Endometriosis Education in Schools

Jim Shannon Excerpts

Tuesday 21st May 2024 Westminster Hall

[Jim Shannon (Strangford) (DUP)]

I thank the right hon. Member for Elmet and Rothwell (Sir Alec Shelbrooke) for highlighting the issue in this debate. He has done that in Westminster Hall numerous times, and more times again in the main Chamber. I have heard him on many occasions and I admire his determination to discuss this subject matter and to make people aware of it—I congratulate him on that. The hon. Member for Kingston upon Hull West and Hessle (Emma Hardy) made two significant interventions. Although she did not say so, I suspect they came from a place of personal knowledge.

As Members may be aware, while I am a father to three sons—my wife always wanted a wee girl, but it was just not going to happen—I work in an office with six female staff members and one male. I am certainly a lot more educated than I had been, and let us be honest, that understanding should not have taken that long. Gone should be the days of boys and girls being separated out to discuss those issues. The right hon. Member for Elmet and Rothwell mentioned that in both his introduction and summing-up. Those issues affect entire households and there should be a frank, honest and non-shameful understanding, which, frankly, does not take place at the moment.

The right hon. Member for Elmet and Rothwell referred to a story from one of his constituents which is like mine. When I married my wife, which will be 37 years ago on 6 June, the doctor told Sandra, “If you have a child, this will all go away.” Well, no it did not. Indeed, three boys later and it still had not gone away. My wife suffered with the condition over all those years, and only in the last three or four years, because of life-changing things, has it been slightly different.

I will refer to one of my staff members who suffers from endometriosis. I told the right hon. Member for Elmet and Rothwell beforehand that I was going to tell her story. I am not going to mention her name, because that would be the wrong thing to do, but I want to tell her story. It is a terrible story that she has been through. She was diagnosed in 2019 at the age of 24, after having been referred to gynae in 2012, seven years earlier. It took seven years to get the diagnosis. She has not yet been able to see an endometriosis consultant and she is now 29 years of age. That is 12 years, and she is still on the waiting list.

She has been red-flagged on three separate occasions. Her GP, who is very good—I am not saying all GPs are not good, just to be clear—is one of the few to hold a gynae clinic at GP level and has instigated medical menopause, given oestrogen and implanted a coil all on the basis of her ultrasound. Her doctor has been incredibly helpful to her, but she has been through all sorts of problems. She has worked for me for a fair few years, and I am well aware of some of the problems she has, not from a personal point of view but from watching her and seeing how it affects her days as she works. Most GPs do not offer the facility that her GP does.

There are two specialists in Northern Ireland, and we are left with women who are in pain and afraid for their fertility potential. Their partners do not know how best to support and help with what they cannot see and perhaps cannot understand—I think that is part of it as well. People can offer sympathy and comfort and talk to their partner or wife, or perhaps friend, on these matters, but sometimes they do not really understand, because they cannot really feel what they are going through. I believe that the right hon. Member for Elmet and Rothwell is right. We need an absolute shift in the narrative, away from closed doors, to understanding.

We need to stop the classification of “women’s problems”. My mother probably suffered from something similar to this. She is 92, going on 93. I remember that when she was younger, she had a number of miscarriages and other things that happened. My mother says that they were always referred to as “women’s problems”. That covers very generic subject matter, but it does not really illustrate the issue.

[Caroline Nokes (Romsey and Southampton North) (Con)]

I thank the hon. Gentleman for giving way and I apologise for my late arrival, Ms Vaz. Does the hon. Gentleman agree that this is one of the fundamental problems? When we describe things as “women’s problems”, we are actually shying away from giving conditions and diseases the proper names that they have and, in so doing, are effectively avoiding an informed, intelligent discussion.

--- Later in debate ---

[Jim Shannon]

Yes, I absolutely agree with that. When people refer to “women’s problems”, they do not bring into the open the painful issue; they almost push it aside. The right hon. Lady is absolutely right to make that point. It is an issue that deserves medical attention, and significant attention at some times. We need to encourage medical students to take up this speciality by providing help with tuition, as has been done in colleagues’ constituencies in Wales. I understand that Wales has done some of these things. There has been a shortage of physiotherapists and other things. Therefore the question I ask the Minister—I am ever mindful that he is always responsive to the questions we ask, and we appreciate that because it makes our job of putting questions to him a wee bit easier when we know we are going to get a decent answer—is this. How do we encourage medical students to take up this speciality? We do so by normalising the conversation around reproductive health and by removing boundaries to conversations. That must start in education, at the very beginning—at school level, secondary school level, and college level—and the conversation should then continue right through life. That is what the right hon. Member for Elmet and Rothwell is asking for, and I support him.

I will finish with this comment. The NHS is failing young women, but more than this, it is failing families. We do a disservice by taking a silent stance. It is right that today we bring endometriosis out of the silence and into the conversation, but only if action follows.