Hormone Pregnancy Tests

Jeff Smith Excerpts

Thursday 7th September 2023 Commons Chamber

[Jeff Smith (Manchester, Withington) (Lab)]

It is a pleasure to follow my near constituency neighbour, the right hon. Member for Tatton (Esther McVey), and I join her and others in paying tribute to my hon. Friend the Member for Bolton South East (Yasmin Qureshi) for her campaigns over the years, and of course to Marie Lyon for her many years of campaigning for justice for the families affected, including in my constituency.

When Baroness Cumberlege’s report “First Do No Harm” was published in 2020, it finally offered those families hope of justice. It was unequivocal in finding that those affected by Primodos had “suffered avoidable harm” and should be entitled to support and financial redress. That should have been a landmark moment. The then Health Secretary apologised, appearing to take responsibility and accept the report’s verdict, so it is really so disappointing that, as I stand here today, no Primodos-affected families have received any compensation payment to address what they have been through.

I want to emphasise the impact on individual lives by looking at two families in my constituency. Patricia McClellan had two children, giving birth to a daughter in 1969 and to her son, John, in 1971. She did not take any hormone pregnancy tests before giving birth to her daughter, who was born healthy, but she was prescribed Primodos when pregnant with John, who was born effectively missing an arm. When doctors came to assess him a couple of days after his birth, Patricia described being asked if she had taken any medication during her pregnancy, to which she replied that she had been given Primodos. She said:

“I will never forget the professor and the Doctors took themselves into my bathroom for a private conversation. I felt powerless as events happened around me.”

She had a succession of other disempowering, worrying and disappointing experiences with medical professionals while caring for John of the type that were highlighted in Baroness Cumberlege’s review.

She said:

“I have felt as though I have been kept in the dark for over 40 years. I just want answers and justice for my son and hopefully some closure to the trauma, guilt and stress that has affected almost my entire life.”

Sadly, Patricia died in 2019, never having received the closure and justice that she needed.

John has lived his whole life with the impact of his disability, and struggles with red tape and constantly having to go through the processes to get recognition of his disability from the Department for Work and Pensions. He and his daughter Leah, Patricia’s granddaughter, continue to fight for justice alongside other Primodos-affected families. Leah said to me:

“Being the daughter of a Primodos victim has also had its effects on me. I’ve lost trust in our health officials, I’ve witnessed the lies that have been told time and time again. Seeing my father deteriorate mentally and physically because of this is worrying for me.”

In Leah’s words, too many people affected by Primodos

“have sadly died since all this began. It truly feels like the Government is just waiting for them to pass on so this can be brushed under the carpet.”

[Peter Dowd]

The mother of one of my constituents was given Primodos in August 1972, two years after the standing joint committee for propriety in medicine said that it should have been withdrawn. Warnings were there for years. Why did that happen? Does my hon. Friend agree that my constituent, and his mother and father, who are up in the Gallery today, require justice to be done, and to be seen to be done by way of redress?

[Jeff Smith]

I could not agree more, and families across the country have been affected in such a way.

The Pierce family are another family in my constituency whose whole lives have been shaped by Primodos. Edward and Janet Pierce’s daughter, Louise, is now 54 years old. She was born with several different disabilities, which the families are convinced were caused by her mother having been prescribed Primodos. Louise has a severe mental disability, profound hearing loss, and difficulty walking. She has always required full-time care, which has been provided by her parents for most of her life. She lived at home with Edward and Janet until she was 50. Edward said:

“We didn’t realise the physical and mental effect this was having on our lives, it just creeps up on you.”

In 2018, Janet had a serious stress-related breakdown, leaving her with short-term memory loss and lack of awareness, and Edward now acts as her full-time carer. Louise went into full-time residential accommodation at the time of Janet’s illness. Edward said:

“I’m sure you can imagine the devastating effect this is still having on all our lives.”

It is so disappointing that the Government rejected the report’s recommendation for a new independent redress agency, and instead again highlighted the existing legal routes for redress. The Government apologised to people affected by the Primodos scandal, but are offering them no support. Those families lack the funding to be able properly to challenge the Government in court and get redress from existing legal routes, and they are being offered nothing else by the Government.

One of the specific recommendations in the Cumberlege review was the establishment of an ex gratia scheme for the victims of hormone pregnancy tests, and discretionary payments to provide redress for the stress, anxiety, psychological harm and toll of fighting for recognition experienced by those affected. That is what these families deserve.

Haven’t these families suffered enough? The mothers who were given Primodos are in their 70s and 80s now, and some have sadly died. Their children are mostly in their 50s. Time is running out to give them the redress they deserve. The Cumberlege report stated that

“while there is disagreement between experts about whether Primodos caused birth defects, the fact remains that thousands of women and unborn children were exposed to a risk that was acknowledged at the time.”

Primodos was deemed dangerous enough to pregnant women to be pulled off the shelves, and Baroness Cumberlege found that those families had suffered avoidable harm. In such circumstances, and having commissioned the report, surely it is the Government’s moral duty to implement that report’s recommendations in full or, failing that, to explain how those families will get the financial redress they deserve.

In July 2021, the then co-chairs of the all-party parliament group first do no harm responded to the Government’s response, welcoming their acceptance of four of the review’s nine recommendations, and a further one in principle. It also said:

“But we are deeply disappointed the Government has rejected calls for an independent redress agency or any redress for families whose lives have been devastated by medicines or medical devices. For those families justice has not been done today.”

One of those co-chairs, the right hon. Member for South West Surrey (Jeremy Hunt), is now Chancellor of the Exchequer. He has the purse strings and he could make those ex gratia payments happen.

We have heard today from the former Prime Minister, the right hon. Member for Maidenhead (Mrs May). She knows this issue so well and her remarks were powerful. I completely agree with the right hon. Member for Kingston and Surbiton (Ed Davey) that the drug companies must be held responsible. Ultimately, they should be the ones who pay, but in the meantime it is time for the Government to stop hiding and avoiding their responsibilities. It is time to act, and time to give these families the justice they deserve.