Dad loved singing and one of our care workers had printed out some of the songs that he knew—some old Methodist hymns, “The Old Rugged Cross” and “Danny Boy”, which was his favourite song and the song that I am named after. He might not have remembered our dog, but he could remember every word of “Danny Boy” when he was singing it. The dedication of the care workers, to find out someone’s favourite song and then sing it with them, was quite extraordinary.

Care workers, who are vital and skilled, are often underpaid, undervalued and stretched beyond endurance. We just cannot allow that to continue. That is why the Liberal Democrats call for urgent and meaningful reform of social care—reform that starts with recognising and properly rewarding and supporting the workforce who underpin it. We have been calling for a national social care workforce plan—not for the can to be kicked further down the road, but a real plan to address recruitment, retention and training, with practical steps to fix the staffing crisis. We want to establish a royal college of care workers to give care professionals the recognition and career development that they deserve. I pay tribute to Liz Blacklock from Winchester, who runs Lapis Care based in Bishop’s Waltham, where I went on some visits a few weeks ago. Liz has long been calling for a formal register of care workers, which would be one of the functions of any new royal college of care workers.

Liberal Democrats also call for a national carers register, so that all unpaid family carers can be better supported, for example with statutory respite care. We also call for a higher carer’s minimum wage, because paying poverty wages for such emotionally and physically demanding work is not only unjust but short-sighted and drives burnout, turnover and, ultimately, worse care.

Let us be clear: dementia is not going away. One in three people born today will develop dementia. The hon. Member for Worthing West (Dr Cooper), with her public health experience, was insightful in her advice on how we can help to prevent it from developing.

The financial pressures on local authorities, driven in large part by adult social care, are among the most urgent political challenges of this decade. In Winchester, the Chesil Lodge day centre provides essential care for older adults, including those with dementia, and importantly provides respite care for family members. Hampshire county council is threatening to withdraw funding. That could overwhelm unpaid carers, forcing loved ones into residential care, which in the end will cost the council and taxpayers more.

With the political will, proper investment and genuine commitment to value and care work, we can build a system that supports people with dementia with dignity and gives their families the help and hope they so desperately need.

--- Later in debate ---

[Joe Robertson]

As my hon. Friend knows, at the beginning of the year, the Government and NHS England removed dementia from their planning guidance, which sets their priorities for the year ahead. Crucially, they removed the diagnosis targets. That was a cruel blow to people living with dementia and their families. Will the Minister give his view on the Government removing dementia from their targets and priorities?

[Dr Evans]

I am grateful, first, for my hon. Friend promoting me and, secondly, for his expertise in this area because I understand that he has worked with Dementia UK. He is absolutely right—he has beaten me to the chase. One of the real concerns that charities and patients have raised is exactly that: the removal of this crucial diagnosis target. We only need to look at Wales where that was not the case. The national diagnosis rate is 56%—10% lower than in England.

On top of that, the Government are presiding over a major top-down restructuring with cuts to integrated care boards and NHS England, while forcing through devolution on the 21 county-run authorities responsible for social care, while raising taxes in the employment national insurance contribution on care providers, which will get passed on to local councils, while raising taxes on the very dementia charities and others that provide support, while ditching the fast-track social work scheme as we learned last week, while terminating the NHS and care volunteers response that helps support care, and while scrapping the cross-party talks on social care and instead swapping it to an independent commission led by Baroness Casey, who still seconded to the Home Office. We can all see what is being taken away and taxed. It is what is going to benefit dementia support and care that is much harder to spot.

In the rough and tumble of this place, it is not lost on me how much this issue touches the Minister himself. He has spoken bravely and openly about his family’s struggle, and I have the utmost respect for him and what he has been through, and I have been through similar with my grandmother Dot. I do not question his heart; I simply gently challenge the Government on their policies to achieve better dementia care for all.

To that end, I have a couple of questions. Will the Government commit to setting a new target to increase dementia diagnosis rates across England? With integrated care systems facing restructuring and budget resolutions, how does the Government plan to hold local systems to account on dementia diagnosis, especially across the NHS and social care? We have seen in Wales how irregular data collection on dementia diagnosis affects overall diagnosis rates. What steps will the Government take to improve the quality of data in dementia diagnosis, particularly when it comes to follow up? Given the growing prevalence of dementia in our care homes, what steps will the Government take to support providers and ensure that the social care workforce is trained effectively to meet the needs of care users?

With the upcoming spending review and the long-awaited 10-year plan for the NHS expected in the next couple of months, I trust the Minister sitting in front of me. He is the right person to highlight to the Government the seriousness and importance of tackling dementia, just like the last Government understood.

I return to where I started: dementia steals the most from those left remembering, because the greatest heartbreak is losing someone who is still here. But with compassion for families, dignity for those who suffer and the relentless pursuit of a cure, we can offer not just care, but hope.

[The Minister for Care (Stephen Kinnock)]

I thank the hon. Member for South Devon (Caroline Voaden) for securing this debate, and I commend her for her work as a member of the all-party parliamentary group on dementia. It has been a thoughtful and constructive debate, with a number of truly powerful and moving personal contributions from Members across the Chamber.

