Infected Blood Compensation Scheme

Jessica Toale Excerpts

Wednesday 23rd October 2024 Commons Chamber

[Jessica Toale (Bournemouth West) (Lab)]

I am grateful for all the work that my right hon. Friend the Paymaster General and this Labour Government have done to move quickly, and to deliver on their commitment to provide compensation to both the infected and affected. Today, we have an opportunity to support the first of those payments being made.

As we have heard from other Members, the infected blood inquiry revealed systemic failures that led to 30,000 patients being infected, and more than 3,000 people have died as a result of those infections. One of these was Jane Fitzgerald, the mother of my constituent Ronan Fitzgerald, who is in the Gallery today. I want to put on the official record the horror that Jane, her family and other victims have suffered. In 1978, when Jane was 17 years old, she had an ectopic pregnancy and was diagnosed with anaemia. Her GP advised her to have a small blood transfusion to make her feel better, and Jane was given just one unit of blood at the Royal Victoria hospital in Boscombe. It was not until more than two decades later that she discovered, at the age of 42, that she had been infected with hepatitis C. Jane and her family sought treatment, but by the time she was able to find a suitable option, her cirrhosis was too advanced. Her infection caused untold physical and emotional damage, and subjected her to numerous indignities, including the stigma related to her condition.

Jane was told on at least two occasions that she was clear of the disease, only to find that her condition had actually worsened. Her condition caused fluids to collect in her abdomen, legs and feet, which required regular draining, and she often spent hours waiting for hospital treatment when there were no beds or equipment to treat her. On one occasion, her stomach split open while she was waiting for treatment, but she was sent home because the hospital did not have the drainage equipment. Eventually, the toxins in her liver carried cancerous cells to her lungs and brainstem. Jane died in 2015, at the age of 54.

Jane was taken away from her family in the worst possible way, and they suffer the consequences every day. Ronan has spoken candidly about the irreversible impact that losing his mother has had on him, and being powerless to prevent her untimely death has affected his mental health and caused him debilitating physical illness. Ronan is a British Army veteran and served in the Royal Corps of Signals, but he was left unable to climb a flight of stairs or even leave bed; he was bed-bound for long periods at the age of just 29. In his mother’s final moments, Ronan made a vow that he would continue to fight for justice for her, and for all the families affected. Thousands more are living with illness and fear, in full knowledge that, even now, somebody dies every three and a half days.

When I first met Ronan, he asked me whether I would be willing to stand up in the House of Commons to speak up for his mother, and for all the other people who have been infected and affected. He has been a stalwart campaigner for the affected children and has strived to ensure that their voices, and the impact of this scandal on their lives, are accounted for. He now co-chairs the support group Tainted Blood-Affected Siblings and Children, representing 400 members. Although he is grateful for the progress that has been made, he has asked me to share his concerns and to be his voice.

The community of affected children have called for the removal of the discriminatory age restrictions that are placed on siblings over the age of 18 who did not live at the same address as their infected loved ones at the point of infection; for affected children and siblings to not be excluded from any heads of loss; and for all infected and affected persons to have equal access to supplementary routes across all heads of loss, whereby they may provide further evidence of their individual circumstances to ensure that compensation reflects the severe impact of this travesty on their lives. Further, payment to estates should be given the same priority as payments to living infected persons. Any process that delays these payments creates the high probability that some elderly affected members might die before the payments are made, given the time taken to process them. Currently, the Government have no safeguards or protections in place should that happen, whereas protections are offered to those living with infections who die before their payments are made. Families have been waiting too long for justice, and they now run the risk of missing out on this justice and the compensation they deserve. The infected blood inquiry report confirmed that Jane was a victim of medical malpractice through the single unit of non-lifesaving blood she was given, and this was covered up for decades.

Today is an important day on the long road to justice traversed by families affected by the infected blood scandal, and I pay tribute to the victims and all the campaigners who have fought so hard. I am grateful that the Infected Blood Compensation Authority has agreed to meet the affected children and siblings. In the spirit of test and learn, may I urge the Government to ensure that all efforts are made to deliver justice to the community and to take their voices into account at all stages of the process?