Down Syndrome Bill

Ian Paisley Excerpts

2nd reading
Friday 26th November 2021 Commons Chamber

[Dr Fox]

The hon. Lady makes a powerful point: there must be a holistic approach because although the delivery of government exists in the silos of health and education and social care, the needs of patients do not. The complex, interactive needs of patients must be dealt with in exactly the holistic way she describes, and hopefully this Bill will ensure that that integration occurs to a greater degree in the future than, sadly, it did in the past.

The hon. Lady also makes the good point that today we are seeing an example of Parliament at its best: united across the traditional party divides to deal with an issue we have all experienced and where we all know things have to improve. I hope that while this Bill, to my regret, applies only to England, we will soon find ways to make its provisions available to all parts of the United Kingdom.

[Ian Paisley (North Antrim) (DUP)]

rose—

[Dr Fox]

Unsurprisingly, I shall give way to the hon. Gentleman.

[Ian Paisley]

I congratulate the right hon. Gentleman on what he has said so far. It is unfortunate that legislative consent is not going to be considered in Scotland or Wales yet, and we hope we can encourage them to take that on and drive it forward. I hope the Northern Ireland Executive Minister of Health will adopt this and we will be champions together in this groundbreaking legislation.

[Dr Fox]

I am grateful to the hon. Gentleman for his point and perhaps I should explain why we did not bring this forward as a whole of the United Kingdom Bill. I did not want this to become an argument about the rights and wrongs or responsibilities of different parts of devolved Administrations in the United Kingdom; it has to be about people. If we can encourage other parts of the UK, through whatever systems of government are responsible for these issues, I hope the unity that exists across the House and the fact that this Bill was sponsored by all parties in the House of Commons will be a guiding light to those other parts of the United Kingdom about the urgency of making these rights available to all.

I end on the following point. This is not a Bill about a condition. It is not about dealing with Down’s syndrome; it is about people who deserve the same ability to demand the best health, education and care as the rest of our society. It is not on our part an act of charity; it is an act of empowerment and a recognition that all members of our society must have a right to respect, independence and dignity. That is why I have brought this Bill forward.

--- Later in debate ---

[Ian Paisley (North Antrim) (DUP)]

Thank you for calling me in this debate, Mr Speaker. It was an absolute honour to be asked to be a joint sponsor of the Bill by the right hon. Member for North Somerset (Dr Fox), and I congratulate him on the way in which he has manoeuvred this piece of creative legislation through the minutiae of Government and civil service—not only to get it to the Floor of the House, but to do so with a fair wind from Government. The indications from Government are that they will support and endorse what is trying to be achieved.

It is amazing, when we read the terms of the Bill and think about what it tries to achieve, that this has not been done before. That is what is so groundbreaking about it. This was a clear and obvious gap that the right hon. Member, through the discoveries he made, realised needed to be plugged. The Bill will do that. It is also a fine example of where private Members’ Bills come into vital use. This House would be poorer if private Members’ Bills were not part of the democratic process in our nation. That is very important.

When we come into this House on a daily basis, we probably do not notice the architecture or the windows in the way that many people do. However, the huge window that we see as we walk into St Stephen’s Chapel and through the hallway there is the equality window, on which there are the scrolls of rights and equality legislation that this House has been engaged in over the centuries. This Bill is landmark legislation. It will stand with that equality and rights legislation. That is how important the Bill is to the House and to the nation. We are saying, “Yes, people with Down’s syndrome are different, but they are equal, and this makes them equal under the law—equally entitled to all the rights and liberties that our laws provide for every other citizen.” That is what is so crucial about today’s debate.

Two Down’s syndrome babies are born every week in Northern Ireland—there is a high prevalence there—but that is not something to be scoffed at; it is something to be celebrated. This is an instance in which we celebrate life and we cherish life, and the fulfilment that that life can give. The Bill will help to normalise that sense of celebration: if people are given everything to live for, they will lead fulfilled and proper lives.

We have seen some impressive and inspirational accounts of the Down’s syndrome experience in Northern Ireland and what parents have done. They share the view that that Down’s syndrome experience is equal, which is why this law is needed to encourage the various authorities in Northern Ireland to support it. In our newspapers recently we read the story of little Jacob Smyth, whose mum and dad, Ciara and Adam, helped to set up a charity called Joy 21 after he was born. That charity shares the very positive message of what having a Down’s syndrome child means, and all the things that can be done to ensure that that child has a full and fulfilled life. There is no doubt that if a child is raised in a positive atmosphere, no matter what disadvantages people may say are involved, that positive environment will help to create the circumstances of a full and vital life.

Another positive story is that of Grace Wilson, a 14-year-old girl from Newtownabbey. When she was born, people were saying to her mum and dad, “Sorry about the circumstances.” The parents were not sorry about the circumstances; they were joyous to have a lovely little girl, and that little girl has exceeded all their expectations, because mum and dad made sure that she was mainstreamed, and was seen not as different and excluded but as part of our society. That is what changed little Grace’s life and made her exceed all her parents’ expectations.

If we limit people’s expectations by lowering their horizons, they will have less fulfilled lives. If we allow them to aim for the highest horizons possible, they will have the most fulfilled lives possible. The Bill allows that to happen, because it makes it clear that the Government must take account of the specific needs of people with Down’s syndrome when exercising their “relevant functions”, and must have due regard to the guidance issued by the Secretary of State when exercising those functions as set out in the Bill.

Another story is that of William Graham, a councillor from Bushmills in my constituency whose son has Down’s syndrome. That lad has always been part and parcel of the community, and he and his parents exemplify the fact that there is nothing different here—“nothing to see here”. This young lad leads a normal life. He works on a farm like other kids in the area, and has grown up to become a key member of his community.

We must ensure that this Bill allows people to see that where there is difference there must be equality—that where there is difference we can also be equal. I hope that the legislative assembly in Northern Ireland, the Scottish Parliament and the Welsh Assembly will all grant legislative consent. I believe that today is a landmark day, which will go down in history as the day when this process really got under way, and that our legislators will follow in this groundbreaking and world-leading piece of legislation. I commend it to the House. I also thank the Minister for the note that she gave us all earlier this week, indicating that the Government support the Bill and want to drive it forward.