This is a cause that is close to my heart. I thank all Members for their kind words about my own family, but our history is far from unique. We know that one in two of us will be affected by dementia in our lifetime—by caring for someone with the condition, developing it ourselves, or both. It is predicted that just under 1.5 million people in England will be living with dementia by 2040. Each person, along with their loved ones and carers, has a unique journey and their own heartbreaking stories. On behalf of the Government, I thank everyone working to support people with dementia, as well as their friends, families and carers. This Government will back them every step of the way. We are also backing our scientists to deliver new treatments and ways to care for people living with dementia, and I recently had the pleasure of visiting the UK Dementia Research Institute’s centre for care and technology, where I saw some of its innovative smart-home tools.

A timely diagnosis is vital to ensure that everyone can access the advice, information and support that can help them to live well with dementia and remain independent for as long as possible. This Government remain committed to the national ambition for two thirds of people living with dementia to receive a formal diagnosis. We are funding evidence-based improvement projects to pilot the diagnosing advanced dementia mandate in 14 trusts. I am delighted that best practice is currently being shared and promoted with regional and local partners, following an impact assessment of the pilots.

Dementia can impact anyone, but there is varying and unequal access to health services. That is why the Office for Health Improvement and Disparities is working to make our country fairer by developing a tool that provides a clear assessment of population characteristics, such as rurality and socioeconomic deprivation.

[Joe Robertson]

I welcome the Minister’s confirmation of his commitment to the diagnosis target of two thirds. Will he put that in a key document—the equivalent of the planning guidance for NHS England? Will he ensure that that is well documented and set out in a strategic document, so that we can be absolutely clear and are not relying on his oral assertions in this Chamber?

[Stephen Kinnock]

We are absolutely on the record with the 66.7% target.

I want to take this opportunity to set out what appears to be a philosophical difference between this Government’s approach to our health and care system and that of many Opposition Members. We believe in devolution, we believe in decentralisation, and we believe in empowering those who are closest to the citizen to make the decisions that need to be made. If others have a more centralising and deeply anachronistic approach to managing our health and care system, which I heard from Liberal Democrat and Conservative Members, that is up to them, but we believe in modernising our system, not micromanaging or having shopping lists of targets. It is about providing support and agreeing on outcomes, but leaving those who are best placed at the coalface to decide how best to meet the unmet needs of their communities. That is a very clear dividing line between us.

On research, it is worth pointing out that we have done studies with UK Research and Innovation, the Alzheimer’s Society and the People’s Postcode Lottery. We have found that through our investment, ADAPT and READ-OUT are working to produce clinical and economic data that could bring blood tests to the NHS within five years to support the diagnosis of dementia. All of this means that the rate of diagnosis is improving. The latest data from April shows that the diagnosis rate has inched up to 65.5%, up 0.3% since July 2024, and it is worth noting that the 66.7% ambition has not been met since 2020.

The quality and availability of care services is variable, as Members have pointed out. We are empowering local leaders with the autonomy they need. We are supporting integrated care boards. I am pleased to say that we recently published the Dementia 100 pathway assessment tool, which brings together multiple resources into a single, consolidated training tool. That launched last month, and there has been huge interest and support from the sector, with 1,000 people registering to attend the launch webinar. We have the dementia care pathway full implementation guidance, and we are supporting the implementation of that guidance through a dashboard, to enable targeted support where it is needed.

All those who have dementia deserve to receive high-quality care. We must have a workforce that is equipped with the skills that are needed. We are incredibly proud of everyone who works in the care sector, and they deserve the training that many Members have mentioned. The care workforce pathway provides guidance for progression and development for professionals across adult social care with the knowledge, skills, values and behaviours that our carers need. It links learning outcomes to existing frameworks, including the dementia training standards framework.

Some of those learning outcomes can be achieved through the training and qualifications eligible for funding under the learning and development support scheme. That scheme, launched in September last year, supports adult social care employers to invest in their workforce through funded training opportunities, including a range of dementia-related qualifications. I am pleased to confirm that we have backed the scheme with a £12 million investment. Pay and conditions are also vital elements of our workforce strategy, so I am sure Members across the House will welcome our groundbreaking fair pay agreement legislation in the Employment Rights Bill for adult social care workers, which is hugely significant in this context.

On the question of our care workforce, a number of Members have highlighted the vital role that unpaid carers play. To support them, on 7 April the Government increased the carer’s allowance weekly earnings limit from £151 a week to £196 a week, which is the equivalent of 16 hours at the national living wage—the largest increase in the earnings limit since the carer’s allowance was introduced in 1976. We are very proud of that change.

I understand that every person with dementia, alongside their friends, families and carers, has their own unique and important story of living with dementia. I know that I am not alone in this fight. I want to pay tribute to the Alzheimer’s Society, Dementia UK and Alzheimer’s Research UK for all their vital work. Together, we will build a society where every person with dementia receives high-quality care from diagnosis through to the end of life. I once again thank the hon. Member for South Devon for raising this vital topic.