Allergy Awareness in Schools

Debate between Jo Swinson and Jo Platt

Wednesday 14th March 2018 Westminster Hall

[Jo Swinson]

I certainly will. I praise the change to the regulations, which is a positive thing. It would be great if schools had some help with the cost of the injectors, because they go out of date; they typically last from a year to 18 months before they have to be replaced, and they can cost from £30 to £100 each, but the change is very helpful.

The hon. Lady is right about the training element. I was scared about using my own EpiPen. I carried it for years before I used it, and I used to go to hospital if something happened because I was petrified about what would happen if I used it. The first time I used it, I was on a parliamentary trip looking at human rights issues in Chechnya, and it was not safe to go to hospital because we had to go everywhere under armed guard. I was in a situation where I had to use the EpiPen, and I was really scared. Nicole, a wonderful woman from the human rights group who was with me, held my hand. We read the instructions and we did it together.

It started to work really quickly, and the relief and the experience of doing it have made me say to other people with EpiPens, “If you’re experiencing your reaction, use it. Then go to hospital, absolutely, but use that EpiPen, because it starts to work right away and delay can be fatal.” I know the experience I had is probably shared by others, but it is not the best medical advice. The more we can train and encourage people that it is a positive thing to do and will bring relief to someone who is having that kind of reaction is important.

[Jo Platt (Leigh) (Lab/Co-op)]

I thank the hon. Lady for introducing today’s debate. I too declare an interest, because my 15-year-old son has a severe peanut allergy. We have gone through life having to manage it since he was seven. I have only praise for my son’s primary school, which managed the medications and the out-of-date medications when the date was coming up. My worry and concern, not just for my son but for others in the same position, is secondary school, because things completely change. There are 1,000-plus pupils in the school, including teenagers who are difficult to manage and seem to think, “It’s okay, we can manage this.” My son’s reaction is so severe that if somebody else in the room has a bag of peanuts he reacts and needs his medication. I will get to the point: we need to inform other pupils and teachers of the seriousness of this.

[Jo Swinson]

I absolutely concur. That is why this wider awareness is important. Of course individuals need to have the information to manage their own condition, but particularly in those teenage years it can be more difficult for people. They feel a bit more awkward when they are eating out, because they might be perceived to be making a fuss. It is not making a fuss, but that is how it can feel in a group negotiating all sorts of adolescent relationships. For others to understand the seriousness of this is incredibly important.

There is not always a blanket ban on allergens. Schools make their own decisions. Some schools in East Dunbartonshire have become a nut-free zone, but that does not have to be the approach that is always taken—it depends on the specific risk being managed. However, reporting in the media is an important part of how we look at allergies, and food allergy and food intolerance are often conflated. Food intolerance, in particular, can get a pretty bad press.

We know that it is an issue at the school gates and on play dates, where parents of children with allergies can be viewed as neurotic or over-protective. Eating out can be a minefield. Improvements have been made in food labelling over the years, thanks largely to the European Union, which has driven that. Now the key allergens are listed in bold on the back of packets—they are very clearly marked. Indeed, since the 2014 regulations came in, we have the right to that information when eating out, about what food ingredients are going into what we are about to eat.

Restaurants, however, can easily become complacent. We had a prosecution, thankfully, which showed at least that the criminal justice system would take this seriously. An Indian restaurant owner, who had a cavalier attitude to safety, was jailed for manslaughter after a customer died from a nut allergy, because the restaurant had taken the liberty of swapping almond powder for a cheaper one containing peanuts and had not included that information on the menu.

Just a few months ago, top chef Raymond Blanc was at the BBC Good Food Show. He said:

“We are a kitchen not a hospital. Of course, now, if you don’t have an allergy, you’re nobody… It’s a very great fashion to have a food intolerance.”

I really think we do not need comments like that. They rather undermine his other claims to take diners with allergies seriously.

That attitude is really familiar to people with allergies. There is either the excessive response: “Well, you’ve got an allergy. We cannot possibly serve you, because we can’t guarantee anything, so, frankly, just go away and never eat out.” Or there is the response, equivalent to that eye-roll, which assumes that someone is making a fuss about nothing, and then people do not check the ingredients properly and that is when fatalities can happen. Many hon. Members will be aware of the case of Amy May Shead who, in 2014, was left with permanent brain damage when she suffered anaphylactic shock and cardiac arrest after consuming a dish that contained nuts in a restaurant when she was on holiday.

I have also raised the issue of parents of children with allergies being afraid when flying abroad, because they are worried about an allergic reaction happening in the air. I raised that at Transport questions and recently met campaigners and the Minister for aviation to discuss how to take that forward. Part of this is about the airlines getting their act together, but it is also about the air hostesses and air hosts on the plane having a wider understanding of allergies, so that they do not have the kind of really insensitive reactions that were reported by some parents. In one case, somebody made requests for an announcement to be made and had been deemed to be an over-protective parent. When the child and his mum got off the flight, the air host said, “See, we didn’t kill you, did we?” When we hear stories like that, we realise how far we have to go in raising awareness. This is quite a difficult issue to categorise. There are issues around health, education, transport and media, so it requires cross-governmental working.